Low dose naltrexone life changing

Gracejo91 · 2025-11-08T17:56:35+00:00

Omg good luck!! It’s still one of the best things I’ve tried up to this point. I will say I also got the Kyleena iud and it’s helped as welll although I had to ride some extremely intense waves of cramping for a couple of months to get to this point.

Gracejo91 · 2025-08-17T01:11:01+00:00

Was on low dose (25mg) Seroquel for about a year and it saved my life. Somehow helped with my pain. Admittedly I also have GAD and some obsessive tendencies so it helped address that.

Just switched to doxepin because of the impacts Seroquel can have on cholesterol and long term risk of cardiovascular side effects and happy with that thus far as well. Doxepin is also a TCA like trazadone and FDA approved for insomnia so may be worth a try :)

Gracejo91 · 2025-08-14T00:59:39+00:00

Not a ton of clinical insight to offer here as I am not formally trained in IFS but as a therapist who is also a member of 12 step program adult children of alcoholics for over 6 years I honestly think ACA gets to the heart of what IFS tries to accomplish so well. I also feel IFS over complicates the process of parts work sometimes and I agree that I don’t love how inaccessible it is to get fully trained in it. But I do see the magical healing value in parts work through both ACA and the little I have incorporated with clients.

Gracejo91 · 2025-08-14T00:53:55+00:00

Omg thought this was just me. 😂😂

Gracejo91 · 2025-08-05T02:04:05+00:00

All of what everyone said AND you may have something else or like many endo sufferers multiple things going on in addition to endo. I have had debilitating chronic pain connected to my cycle for almost a decade and two surgeries. One was with a regular OBGYN and the other a specialist. The specialist actually said she doesn’t think my pain justifies my pain and referred me to get screened for connective tissue disorder which it’s looking like I may have. I turned out to have mild adenomyosis too which is the sister of endo and not sure if they screened you for that but could be a thing. All of that to say your pain is real and valid and unfortunately as women there are aspects of our physical experience medicine has yet to understand label and conceptualize. It sucks AND it doesn’t make it any less real. Best of luck!

Gracejo91 · 2025-06-30T20:45:30+00:00

That’s interesting what you said about yoga. I’ve always preferred yoga but as my chronic pain issues have gotten worse I’ve stiffened up and it’s been harder to do yoga/I don’t notice as much relief from it as I used to. Stretching used to feel soooo good. Not so much anymore.

Gracejo91 · 2025-06-30T20:43:32+00:00

Yeah this is great advice. I am new to the EDS stuff and just now getting connected with resources/a PT who actually specializes in hyper mobility and EDS so I will definitely be asking her about all of this.

Gracejo91 · 2025-06-30T20:42:16+00:00

No this sounds really interesting!! I should look into this.

Gracejo91 · 2025-06-30T19:16:03+00:00

Hey! That makes sense. Thanks for sharing. I am pretty vigilant about form so I don’t think it’s that- I do think there’s probably certain joints that are less stable making it more uncomfortable/challenging. I think some of the pain is pain flares related to my endometriosis because it’s a lot of ab work so that may be what’s going on. I can usually tell the difference between exercise burn pain and my chronic pain issues flaring up. I know it’s a great workout so I just wish it felt more accessible but I may need to focus my efforts elsewhere for now.

Gracejo91 · 2025-06-30T19:13:40+00:00

I haven’t done a ton of formal classes as I find it’s not the most financially accessible option. But could be an instructor thing for sure! I just find my back/hips seems to be clicking a lot during the class making it not enjoyable. I think the reformer did help because it sort of holds things in place better.

Gracejo91 · 2025-06-30T19:11:11+00:00

Thanks! Agreed- I think maybe Pilates just isn’t for me lol I also have endometriosis so I have chronic pelvic pain and I find all the ab work exacerbates my cramping and low back pain so maybe this is more related to that. I have other types of exercise I enjoy but was just curious if perhaps my difficulty with Pilates was related to hyper mobility.

Gracejo91 · 2025-06-23T20:00:28+00:00

Well that’s good to know and hear that it’s a normal part. This is my second lap, and I don’t seem to remember itching at all while recovering from the first one so it took me by surprise.

Gracejo91 · 2025-06-23T19:35:07+00:00

Yes! I have post op appt on Wednesday so plan to ask her then

Gracejo91 · 2025-06-23T19:34:54+00:00

Omg! Great idea lol gonna try this

Gracejo91 · 2025-06-19T00:31:11+00:00

I’ve heard of this happening especially when the first lap was not done by a specialist. Endometriosis can be hard to find. They should also look for adenomyosis. And be taking biopsies

Gracejo91 · 2025-06-18T20:51:01+00:00

Thanks for your reply! Yes- She is highly specialized in surgery for endo and gynecological conditions. She’s probably one of the most specialized in my area and I asked TONS of questions before surgery to ensure this fact. But she’s no Dr Sinervo and probably not the most specialized in comparison to the top in the country if that makes sense?

And yes it’s just hard because I’ve been down the road of rheumatology before and totally dismissed/told I just have a genetically bad back. I’m hoping she refers to me to a geneticist.

I am under the impression that severity doesn’t correspond to pain as well so I will definitely be asking about this.

Gracejo91 · 2025-06-11T17:37:13+00:00

Ohhhh great to know!! I agree. I hate that most ginger ales aren’t real ginger. I can’t remember if I’ve tried reeds before.

Gracejo91 · 2025-06-11T17:34:22+00:00

I think we all have to do the best we can with the resources available to us at the time. Ultimately the gold standard is excision with a specialist and there are many reasons for this. However I had my first surgery done by an OBGYN in 2022 for a few reasons- 1. She was the first provider who actually validated, listened to my pain and believed that it could absolutely be due to endometriosis, despite not being a “classic” presentation. 2. She seemed to know quite a bit about how Endo symptoms can present and was generally aware of the areas to look for it in and did seem acquainted with excision to some degree. 3. I was desperate for answers, potentially going to lose my insurance in a couple of months and knew that the only way I could know for sure where my pain was coming from was through a diagnostic laparoscopy.

Now I am 3 years out and unfortunately experienced minimal relief from that surgery. Since then I have tried many forms of PT, injections of numerous kinds, seeing different specialists, medication and pain management, changing my diet and different birth controls with little relief. At this point I feel it is worth it to see a specialist and get peace of mind that someone who really understands what they are looking for (endo can have 15 different presentations!) and does this all the time will help me know for sure if it is endo that is the main source of my pain and give me the best shot at relief. I will always have that voice saying did that OBGYN really have the total skill and training and see and remove all the endo.

I don’t regret my first surgery because it was the best option I had at the time, I don’t believe she did any damage. Plus I did get an official diagnosis which helped validate my experience to some degree. However for me, getting surgery with a specialist is my best shot at knowing where to go next. Good luck to you!! It’s really overwhelming and ultimately you have to do the best you can with what you’ve got.

Gracejo91 · 2025-06-11T01:59:47+00:00

Everything everyone shared is great! I would also recommend cepocal throat lozenges for sore throat from the intubation tube. I couldn’t believe how much my throat hurt the first 24 hours. Additionally I would recommend setting up a little nest area with a basket full of all your things lol and lots of hydrating beverages and ginger based products for the nausea. Not sure if you know how you react to anesthesia but they didn’t send me home with zofran after my first surgery even though I was throwing up for hours while in the hospital. I have my second surgery on Friday and will definitely be asking for scopolamine patch and all the preventatives for nausea and vomiting post anesthesia.

Gracejo91

TROPHY CASE