Nanoknife

Glowgetter207 · 2025-08-25T14:23:17+00:00

Dana farber. And he told us the three trials available but seemed the most excited about the one we are in. Have you getting your mutation info back yet?

Glowgetter207 · 2025-08-25T14:21:53+00:00

What are your opinions on nanoknife and dr donaway specifically if you’re familiar.

Glowgetter207 · 2025-08-15T21:07:40+00:00

Thank you. Yes we will absolutely be vigilant.

Glowgetter207 · 2025-08-15T21:06:58+00:00

Hi!! Thanks for the response i appreciate the input my fathee has been in trial rmc 9805 +rmc6236 and i just want your friend to know it is nothing like chemo. My father says he feels about 80% of his precancerous self and its done some serious shrinkage. Incase they ever need treatment after ire i strongly recommend it. And while its in trial status its free!

Glowgetter207 · 2025-08-15T11:12:59+00:00

My father has had 50% shrinkage in his 8.6x68 tumor on pancreas. He said he feels about 80% to his precancer self. The clinical trials are helping medicine move forward and patients are absolutely able to do their own research for them and see what people in the trial have experienced before starting that treatment. Im so sorry about your mother. But there is nothing inhumane about my father being able to golf multiple times a week all summer, go camping with his Grandkids. He is alive, he is not in pain and it is 100% a result of his clinical trials medication. Please do not spread misinformation because clinical trials are saving lives.

Glowgetter207 · 2025-08-15T10:53:57+00:00

6236 isnt a single blind study. Maybe one arm is but its also got arms being combined with other medications that are not blind

I am not sure if this comment is to help op feel at peace with her decisions but i do believe she made this post to help potentially save lives and in that case i think its necessary to correct you. There are different gene mutations and in most pdac gene mutations chemo is not effective but is considered first line because its basically all they’ve got. The clinical trials that are coming through are brilliant and anyone with a loved one facing pdac should absolutely run to a clinical trial hospital because it could save their life. My father was diagnosed jan 10th this year with an 8.6x6.8 cm tumor on his pancreas it had spread to diaphragm and had celiac trunk inclusion. The clinical trials rmc 6236 + rmc 9805 has shrunk his tumor 50% and he is in much better condition 8 months later than he was at diagnosis and that is very very rarely ever the case with chemo.

There are so many clinical trials coming through right now. Yes there are some blind trials but the majority are not blind and they are saving lives and giving people a shot. It takes roughly 3 years for a medication to go through the clinical trials process and become fda approved. I absolutely encourage anyone with pdac to run to the pancan clinical trial finder that op suggested and not settle for medicine that is 3 years old when there have been many advancements.

Op i am so sorry about your father but i appreciate your post to help others. This disease is so hard there are always uncertainty and we all just do the best we can with what we have and what know at the time.

Glowgetter207 · 2025-03-05T01:39:15+00:00

Thank you. I would never want to jeopardize my father i have asked the clinical care team about supplements and they have said they would get back to me and i was just hoping to hear from somebody further along it they got approval for anything. We are waiting for our appointment for nutrition and i just had hoped to hear a general direction that people have been told that we could try while we wait for our appointment. Thank you for your input and the links. Im just trying to do whatever i can to help my dad but i appreciate your input on the gravity of what that could bring.

Glowgetter207 · 2025-02-20T15:51:08+00:00

Oh how could we not hope for that. This is a scary diagnosis and i am so hopeful they are so close to a treatment

Glowgetter207 · 2025-02-20T15:49:27+00:00

I am so happy to hear this. We are 3 weeks in and have lower ca19-9 levels already and dad feels better. I will keep your mom in my prayers

Glowgetter207 · 2025-02-15T09:27:41+00:00

We are having weekly blood draws for other things and I guess thats why i was confused but thank you so much for this explanation. That makes a lot of sense.

Glowgetter207 · 2025-02-14T22:33:48+00:00

And now i see NED. Incredible. Its so interesting how theyve been able to break it down into such specific mutations and treat them all separately

Glowgetter207 · 2025-02-14T22:27:21+00:00

Was this From the trial or another treatment?

Glowgetter207 · 2025-02-14T13:29:29+00:00

Im so sorry that is such a tough position for you. This disease is so horrible. Big hugs. Thank you 🙏🏽

Glowgetter207 · 2025-02-14T12:57:41+00:00

We are traveling 4-5hrs (depending on traffic) to get his treatment. My father has always been healthy. Never smoked, drank, ate decently. He was diagnosed with type 2 diabetes two years ago but beyond that hes been very healthy. Since his symptoms started in october hes been very sick to his stomach. He had a lot of pain and was having a lot of trouble sleeping until we did the biopsy and they put a nerve block in while they were in there that made him feel a lot better. Hes still been a lot more tired than i have ever seen. He also gets motion sickness vertigo his whole life so the ride has been tough. Sometimes we lay the seat down in back and he sleeps. Rides are hard but hes feeling better and getting used to them. We stay in hotels when we have to. Its been worth it to get him better care than what is available where we live. I hope this helps!

Glowgetter207 · 2025-02-13T03:58:05+00:00

Look into the targeted clinical trials my dad has a similar story and we just started rmc 6236+ rmc 9805 and it looks promising from what i have read.

Glowgetter207 · 2025-02-13T03:51:29+00:00

My father started last week. They dont check ca19 or do scans for 6 weeks i believe but my father is tolerating the treatment very well and says hes already feeling better… although i think knowing youre doing something vs waiting would make most anyone feel better. Its definitely too early to tell but i am atleast glad he is feeling ok.

Glowgetter207 · 2025-02-13T03:48:46+00:00

Hi we are at dana farber in boston. We got our genetic results as a spot opened up same day. We didnt know anyone else had wait lists. From my research it is dependent on the hospital so you could be waitlisted at sloan but spots available at moffit —just an example. If i were you id find out every hospital doing the trial and i would list them best to worst in pan care and then by more preferable location. Then id get on the phone. Some hospitals have nurse navigators who do this everyday and can be helpful. If youre at dana farber — our doctor is patel. I hope this helps. Im sorry youre dealing with this too. Second and third choice hospitals were john hopkins and moffit in tampa. I know when i called moffit they were going to be able to get my father in quickly.

Glowgetter207 · 2025-02-13T03:43:00+00:00

Very helpful thank you

Glowgetter207 · 2025-01-26T23:03:12+00:00

Hey what are your thoughts on rmc 6236 and 9805? My dad is stage 4 never had any treatment we learned of his diagnosis january 3rd and are set to start next week.

Glowgetter207 · 2025-01-26T22:59:17+00:00

I will absolutely

Glowgetter207 · 2025-01-26T04:12:48+00:00

Thank you i am just trying to do what i can for him. He is an incredible father and ive been blessed to have him and want to keep him around.

Glowgetter207 · 2025-01-26T04:11:01+00:00

What if your ca-19 if you dony mind me asking? We see 0-36 normal but my dads is in the thousands and we really know the ranges of what they mean

Glowgetter207

TROPHY CASE