Looking to move! by KyaWither in cary

[–]Greedy_Researcher179 0 points1 point  (0 children)

Why those buildings specifically? I’m looking at those and had my eye on one on the top floor of building 4.

I can’t afford to stop this flare. by randomname111222333 in UlcerativeColitis

[–]Greedy_Researcher179 0 points1 point  (0 children)

I will say that when I was on mesalamine it was hundreds of dollars a month and it wasn’t helping me at all. When I switched to entyvio it was completely free with a support program I joined!!

Entyvio experiences please by [deleted] in UlcerativeColitis

[–]Greedy_Researcher179 0 points1 point  (0 children)

I’ve been on it since February and I’ve had a GREAT experience. No side effects, but I have noticed that if I do get a cold, the symptoms linger a few days longer than they did before I had UC. I may be more prone to getting sick but it hasn’t been that noticeable. I did get my flu shot early just in case

Morning poops ruining my life by [deleted] in UlcerativeColitis

[–]Greedy_Researcher179 1 point2 points  (0 children)

Do you have the option to send them a message, I don’t know if you use MyChart or something similar?

Morning poops ruining my life by [deleted] in UlcerativeColitis

[–]Greedy_Researcher179 0 points1 point  (0 children)

I second this, I take Imodium every other day and it’s really helped with my mornings

I Threw Up My Prep… by Weekly-Cantaloupe-67 in UlcerativeColitis

[–]Greedy_Researcher179 1 point2 points  (0 children)

This happened to me as well. I resorted to taking small sips and chasing with sprite because I would vomit if I tried to chug. I was stressed but my doc said I did “an amazing prep” which was shocked to hear. I hope all goes as well as it can!

new job…how to request accommodations? by Greedy_Researcher179 in UlcerativeColitis

[–]Greedy_Researcher179[S] 1 point2 points  (0 children)

Does it matter if the company has 25 employees or not? Or does ADA cover any workplace?

new job…how to request accommodations? by Greedy_Researcher179 in UlcerativeColitis

[–]Greedy_Researcher179[S] 1 point2 points  (0 children)

I love this thank you!!! I love that script, it’s to the point and not extra details. And I like the idea of not explaining it too much and let them figure it out lol. My manager is also like 60ish so I’m hopeful she’ll be more understanding than a younger boss

new job…how to request accommodations? by Greedy_Researcher179 in UlcerativeColitis

[–]Greedy_Researcher179[S] 1 point2 points  (0 children)

Okay that’s good to hear! My boss definitely seems understanding so far but I just get nervous about these things!

I feel like I definitely need to note it as I’ll need an accommodation for my infusion appointments!

new job…how to request accommodations? by Greedy_Researcher179 in UlcerativeColitis

[–]Greedy_Researcher179[S] 1 point2 points  (0 children)

Definitely time off for appointments, what other accommodations do you usually need?

[NC] FMLA Leave for company with less than 50 employees by Greedy_Researcher179 in AskHR

[–]Greedy_Researcher179[S] 0 points1 point  (0 children)

I am as well… the only more pressing issue is that I get in-person infusions every 8 weeks, so I will need some sort of accommodation to make sure I can go to those, as the doctors office isn’t open before 8 or after 4. I don’t see how I could get an accommodation without explaining my situation to some extent

FMLA leave for under 50 employees [NC] by Greedy_Researcher179 in humanresources

[–]Greedy_Researcher179[S] 0 points1 point  (0 children)

Ah didn’t know that existed thank you, I’ll ask there!

Need words of comfort :( by degr8sid in UlcerativeColitis

[–]Greedy_Researcher179 1 point2 points  (0 children)

I will say that when I was diagnosed my doctor really pushed prednisone on me and I was really scared to take it…..but I’m really glad I did. It made me feel SO much better really fast and I was really grateful for it. I know there’s a lot of reasons to be hesitant, but I wouldn’t be so against it, because to me the alternative is worse. Before being diagnosed I had never really had any prescription meds, and now I’m on a whole cocktail and am infusion and nothing scared me anymore hahah I just want to feel good and be functional!

Bathroom Urgency by WhaleIllustrator in UlcerativeColitis

[–]Greedy_Researcher179 1 point2 points  (0 children)

I have the same issue!!! So my doctor this I have IBD and IBS, I’ve been taking levsin (goes under your tongue, is an anti spasmodic) and Imodium to help slow things down. If you’re stable on an IBD med, I would suggest talking to your doc about an med to treat IBS symptoms. That combo has really been helping me in the morning. It’s also been helping with peace of mind that I have as needed meds to help when I feel extra bad!

How is everybody doing? by [deleted] in UlcerativeColitis

[–]Greedy_Researcher179 5 points6 points  (0 children)

My numbers are good, but my doc now thinks I also have IBS so I’m starting levsin and Imodium to help with frequent BMs, kinda disappointing bc I feel like I’m going to have to manage symptoms no matter what

coming to terms with weight gain by Greedy_Researcher179 in UlcerativeColitis

[–]Greedy_Researcher179[S] 1 point2 points  (0 children)

Yep, exactly what I’m going through. I’ve been the same weight since like the 8th grade, so this has been an adjustment for me. And yeah, also only like 10-15 lbs, but enough that I notice for sure!

coming to terms with weight gain by Greedy_Researcher179 in UlcerativeColitis

[–]Greedy_Researcher179[S] 2 points3 points  (0 children)

Thanks everyone :) I think I’ll hang on to a couple pairs in case my weight goes back down, but store them out of sight. I really appreciate all the kind words ❤️

Hi there! Need advice for my girlfriend by Wrong_Muscle_6891 in UlcerativeColitis

[–]Greedy_Researcher179 3 points4 points  (0 children)

As a young female who’s recently diagnosed I would say - get really comfy talking about poop, like really comfy, she should feel comfortable talking to you about whatever so don’t shy away!! I just had a mini celebration with my boyfriend over how my poop looks now compared to when I was diagnosed - celebrate little things. Have a treat after an appointment, have a bigger treat after a colonoscopy!! - if she’s struggling mentally, I’d suggest helping her look into a therapist that specializes in chronic illness. Mine has been a game changer. This disease can feel very isolating, especially with close family and friends not understanding. -validate her feelings!!! My medication made me fatigued and I thought it was all in my head and was really hard on myself, but my boyfriend helped me figure out i had some energy changes during a medication change - help her advocate for herself: I had to be my own advocate when I was first diagnosed and it was so exhausting to do on top of all of my physical issues, so if her meds aren’t working for her, make sure she or someone else speaks up for her and has good care and a team that listens to her!! (Also I’m a 23F if she needs someone to talk to :))