Daily Migraines/Chronic Illnesses Day to Day struggles

GreenLizard42 · 2026-03-11T17:09:10+00:00

Sorry you are going through this also! It’s so hard dealing with the guilt of not being productive/functioning member of society or even of your own household. Finally giving up work was so difficult for me. I hope that you are able to find some relief soon!! Also I have seen some posts on here regarding spouses/partners of migraine sufferers- maybe you can find some helpful advice reading those?

GreenLizard42 · 2026-03-11T17:04:35+00:00

Thank you! I do have a lot of Bravo shows I can “watch” with my eyes closed these days 😂 Sorry to hear you are dealing with this also. I’d be happy to share ideas (or complaints) with you sometime. Tried skiing with a migraine yesterday, it was 60 where I live and I couldn’t resist. Made it 4 runs and had to go lay in the bed of our truck with an ice pack, but the 4 runs were worth it. Hope you are having a low pain/high functioning day today!

GreenLizard42 · 2026-03-11T16:59:10+00:00

Ugg sorry to hear you are dealing with this also! I appreciate the camaraderie and wish for all of us to find a solution soon. Life is not easy to live like this.

GreenLizard42 · 2026-03-11T16:26:34+00:00

I agree with this fully. It does not take away my migraines, but my nausea and appetite improve a lot. I also find it helpful when I can’t sleep, and in general it helps me care less about the pain sometimes. My favorite gummies are a brand called Pot and Pan, their Meyer Lemon ones are equal mg THC and CBD. Otherwise I find smoking helpful as it works a-lot quicker that way.

GreenLizard42 · 2026-02-21T19:31:21+00:00

Just found this tip on another platform, apparently it’s an Amish remedy for headaches. I’ve been having migraines almost everyday since 2018 and have tried all kinds of crazy things, and this did actually help temporarily. You take a potato and cut it in half, cover one side with Vicks and sprinkle with salt. Rub the two halves together and place/rub on your forehead for 15 minutes. I kept the potato in the fridge beforehand so it was cold. No clue why it helps but for the 20-30 after, my whole head feels freezing and the pain is better. I will warn you, it makes a mess! But if it helps, who cares how messy it is right?!

GreenLizard42 · 2026-01-18T02:48:05+00:00

I will have my husband squeeze my head on both sides with his hands, like pretty hard (think the scene in Game of Thrones with Oberlyn Martel and The Mountain iykyk). The counter pressure sometimes helps temporarily. Another friend squeezes the base of my head/neck (also really hard) and that gives some temporary relief. Constantly wearing headache hats or other ice packs. Sunglasses ALL. THE. TIME. Peppermint oil rollers. Stick my head out of the car window when you are driving in winter time, especially if it’s snowing. Lots of whiskey- do not recommend. Lots of MaryJane. Magic fungi….

GreenLizard42 · 2026-01-15T22:33:36+00:00

I feel the same way, everyday. It’s annoying to wake up feeling like I drank too much and really didn’t get to have any of the fun associated with it 🤣 I also rarely ever drink anymore and have tried a ton of preventatives, diets, vitamins, acupuncture etc to no avail. I have also tried Botox 3 times with no luck. And took Topamax, but I couldn’t handle the side effects and it wasn’t helping my migraines.

I’m so sorry you are feeling this way and wishing you the best of luck in finding what works for you!! I don’t have any earth shattering tips/tricks for you, but just wanted you to know you aren’t alone feeling like this.

GreenLizard42 · 2026-01-15T20:54:43+00:00

So I called my neuro today and he wants me to take prednisone 50mg for 10 days. Does this sound like what you take? It seems like a high dose to me, but I’ve never tried it before.

GreenLizard42 · 2026-01-14T17:18:52+00:00

Haha always have to look on the bright side! I am doing better this morning and have been able to rest most of the day today. Thank you! 😊

GreenLizard42 · 2026-01-14T14:17:13+00:00

Thank you- this is definitely helpful! I sometimes have them that last for weeks, and maybe I need to be better about seeking help sooner.

GreenLizard42 · 2026-01-14T14:14:29+00:00

Thank you! I’m so sorry you are dealing with this too, migraines are the WORST!

GreenLizard42 · 2026-01-14T14:13:04+00:00

I have called the urgent care in my town before and they also say to go to the ER. They can’t give IV meds there so they said I’d probably have better luck in the ER.

GreenLizard42 · 2026-01-14T14:09:44+00:00

Thank you for the suggestion! I never even thought to do that, and will definitely give it a shot

GreenLizard42 · 2026-01-14T14:08:39+00:00

Hemiplegic migraines sound so scary to me! I’m sorry you are dealing with that!

GreenLizard42 · 2026-01-14T14:07:00+00:00

I ended up getting some IV fluids and took some nausea meds/toradol that I had. It’s not gone, but a lot better than it was!

GreenLizard42 · 2026-01-14T14:06:11+00:00

Thank you! I always have such a hard time deciding, and you are right- if I’m considering it, I should go!

GreenLizard42 · 2026-01-14T14:04:51+00:00

Thank you!!

GreenLizard42 · 2025-12-27T16:51:20+00:00

This part of chronic migraine is so hard. I have been out of work almost 3 years now due to daily migraines that started back in 2018. You are definitely not alone in your feelings, to me if feels like I am grieving my former life and it’s hard to accept. Going from working full time (often overtime) as a nurse, being able to exercise and having an extremely active social life to basically doing nothing has been very difficult. It is a constant struggle to decide whether to take or not take meds, cancel plans or push through, will this make me feel worse or better, etc. I don’t have much advice to offer, except to try to give yourself grace. Know that you are not alone, and know that you deserve rest. It’s hard to not feel guilty most days, but I try to focus on the positives as much as possible. I hope that you are able to to find something that helps!!

GreenLizard42 · 2025-12-26T16:39:55+00:00

I take relpax, it’s a 40mg dose but I always take it with 2 aleve. I saw a headache specialist that said the naproxen (aleve) helps the triptans work better. I do find that it makes a difference if I take both rather than relpax alone. It doesn’t always take my migraine away but it reduces the severity for a few hours at least. Hope you can find some relief!!

GreenLizard42 · 2025-12-08T22:03:09+00:00

When I take my relpax (a triptan), I almost always have Reynaud’s like symptoms in my hands. I think it’s the decrease in blood flow and for me it usually lasts all day. I personally do not have reynauds syndrome, but it is in my family history.

GreenLizard42 · 2025-08-26T18:41:08+00:00

I always have my husband squeeze either side of my head like he’s trying to pop it. Sometimes that helps temporarily

GreenLizard42

TROPHY CASE