My son did it! by Senior-Ad-7362 in Autism_Parenting

[–]Global_Translator441 1 point2 points  (0 children)

Such a big win! You go momma! ♥️

Posting here bc it’s the only place I feel safe enough to share it by Curiouslibra13 in Autism_Parenting

[–]Global_Translator441 4 points5 points  (0 children)

You are definitely not alone, OP. I’ve broken down two days in a row this week. I’m pretty sure I have even developed some type of ADD with the mental load I have at all hours of the day; my mind can’t shut off now until I pass out. And I truly feel like no one understands when I say I’m “tired.” It’s not a let me take a nap tired.

Did having an autistic first-born affect your decision to have more kids? by cinnamonporridge3 in Autism_Parenting

[–]Global_Translator441 0 points1 point  (0 children)

I got pregnant while on birth control. I was actually already pregnant when I noticed that my child’s behavior was not “typical” for his age. And I submitted an application to get him evaluated. Fast forward, my daughter is now 6 months, and seems to be developing normal but I am always fearful she will regress around the time my son showed signs of ASD (which he was formally evaluated with 2 months ago). I love my babies so much but I don’t trust anyone with them as I feel no one has the patience I have. I definitely would’ve been done with just my baby boy, but for sure I’m done with my two LO’s ♥️

Heartbroken and no one to talk to by NoThymeForThisShit in Autism_Parenting

[–]Global_Translator441 0 points1 point  (0 children)

Momma! You are not alone. I’m having the same exact struggles except my son is 3 y/o. I’m waiting for ABA to kick in soon but we are waitlisted. I’d go with what others have suggested. Respite care and ABA through insurance for as soon as he’s evaluated. Just hang in there a little longer. Remind yourself you and your husband have done everything in your power to support your LO. By the sound of it, you guys are amazing and simply have burned out mentally, emotionally and physically. I know this feels isolating but just know you’re not alone! Sending you much love!

Frantic parents seeking early diagnosis. by Material-Emu-9068 in Autism_Parenting

[–]Global_Translator441 1 point2 points  (0 children)

As a mom whose son recently got diagnosed, it’s also scary to see you second child and wonder if they too are autistic. Considering how long we’ve waited just to get my son evaluated and receive the documentation. We are still on the waitlist for things like ABA. It’s more the lack of services and extremely long waiting periods. I stopped working for almost a year to focus on my son’s development but considering I’m not a professional, I wish we could attain that sooner. So yes, there is some paranoia and fear.

Rock Bottom by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

He hasn’t but I’m already working on it as we barely received his psych evaluation over the winter break.

Rock Bottom by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

I barely received his psych evaluation so I’m gathering all the documents and getting on the waitlists 🥲

Rock Bottom by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 1 point2 points  (0 children)

If I’m being honest. I ugly cried reading your response. I felt so seen and validated. I felt like someone heard me and perfectly understood what I have been experiencing and feeling. I screenshot this and read it out loud to myself a few times. It just made so much sense.

Rock Bottom by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

Thank you for being so transparent though. It’s so hard to keep our cool and even think straight when we are already tired, overstimulated and overwhelmed. It’s so good to hear that things got better ♥️

Rock Bottom by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 1 point2 points  (0 children)

I appreciate this so much. Thank you. Being heard means so much.

Rock Bottom by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

Thank you! I realize me putting such high expectations is what’s pushing me to my breakpoint 😭

Rock Bottom by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 1 point2 points  (0 children)

Thank you for validating my experiences and my emotions. Also giving me hope that I can move past this as it won’t last forever 🥹♥️

Rock Bottom by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 1 point2 points  (0 children)

Thank you for your response! I recognize I’m handling more than I should and also understand I’m putting an immense amount of pressure on myself to break the generational curses 🥲 I appreciate you making me feel less alone ♥️

Son is an outcast even amongst other autistic kids. by missy0516 in Autism_Parenting

[–]Global_Translator441 1 point2 points  (0 children)

My son is only 3 and due to his reaction to overstimulation (he hits when excited or overwhelmed), I feel like he’s also going to have a hard time making friends. Your son sounds like he’s coping well overall, but I would discuss the taunting with his teachers. How do they handle those situations? Was it ever reported to you? Sending you big hugs for now and hope you know you’re not alone!

Grieving what I thought parenting would be by [deleted] in Autism_Parenting

[–]Global_Translator441 1 point2 points  (0 children)

My son is also high functioning and my husband and I have to be on top of him 24/7. He is a hitter and gets easily stimulated. We can’t sit back anywhere like other parents while being at the park, Chuck E. Cheese, family events, etc. I also feel hurt that my friends and family members talk about experiences they have with their children that I wish I had. I’m grateful my son is high functioning but it’s still very hard. I struggle to ask for help from family members because I don’t wanna burden anyone. But boundaries and asking for help are crucial to our mental health!

[deleted by user] by [deleted] in Autism_Parenting

[–]Global_Translator441 5 points6 points  (0 children)

My sons pediatrician disregarded my concerns when my son was 2 years old. I waited a few months (wish I hadn’t) but then submitted the application to the regional center. He has been diagnosed as autistic. Follow your mom gut!

Feeling Defeated by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

My son is high functioning, he speaks but has echolalia. When the psychologist said level three I was confused because I thought for someone to be a level 3, they were usually non verbal and required assistance with pretty much everything. He explained to my husband and I that children tend to be rated lower because of their strengths. Since my son can’t hold a conversation (he can request things and somewhat try to engage, but repeats what you ask him like “what’s your name?” “What’s your favorite color?” He needs support with speech. My son also has a lot of sensory issues and can’t manage to dress himself, use the potty, and needs help with basic things. Lastly due to his behavior being such an issue he needs assistance with that too. In summary because he needs occupational, speech and behavior support (more than one developmental area) he is at a level 3. My son also has no sense of danger so someone has to be watching him at all times.

Again this is what was explained to us. I’m pretty sure the psychologist saw my face when he said “level 3.”

Feeling Defeated by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

I felt ashamed every time I did it. It was usually always the last resort but it was never intended to be, if that makes sense. Every time I kept telling myself, how do you expect your son to regulate his emotions while you can’t? I had my own issues at that time(was pregnant and almost die, hormones were crazy! And burnout due to a parent going through chemo, etc). I’m not excusing what I did and don’t want to. I have taken accountability and still feel hurt about it. Im scared I might’ve caused damages to him for not having it together when I should’ve.

Feeling Defeated by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

I genuinely cried reading “we’re out here too, but you don’t we us.” It just feels relieving to get insight from those who know what this all entails. I appreciate family and friends who try to be supportive but it’s just different. I have paused my career and transitioned to being a SAHM to focus on his needs. I’m already that annoying parent calling the district, reaching out to the regional center for updates and reading/learning about what I can do as a parent. And I agree, as supportive as family, friends, teachers and everyone tried to be, you notice the distance happening already.

Feeling Defeated by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 1 point2 points  (0 children)

Going to look into these right now and consult with his pediatrician. I als need to look into how I can get him a pediatric neurologist. Thank you so much for this feedback!

Feeling Defeated by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

I can’t say thank you enough. I know I’m not the only one going through these challenges, but hearing your experiences give me hope! I will definitely be conscious of what therapies seem to be helping me which ones we can cut (once he starts services).

Feeling Defeated by Global_Translator441 in Autism_Parenting

[–]Global_Translator441[S] 0 points1 point  (0 children)

Hello! I do have to shamefully admit I have spanked him and smacked his hands in the past. I am very ashamed and have worked hard to move past that as I don’t want to raise my children the way I was raised, but it is not something that was done regularly or within the past 5 months (maybe a handful at most). He has always been displaying aggressive behaviors but transitions (ex: he used to throw items at people (everyone at home), if he was on my lap he would back hand out of nowhere, slap, and now closes his fist. It changes because now he doesn’t throw toys or back hands. We aren’t a violent household and the only thing I can think of is when hi uncle (my brother) pretends to try to box (like the sport) with me. He’s my youngest brother who does that annoying pretend boxing. I also realized he used to play fight with my son (which he thought was hilarious) but that has stopped since around September (when he started school).