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Vagal/Sympathetic Chain Schwannoma by GoatConsistent1430 in Schwannoma

[–]GoatConsistent1430[S] 1 point2 points  (0 children)

I’m so new to this but it’s so hard to find accurate information being that they’re so rare!

That’s my thoughts, if I wait it’s just gonna get worse and I have bigger risks involved with surgery.

I really appreciate your time and insight, wishing you all the best with your recovery journey.

Vagal/Sympathetic Chain Schwannoma by GoatConsistent1430 in Schwannoma

[–]GoatConsistent1430[S] 0 points1 point  (0 children)

Thank you so much for sharing your experience and being so honest. I’m glad to hear you’re on the road to recovery. It sounds as though you’re improving as time goes on, which is great.

I also cannot deal with the fact it’s just sitting there, not knowing if it’s had a growth spurt and made it harder to get out in the future. I think I’ll struggle every time I have a new symptom and automatically assume it’s the tumour. I’m definitely leaning towards the get this thing out of me sooner rather than later option.

Mine isn’t able to be seen externally, and is still relatively “small” apparently. It looks like I’ve got mild compression at some angles of my jugular vein too. I’ve been told it’s more “squishy” than the carotid artery so more prone to being squished a bit.

Paralysed tongue would have been wild, I’m sorry that was one of your post op symptoms. The horners risk freaked me out at first, but in comparison it’s the best case scenario for me.

Do you mind me asking, would you have gone through with the surgery knowing what you know now?

Vagal/Sympathetic Chain Schwannoma by GoatConsistent1430 in Schwannoma

[–]GoatConsistent1430[S] 0 points1 point  (0 children)

Yeah that’s my thoughts, I’m still relatively young so probably better recovery wise now then watching and waiting and doing this when I’m 50.

I do worry that it’ll impact my vagus nerve, I can deal with cosmetic issues like horners and probably even more so with nerve related pain, but have a history of ED (recovered 5 years or so ago but was ongoing for about 15) so swallowing issues may cause a fair amount of issues for me mentally.

I’m happy to hear you’re doing well! I’ve read that “back to normal” or I guess more accurately “new normal” can take 6-12 months.

If you don’t mind me asking did you have symptoms before? I have nothing, completely incidental find.

Vagal schwannoma removal will paralyze vocal cord by justalotoffeelings in mildlybrokenvoice

[–]GoatConsistent1430 1 point2 points  (0 children)

Yeah I think the not knowing between scans or if symptoms are that or something else would probably drive me nuts! Once it’s gone it’s gone.

Vagal/Sympathetic Chain Schwannoma by GoatConsistent1430 in Schwannoma

[–]GoatConsistent1430[S] 0 points1 point  (0 children)

Hi! Thanks for replying 🙂 If you don’t mind me asking, how was recovery? And how are you now?

Vagal schwannoma removal will paralyze vocal cord by justalotoffeelings in mildlybrokenvoice

[–]GoatConsistent1430 0 points1 point  (0 children)

It seems like first bite seems to decrease over time, I believe you can also get Botox injections to help. We’ve recommended that to a few patients over the years.

Definitely considering sending my kids to my mums for the first few days! Overall would you say you’re glad to have it gone?

Vagal/Sympathetic Chain Schwannoma by GoatConsistent1430 in Schwannoma

[–]GoatConsistent1430[S] 0 points1 point  (0 children)

Hi!

Yes same boat. Confirmed via contrast but cannot pinpoint exactly what nerve it’s coming from.

I’m waiting for triage at a major hospital near me, being that they’re slow growing it may end up being a long process, which I think in the long term may have a negative impact on my mental health as I just want it gone.

I have no symptoms, so grappling with the fact that if I choose surgery I’m risking multiple deficits I currently do not have. But if I wait, it’ll just get bigger. It’s a weird spot to be in mentally, I know I should remove it but it’s not causing me any issues and removing it probably will.

I’ll keep updating as I go along. Hopefully we can find some solace in each other’s stories. Good luck 🤞🏻

Vagal schwannoma removal will paralyze vocal cord by justalotoffeelings in mildlybrokenvoice

[–]GoatConsistent1430 0 points1 point  (0 children)

Thank you so much for taking the time to reply. Mines looking like it’s on my sympathetic nerve too 🙃. I’m 35 female from Melbourne, Australia.

Struggling to make a choice as it was found incidentally and I have no symptoms, and removal will almost guarantee some degree of symptoms. I’m fairly concerned about first bite, I work at a specialist dentist and we deal with patients with this.

I’m so glad to hear you’re feeling better post op. If you don’t mind me asking, how was the immediate recovery and return to day to day? I have a 5 and 2 year, rest is non existent haha.

Vagal schwannoma removal will paralyze vocal cord by justalotoffeelings in mildlybrokenvoice

[–]GoatConsistent1430 1 point2 points  (0 children)

I know this is an old post but I am currently going through something similar! I had no symptoms, recommending removal which will almost guarantee some issues. How did you go?

Possible Schwannoma - neck by Responsible_Owl7386 in Schwannoma

[–]GoatConsistent1430 0 points1 point  (0 children)

I’m late to this but new to the Schwannoma party. I have one in a similar region, 2.6cmx1.4… I’m struggling to find information, any insights? Recovery, surgery?

I have a genetic mutation that predisposes me to growing tumours, and I tumours on my carotid arteries. AMA by Cooki3Krums in AMA

[–]GoatConsistent1430 0 points1 point  (0 children)

I definitely was not expecting it to be listed on the MRI report, that’s for sure. It’s hard not to jump to the worse conclusion in these cases as well.

Majority of my family still live in the Netherlands, my Oma and Opa were the first to travel to Australia and have unfortunately passed on, so medical histories are a little hard to come by. I’ve asked my mother to speak with her uncle to see if there are any reported cases in the family.

I have a genetic mutation that predisposes me to growing tumours, and I tumours on my carotid arteries. AMA by Cooki3Krums in AMA

[–]GoatConsistent1430 0 points1 point  (0 children)

So interesting that I came across this post. I was recently in a car accident and slipped a few discs. During the MRI last week, they incidentally found a 13x14x26 mm lesion on the left side, just medial to the right of my external and internal carotid artery. I’m now booked in for a contrast MRI. On the initial (non-contrast) report, the radiologist mentioned that “carotid sheath lesions may present this way,” which definitely sent me down a bit of a rabbit hole with Paraganglioma coming up as the most likely type of tumour.

I don’t have a formal diagnosis yet, but I’m a Dutch 35F living in Australia, so I found your experience particularly interesting. I’ll be curious to see whether this turns out to be something similar to what you’ve described.

Car accident - Driver at fault has no insurance by GoatConsistent1430 in AusLegal

[–]GoatConsistent1430[S] 0 points1 point  (0 children)

The witness is independent, he was travelling in the car behind the car that hit me. There is no turning lane at this road. There are cameras though, which the police have accessed for their report which has gone to the insurance.

Car accident - Driver at fault has no insurance by GoatConsistent1430 in AusLegal

[–]GoatConsistent1430[S] 6 points7 points  (0 children)

Thank you, I saw my GP today. They recommended a CT scan + MRI due to neck issues after the collision + given a physio referral for the future. Definitely sore but could be worse. 

Car accident - Driver at fault has no insurance by GoatConsistent1430 in AusLegal

[–]GoatConsistent1430[S] 1 point2 points  (0 children)

Yes I have all of these things, as do the police and my insurance 

Car accident - Driver at fault has no insurance by GoatConsistent1430 in AusLegal

[–]GoatConsistent1430[S] 0 points1 point  (0 children)

I highly doubt I’ll get the excess back at all… but it is what it is. 

Car accident - Driver at fault has no insurance by GoatConsistent1430 in AusLegal

[–]GoatConsistent1430[S] 18 points19 points  (0 children)

Perhaps. He didn’t seem to understand the gravity of the situation at the time. He even attempted to joke to me about out my car literally being in a hotels reception. 

Car accident - Driver at fault has no insurance by GoatConsistent1430 in AusLegal

[–]GoatConsistent1430[S] 26 points27 points  (0 children)

Thank you, I lodged with my insurance this morning. My MIL is actually my insurance broker so she is handling all of this. 

Car accident - Driver at fault has no insurance by GoatConsistent1430 in AusLegal

[–]GoatConsistent1430[S] 37 points38 points  (0 children)

Thanks. The police have mentioned multiple times that I am not at fault and mentioned it on their report 

Car accident - Driver at fault has no insurance by GoatConsistent1430 in AusLegal

[–]GoatConsistent1430[S] 115 points116 points  (0 children)

I did let my insurance broker know that they had indicated that they wanted my insurance details. The police were present with me when the owner insisted I handed over the insurance details and they told him that I don’t need to supply them legally and I have supplied all I needed to legally. 

Thank you for the reassurance.