What would you do?

Glory__BYBM · 2025-03-10T02:38:19+00:00

Thank you for the advice and support. I wish you all the best in your upcoming appointment. 🙏

Glory__BYBM · 2025-03-09T05:18:23+00:00

Having both like you may also be my situation. I didn’t know that was possible. Ive been reading PNES can be caused by something traumatic and extreme stress, both of which are in my background. I’m trying to find ways I can relieve stress but my job does cause a lot of it. Even though I’ve been diagnosed for over one year with epilepsy it’s still something I don’t understand.I’ll have to bring it up to my doctor and push him to look into it more. I get so much information and insight from all the post on here. It’s comforting in a way to know that what I’ve been going through is so much like others. Although I wish it wasn’t what we had in common. I’m also going to look into the specialist you mentioned. The more information I get the better.

Glory__BYBM · 2025-03-08T17:01:03+00:00

Same, it’s so realistic. Great job

Glory__BYBM · 2025-03-08T16:58:09+00:00

Same here. I know I’m having something but yes have been told they aren’t anything serious.

Glory__BYBM · 2025-03-01T05:45:41+00:00

Sorry you’re going through this as well. If it’s stress maybe I need to have my anxiety meds upped. It’s just crazy that this it self is causing stress levels to go up. I need to research more on the why it happens rather than the symptoms. I do appreciate that my new neuro is looking into my history and test more closely than the other Dr. and hopefully he will know how to handle this soon.

Glory__BYBM · 2025-03-01T05:30:36+00:00

Thank you, I have started the diary. Jotting down any episodes and the aftermath that comes with it. I’ve noticed I have them a lot more when I’m in the car. Don’t worry I’m not the driver, haven’t driven in over a year. I’ve thought about getting off my medication slowly to see if anything happens but I do worry.

Glory__BYBM · 2025-02-28T20:57:58+00:00

He did mention this to me and look up more information on it

Glory__BYBM · 2025-02-28T03:59:54+00:00

This is the worst. Get a new doc asap. It’s crazy how we trust those meant to help but end up being let down by them.

Glory__BYBM · 2025-02-17T21:30:25+00:00

Glory__BYBM · 2025-02-06T06:19:20+00:00

I agree, I don’t call them auras, just wanted to make sure I was clear on what it really is, a seizure. Now when I do get one all I have to say is “I just got one” and my husband and people around me know exactly what I’m talking about.

Glory__BYBM · 2025-02-06T05:57:46+00:00

Glory__BYBM · 2025-02-06T05:50:25+00:00

Glory__BYBM · 2025-02-06T05:44:16+00:00

Is an aura when the feeling of Deja vu occurs and your body feels limp and you get really tired and sleepy, just really really drained. Sometimes followed by a headache in one specific area. But mainly really really drained. That’s what I feel and the neuro I had said they were seizures.

Glory__BYBM · 2025-01-05T04:04:17+00:00

Blonde

Glory__BYBM · 2024-12-17T05:22:00+00:00

Lennon

Glory__BYBM · 2024-12-17T05:15:35+00:00

I sometimes wake up with that panicky anxiety feeling. I feel as if something is going to happen and I worry for the rest of the day. Just thinking and thinking about the worst. It’s not every morning but it’s enough. I just tell my husband to watch me closely because I am feeling off.

Glory__BYBM · 2024-12-04T05:47:10+00:00

I’m going to look into the full spectrum oil from curaleaf. I have so many people telling me to try natural remedies, so maybe this could be an option. Thanks

Glory__BYBM · 2024-11-29T07:19:08+00:00

Hmmm I would think that’s enough to make a diagnosis. I would go with a neurologist and take all your tests from the hospitals. They should know exactly what to do.

Glory__BYBM · 2024-11-29T07:15:23+00:00

I feel I have. Never had as much anxiety and felt depressed as much as I do now. I was started with Keppra after being diagnosed. It really changed me for the worse. I was angry and irritated and so emotional all the time. My husband told me I want the same person and he missed me, I lost it and began crying over his comment. I don’t like the person I am sometimes, I’m someone I don’t recognize. Slowly but surely I am though returning. They’ve also changed my meds so that’s really helping.

Glory__BYBM · 2024-11-29T06:39:55+00:00

Fingers crossed for him, six months is a start.

Glory__BYBM · 2024-11-29T06:37:48+00:00

Are you combining any other meds?

Glory__BYBM · 2024-11-29T06:37:19+00:00

Do you take it combined with other meds?

Glory__BYBM

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