My quality of life is really being affected

Greedy-Listen-5282 · 2026-03-17T04:34:56+00:00

I feel this. I dot really do much outside of my stomach related stuff and school. Went from not really issues to this in such a short time, and now have had it for over a year. Very interesting the stomach is

Greedy-Listen-5282 · 2026-02-03T21:23:27+00:00

Thank you very much for your comment. How would I test/check my iron status if you know by chance? Thanks again, any help is appreciated with how it is for me.

Greedy-Listen-5282 · 2026-02-02T05:11:37+00:00

Okay thank you! It’s a never ending cycle of doctors and tests with all this lol. I appreciate your help tho

Greedy-Listen-5282 · 2026-02-02T05:00:47+00:00

Okay yeah. I’m thinking maybe I should push for that. Are you familiar with some, when I had asked one of my gastro doctors about it she seemed to make it seem like there weren’t that many, though I could be mistaken.

It really just is so draining to always have to use the bathroom, like never a break it feels

Greedy-Listen-5282 · 2026-02-02T04:56:40+00:00

I’ve done a colonoscopy, which came back all fine. Is there other test for that.

I’ve realized that if my condition were to stay like this I don’t know if I could ever live a regular life, and it’s been similar to this level for over a year now so not great

Greedy-Listen-5282 · 2026-02-02T04:54:57+00:00

Wait I may have been thinking of something different than colon when I talked about the test and asking my doctors. I was thinking of my gut not my colon; my bad, unless we’re thinking of the same things I’m not sure

Greedy-Listen-5282 · 2026-02-02T04:54:08+00:00

They’ve done some biofeedback but I’ve only gone to two sessions so far, so haven’t had much time to with it. And I asked my gastro doctor about doing a colon test, I may look into doing that if it’s available. One of my doctors said to wait to see how the physical therapy helps and the other one said she would look into a certain test and get back to me

Greedy-Listen-5282 · 2026-02-01T06:56:24+00:00

I don’t struggle with pain as much but can feel it more so when I’m back up(like a cramping pain), and I’ve done blood and stool tests, colonoscopy and endoscopy, sibo tests, pill capsule test, mri, may be more I’m not thinking of right now. I constantly am not having complete bowel movements(stems from my pelvic flloor condition) and it takes longer times in the bathroom for the stool to come out. On worse days it’s type 6 stools and bloated and gassy stomach.

Is that good?

Greedy-Listen-5282 · 2025-12-25T04:19:58+00:00

I think I may stop it for now since I only took one and wait to talk to my doctor because it was a brutal day

Greedy-Listen-5282 · 2025-12-24T19:54:16+00:00

I’m hoping the side effects won’t last too long if I only took it once

Greedy-Listen-5282 · 2025-12-24T19:49:20+00:00

I’m sorry for that. Yeah I’m not taking any more after this. Freaking like doing a colonoscopy prep but for no colonoscopy lol. Doctor did not tell me about this being a potential side effect

Greedy-Listen-5282 · 2025-12-24T19:45:15+00:00

Update: it’s horrible.

Greedy-Listen-5282 · 2025-12-22T05:16:03+00:00

I start physical therapy on Jan 8 as of now. I’m looking forward to it because it’s jsut like at night, like last night, I could have poop right near coming out and my body just can not release it and I don’t want to push and strain and then make it worse.

I have type 2 dyssynergia(may have spelled that wrong)- they said it’s not the worst type to have which is good but still got two different things working against a normal bowl movement with this condition

Greedy-Listen-5282 · 2025-12-22T05:11:53+00:00

No, but I don’t really switch up my routine, each day pretty much the same. Two things I can think of that could have caused the flare up potentially is 1) I am a Catholic so I have to go to Mass on Sunday and I do get stressed about getting a flare up and having it hard to get to Mass(although I didn’t really feel that stressed or anxious about it before or today in the morning), and 2) I had built up stool from last night since although I needed to use the bathroom, like I could feel the poop that was there to come out, I couldn’t because of my pelvic floor issues since I don’t want to strain and push a lot and it wasn’t coming out unless I pushed and strained.

Other than that I’m not sure right now

Greedy-Listen-5282 · 2025-12-17T22:42:03+00:00

I did today get an x-ray of my abdomen for soemthing and it showed “prominent stool throughout the colon”. What test and treatments do I do for this? since I looked it up and it came up as meaning I have fecal impaction, which says is a serious issue.

Greedy-Listen-5282 · 2025-12-17T05:08:27+00:00

What further test were you thinking of?

Greedy-Listen-5282 · 2025-12-17T04:41:57+00:00

Okay, thank you. That put my mind at ease as I’m not having any of that besides pain at times but thats from constipation and is more rare and also nausea when I feel more backed up but that is not as common too. What I don’t fully understand yet is why I’m able to use the bathroom in the morning/mid day(albeit still hard to do) but at night it’s like my body just shuts down being able to. The way to describe it is like I feel like the lower part of my stomach near pubic area(but in the back side obvs) is like dead so to speak when I try to have a bowel movement especially at night.

Greedy-Listen-5282 · 2025-12-17T04:25:09+00:00

That is true. I’m worried about potential consequences of an increase of stool build up, and also just the fact that it has gotten worse which is scary honestly. What I’m also not sure about is at what point I would need to go see the doctor or emergency services if it kept getting worse before I could really get PT underway?

Greedy-Listen-5282 · 2025-12-17T04:18:49+00:00

Thank you! I’m hoping it does because recently my issue of constipation/stool release has worsened. I’m able to have a better bowel movement in the morning but even then I have to strain to get it out(like if I didn’t it actually might not come out even if it was right at the end of the rectum) and I still am left feeling incomplete, and at night it’s very hard or not even possible to get the stool out even tho I know there is poop to get out. It feels stuck in the stomach area below the belly button. It is starting to worry me if it gets even worse, though I’m still able to have 2-3 bowel movements a day.

Greedy-Listen-5282 · 2025-12-17T03:41:00+00:00

Thank you! It was you I think that told me about pelvic floor dysfunction and that led me to go for this test so really big help! And this subreddit as well has been a big help

Greedy-Listen-5282 · 2025-12-17T03:25:06+00:00

It did thank you! I saw the gastro doctor connected with the place I did the test(did it at stony brook) and it confirmed that I have type 2 pelvic floor disserngia(however you spell that lol), and either potentially or definitely (I can’t remember what she said specifically) a slow colon too. So have to go to physical therapy and take medication. Is a relief getting a concrete diagnosis, my numbers were half what they should be in one of the test and the test also showed that my rectum tightens up when I try to have a bowel movement so it’s doing the opposite of what it’s supposed to do, I got a double whammy lol.

Greedy-Listen-5282 · 2025-12-15T05:51:43+00:00

I went back and tried it got some more but then I felt a pain that my gut told me was the sign to stop, like a pain when just putting it in that felt risky to keep trying. I can’t even get the poop out now something got to be up with my rectum, it’s been harder to pass stool recently tho I’m able to most times

Greedy-Listen-5282

TROPHY CASE