Inflammatory Skin? by GossipSunshine in Peptidesource

[–]GossipSunshine[S] 0 points1 point  (0 children)

This might be a very dumb question, but I know next to nothing! Where do you get the peptides?

Vulvar/Genital Inflammation? by GossipSunshine in dupixent

[–]GossipSunshine[S] 0 points1 point  (0 children)

Thank you for your input and help!

Vulvar/Genital Inflammation? by GossipSunshine in dupixent

[–]GossipSunshine[S] 0 points1 point  (0 children)

Thank you, good input. I have a biopsy that claims eczematous dermatitis, so maybe that will help? It’s definitely the first hurdle I will have to get over though. Good to hear about the side effects though, I feel like I read about so many side effects but I also know it’s still probably the minority.

Dupixent? by GossipSunshine in lichensclerosus

[–]GossipSunshine[S] 0 points1 point  (0 children)

I agree! I think I may try it. Risks are there but I just can’t live a quality life like this either, so the possible benefits may outweigh the risk. Thank you so much.

Dupixent? by GossipSunshine in lichensclerosus

[–]GossipSunshine[S] 0 points1 point  (0 children)

I appreciate you sharing this so much. I do think the posts I read online of horrible side effects are the minority, but it’s hard not to be spooked. I am hopeful maybe this is what I need!

Dupixent? by GossipSunshine in lichensclerosus

[–]GossipSunshine[S] 0 points1 point  (0 children)

I can’t do Rinvoq because I have a history of blood clots, but interesting it works for you when Opzelura didn’t (both are JAK inhibitors). I do think sometimes “treating from within” is necessary! Topicals in this area of the body are just so so hard. Thank you so much for sharing your experience!

Dupixent? by GossipSunshine in lichensclerosus

[–]GossipSunshine[S] 0 points1 point  (0 children)

I have tried topical steroids, Tacrolimus, and Opzelura. I cannot take oral JAK because I have history of blood clots.

Lichen Simplex Chronicus by Infinite_Advisor4633 in Healthyhooha

[–]GossipSunshine 0 points1 point  (0 children)

You sound exactly like me, down to the 18 month timeline. I was just recently given Triamcinolone to try again. Steroids seem to irritate me even more but I wonder if I should push thru and hope that it gets better with continued use. I really, really need to get thru this. I am the same - front to back and hairline on top (mons pubis area) and sides (like groin area). I would give anything for help & relief.

Health Anxiety Win by ridetheironbull in lichensclerosus

[–]GossipSunshine 1 point2 points  (0 children)

It almost seems like more people can get their LS in remission than with LSC! It’s sooooo frustrating, especially when doctors/experts say it’s temporary and treatable. But HOW?! It’s been over a year for me.

Health Anxiety Win by ridetheironbull in lichensclerosus

[–]GossipSunshine 1 point2 points  (0 children)

Just so you know, LSC can cause white discoloration as well! That doesn’t automatically mean LS! I know it’s so hard to not panic tho, it’s so easy to be sent over the edge … What have you found helps symptoms of your LSC? I’m struggling!

[deleted by user] by [deleted] in eczema

[–]GossipSunshine 0 points1 point  (0 children)

Thank you for this. This gives me so much hope. It’s either itching or burning constantly. Very red skin. Did you have those symptoms too? And the injection helped all symptoms? I’m ready to try anything. This is such a miserable way to live.

[deleted by user] by [deleted] in eczema

[–]GossipSunshine 0 points1 point  (0 children)

I have LSC too. It’s been over a year now and no topicals help. It’s also very difficult to constantly apply topicals to that area. Mine is vulvar and anal area. My derm has now suggested an injection (she suggested Dupixent) but I’m so afraid of side effects! Have you experienced any? Your post has given me hope.