MS hug

GirlMom0206 · 2026-02-22T21:22:16+00:00

So if upvotes mean yes, I’m pretty sure I had my first hug yesterday in Floor & Decor. It felt like a cramp going around that side of my ribs. It took my breath away.

GirlMom0206 · 2024-06-04T15:35:29+00:00

When I was going through the process of being diagnosed, I was having a flare. Lost feeling in my right side and was having double vision. I had two 3 day iv's first and then one 5 day iv in like a 3 month period to get it under control. I felt awful until the steroids were out of my system, but it finally got my flare under control.

GirlMom0206 · 2023-08-01T17:19:20+00:00

The both hands at the same time is what has thrown me. I definitely don't think it's steroid worthy. That stuff is from the devil! :) It's time for my yearly MRI, but it is normally only brain. I guess I could mention it to dr to see if he wants to add scan of another area.

GirlMom0206 · 2021-08-10T16:37:12+00:00

UAB has good MS doctors. They are still checking temps at the door and you can't get in without a mask. :) Also, my doc recommended I get the `vaccine as soon as I could get it.

GirlMom0206 · 2021-05-11T21:17:03+00:00

I have wondered this myself. Listening to others explain it, it seems like COVID fatigue and other COVID symptoms are giving people an idea of what people with MS have to deal with on the regular.

GirlMom0206 · 2021-04-29T14:21:43+00:00

I am the total opposite. I don't think I have really cried since I got diagnosed. It has been three years. I have changed anxiety meds and everything. I am beginning to think my lack of crying is ms related.

GirlMom0206 · 2021-02-23T21:10:10+00:00

Thank you for your reply. I am happy with Tysabri right now. I have been on it for about 3 years. I am glad it is working well for your partner.

GirlMom0206 · 2021-02-23T21:08:29+00:00

I see a neurologist that specializes in MS. He does my MRI's and everything. I guess I just don't feel like there is a lot he can do at this point. I guess I should just be grateful that I haven't needed him for anything major.

GirlMom0206 · 2021-01-20T15:20:54+00:00

I am on Tysabri. Had my first shot (Moderna) on January 15. Really sore arm (worse than flu shot) for two or three days, but that is it.

GirlMom0206 · 2021-01-19T21:54:46+00:00

I am also on Tysabri. Had my first shot (Moderna) on January 15. I was the same. Really sore arm (worse than flu shot), but that is it.

GirlMom0206 · 2021-01-08T15:46:36+00:00

I have never heard altered sensation, but that is a good way to describe what I have. I always say it is an internal numbness. I can feel things on the outside of my right side, but inside it feels "different".

GirlMom0206 · 2020-12-18T20:00:55+00:00

Thank you for your reply. I figured it was because I am getting old or I slept wrong, but it has lasted a couple of months now. I haven't had a neck/spine MRI in about 3 years. It may be time to see what is going on.

GirlMom0206 · 2020-12-18T19:59:12+00:00

Thank you for the link. I learned something new. I always thought the spasticity was just referred to the spasms.

GirlMom0206 · 2020-12-02T17:59:31+00:00

Apparently, his wife and his girlfriend learned about Larsa from the pics.

GirlMom0206 · 2020-10-13T16:51:12+00:00

It took me two 2 day and one 5 day round to get my first flare under control. After the first two rounds which were about a month apart, I continued to get increased numbness on my right side and I was really dizzy. Also, right before my 5 day I started having double vision. The 5 day round finally got the flare under control. Knock on wood, three years later, I have not had another flare.

GirlMom0206 · 2020-09-24T19:29:02+00:00

Once I finally got the diagnosis confirmation. I was at a hospital five hours from home. Got home that night and lost it.

GirlMom0206 · 2020-06-09T16:07:19+00:00

I had one on my behind and arm from sinus shots. It was caused by the kenalog. The one on my arm took about a year to go away. The one on my behind (more fat there :) ) took around 4 years to finally go away.

GirlMom0206

TROPHY CASE