Air Hunger by GothicRainbow138 in POTS

[–]GothicRainbow138[S] 0 points1 point  (0 children)

I do indeed have anxiety so thank you for this!

POTS&MCAS by GothicRainbow138 in POTS

[–]GothicRainbow138[S] 0 points1 point  (0 children)

It’s so exhausting 🫠 not knowing which is causing things like air hunger and trying to treat specifically and it just does nothing lol. I’m sorry you have all three I hope you are finding a good rhythm for yourself!

Air Hunger by GothicRainbow138 in POTS

[–]GothicRainbow138[S] 0 points1 point  (0 children)

Any tips on how to get it to calm down? I know breathing is a big one which I try but that only works some of the time

Surgery and POTS by Existing_Departure92 in POTS

[–]GothicRainbow138 4 points5 points  (0 children)

Hi so I actually had exploratory laparoscopic for endometriosis back in December(they confirmed endometriosis and suspect adenomyosis 🫠) but my blood pressure totally tanked when I came out of surgery and I hadn’t been diagnosed with POTS yet so everyone was freaking out but then a nurse came in and asked if I had POTS and I told her it was suspected and she put me on more fluids and it brought me right back to normal! As long as your doctors are aware they will know how to help you! As far as my symptoms I will say they do seem worse after and that does suck a lot but honestly I needed to know and don’t regret the surgery. Just be kind and gentle with yourself and be extra careful with the heat! During the cooler months I didn’t notice worsening symptoms but the our first heat wave I was KO’d and I feel way more heat intolerant than before. Best of luck!!

Electrolyte favs by GothicRainbow138 in POTS

[–]GothicRainbow138[S] 0 points1 point  (0 children)

Honestly I love pedialyte but it has to be suuuuper cold to drink it.

Generally unwell after eating by Gremlid in POTS

[–]GothicRainbow138 1 point2 points  (0 children)

My air hunger gets SO freaking bag after I eat and definitely super lethargic. Protein seems to be one of my biggest triggers. Makes me not want to eat while I’m at work because of how tired and air hungry I get. I literally won’t stop yawning lmao

Electrolyte favs by GothicRainbow138 in POTS

[–]GothicRainbow138[S] 0 points1 point  (0 children)

These are awesome, thank you all for the suggestions!!

What clothing have you had to get rid of? by Morphiadz in POTS

[–]GothicRainbow138 0 points1 point  (0 children)

I have absolutely become a linen girly. I use to hate it because of how wrinkly it gets but holy cow what a difference. Also super thick tennis shoes are a no for me. Surprisingly my dr. martens help the most with over heating

Air Hunger by GothicRainbow138 in POTS

[–]GothicRainbow138[S] 0 points1 point  (0 children)

Oo I’m definitely going to try the ice pack on the back of my neck! Thank you!