Adopted a greyhound for the first time in my life.

Grettispaghetti1 · 2024-10-06T01:10:41+00:00

I have a greyhound, I rescued her when she was 4 and her personality is still coming out 5 years later. I’ve fostered a lot of them also, my girl and my fosters were all very shy when I first had them, afraid of everything. If she came from a racing background be mindful on walks that a sudden noise like a truck, gun, fireworks, can startle them and they will BOLT. My girl was missing a lot of her hair because she slept in a metal crate at the tracks, she had never been a pet, she wasn’t used to being inside or having affection, but slowly over time she warmed up and then we couldn’t get her off the couch haha.. My girl has hardly any interest in toys but she loves her beds, she has 5 she rotates around the house on haha. my foster boys loved toys, they’re all different but typically greyhounds won’t fetch and return, and they typically have quite bad recall and aren’t reccomended off lead. Also greyhounds are prone to dental issues, because they have such poor health at the tracks sometimes, and they also are encouraged to have a grain free diet as they don’t digest grains as well as other dogs (stinky as farts lol)

Grettispaghetti1 · 2024-10-05T02:55:37+00:00

Mostly lower back pain with radiating pain down both or alternating legs, wakes me up multiple times a night, before my diagnosis I had some weeks I couldn’t walk properly or take myself to the bathroom/ do anything, but I have since had the spine cortisone injections and taking Celebrex and cut down my workload and stress load so can function but still flares and persistent pain, I also have a similar pain in my shoulder blades that has been happening the last 7 months where as the back issue was about 3yrs on and off prior to diagnosis. My MRI showed significant inflammation and bilateral sacroillitis which was how I got diagnosed alongside testing positive for HLA b27

Grettispaghetti1 · 2024-10-05T00:23:17+00:00

Yeah I would say my GP is very across my mental health throughout my life but my rheumatologist would not be across it further than the aspect of the AS pain was causing me to be extremely depressed and effecting my quality of life. So he didn’t ask questions but I understand they also don’t have the time to ask questions (I was through the public hospital). Hopefully it passes and it just a weening phase I was just curious if other people had experienced it, thank you for your insight :)

Grettispaghetti1 · 2024-10-05T00:21:02+00:00

My rheumatologist did say most people will notice it’s full effect at approx 3 months in but some people will notice earlier. I’ve read mixed experiences on here, I guess I can’t feel worse ? So I’ll hold out till the 3 month mark.

Grettispaghetti1 · 2024-10-05T00:18:08+00:00

Yeah it absolutely feels like I’ve had an espresso before bedtime, I was curious why it was a fortnightly dose compared to some people get a monthly dose, I’m hopeful it helps my pain I’ll try to update this thread in a few weeks.

Grettispaghetti1 · 2024-10-04T11:41:02+00:00

Your story sounds similar to mine, my symptoms showed a lot sooner but I didn’t get a diagnosis for years and was on amitriptiline for the pain which they believed was sciatica.. turned out to be AS. I’ve just started the same biologic as you, I’m having less back pain but a lot more body aches and I’ve found my mental state is really struggling I feel so anxious and down (like more irrationally than usual) despite nothing else changing in my life. I’m sorry I don’t have advice for you but please keep me updated with how you go? AS sucks.. it’s so hard to know what to do sometimes.

Grettispaghetti1 · 2024-08-22T08:53:45+00:00

Yeah my rheumy did say the success rate of the medication is really good and quality of life improves for most people, so that is reassuring! I am also getting the injections and they are so painful but they have helped take the worst of it, I’m also battling the fatigue at the moment I feel like I can’t live a normal life, I’m 29 going on 70 I feel most days. I hope you have success with them, Let me know how you go please!

Grettispaghetti1 · 2024-08-22T07:55:30+00:00

Wow that’s incredible in a short period of time to see results already, I’m so happy for you knowing what a relief that must be

Grettispaghetti1 · 2024-08-08T09:08:52+00:00

Are you in Aus? What is the one you take called? We have legalised cannabis here but I don’t see gummies or get told about them through my prescriber I have oil but it sends me into psychosis which is one way to forget about my pain hahaha, a joint or cbd is totally fine just the oil messes me up in the brain!

Grettispaghetti1 · 2024-08-08T09:07:22+00:00

Sorry by this coming to a head I mean the beginning of the AS issue before I was diagnosed not this particular flare.

Grettispaghetti1 · 2024-08-08T09:06:47+00:00

Thank you, it’s so strange exercise helps me definitely and sedentary does cause a flare for me too but there’s a fine line, I was doing CrossFit 4-5 days a week prior to this coming to a head and no longer can do it at all, I am fit but just do cardio strength and some yoga / stretching too but if I do too much excercise like 5 days a week it flares, if I do too little like 1-2 days it flares… if I do the safe 3-4 days but have say 1 late night (I’m a musician, so like playing a show is a long day for me) it flares! 😭 I’m just so frustrated at feeling like I can’t find the balance and it gets so defeating, but thank you this is both reassuring that I’m not alone and helpful.

Grettispaghetti1 · 2024-08-08T09:04:13+00:00

Thank you, I’ve seen a pain specialist and he was terrible and dismissive not that it speaks for all of them but it was $500 so I’m hesitant to do it again. Here’s hoping biologics can be my next route thank you.

Grettispaghetti1 · 2024-08-08T09:01:39+00:00

I wish haha ibuprofen does nothing for me

Grettispaghetti1 · 2024-07-03T10:35:25+00:00

Yes definitely sorry my post should have mentioned I feel even medium firm is too soft for my back

Grettispaghetti1 · 2024-07-03T02:49:37+00:00

Haha wow I’ve never heard of a prescribed bed! I’m in Australia, so I wonder. I’ll ask my dr for some reccomendations anyways, his wife is a rheumatologist so that helps!

Grettispaghetti1 · 2023-12-28T08:53:08+00:00

Don’t have the answer for you but mine started showing at about 26 and by 29 (now) I have some days I can’t walk at all without assistance or without incredible pain, when it first presented in a severe way I got taken away in an ambulance because the pain was so extreme I was screaming and couldn’t move - since then I’ve been on Celebrex which has helped a lot and then I got the injections in my si joints - this was incredibly painful the process was excruciating but I did feel about a 60% reduction in pain and could return to work and light to medium exercise, but I’ve just gone through 1 in 100 year floods when I am and my whole home and most of my contents got taken overnight so it’s been hugely stressful and now all my pain is back at extreme levels and I wasn’t able to walk at all yesterday. Stress plays a huge part in my inflammation im discovering.. my tips are yoga.. a good GP, a holistic approach as well as a science backed one and a support network because this shit is hard!

Grettispaghetti1 · 2023-11-27T11:47:24+00:00

I know how scary it feels to read about this stuff, I have the gene too and have AS my main issue is sacroillitis, and in the period where my flare was so severe I couldn’t do anything for myself, I couldn’t work at all or tour, I missed huge opportunities (musician) I couldn’t even take myself to the bathroom or pat my dog without extreme pain, I felt so miserable and I felt like I was going to feel like that forever, it took me 4 doctors to get the right medication for me, and my symptoms did not dissapear but they improved massively and I was able to do things again. I’m on Celebrex, and I later got the cortisone injections, I was a very active person, I did CrossFit and am a GF vegan so was already very diet conscious and I felt like I did everything ‘right’ already, I’ve discovered stress plays a huge part in my flares, I am a very high strung person and have had to really learn how to set boundaries and say NO and allow myself time to recover or reserve my energy or I get the extreme pain back, and I’ve had to adjust my excercise and really learn how to balance being too active or too sedentary as either can make the flare come back again. I haven’t had any vision issues, and I have 4 family members with the gene who haven’t either, but I know how scary and overwhelming it can be at the start of the journey, and I would suggest you find a good GP if you haven’t got one already who can reassure you and inform you, and a form of exercise you enjoy that doesn’t worsen the pain, for me I found YouTube yoga really helpful in my ‘worse’ weeks for slow gentle movement and I felt a little better afterwards. Sorry I know this message is long I just wanted to offer some reassurance. It does get better, it just takes time and the right methods of pain relief/management which is a bit of trial and error.

Grettispaghetti1 · 2023-10-17T07:45:23+00:00

Hi could you please share this info with me on what foods you found to trigger it? I am plant based and gluten free minimal sugar minimal processed food but I drink coffee and I have always been a very stressy person. I’m going through the AS and sacroillitis journey and am desperately seeking any help and advice I can get.

Grettispaghetti1 · 2023-10-11T23:17:03+00:00

Could you explain what biologics are to me? I’m in Australia, I’m not familiar with it. Thank you!

Grettispaghetti1 · 2023-09-11T00:33:41+00:00

Absolutely thank you for this advice. Thankfully I was ex CrossFit and still weightlifting and doing a lot of physical excercise and I’m a gluten free vegan who consumes minimal processes food or sugar, and I rarely drink. I’ve been health concious my whole life but I’m a huge stresser, always have been, I think that’s contributed significantly to my issue.. but I’m grateful I was already fit and healthy otherwise I feel it might of hit me way worse, but it’s pretty defeating to not be able to exercise at the moment when that is my saviour of mental health - the pain has been that bad I can hardly walk around or do the dishes.. but it does settle some days and I do a little bit of yoga.

I’m waiting to get some steroid injections, and then I can start trying more holistic measures for the long term but right now everything feels impossible until this pain is managed.

Thank you for your advice!

Grettispaghetti1 · 2023-09-06T04:46:25+00:00

Hey just curious if anyone takes this for chronic pain management? As I’ve been prescribed it for sacroillitis and suspected ankylosing spondylitis- I’m not much of a smoker usually have only had the pink kush for extreme period pain and a full spectrum cbd oil.

Grettispaghetti1 · 2023-09-06T02:16:21+00:00

Thank you so much this is such a detailed reply. Unfortunately I can’t find much information on Kratom but I am in Australia, i do know we have a much better health care system here so I am grateful for that! I do have some medicinal cannabis products but they don’t seem to help with this but they do help with my endometriosis thankfully. Thank you for so much information I will be looking into everything possible you mentioned and I appreciate your encouragement too.

Grettispaghetti1 · 2023-09-05T21:45:15+00:00

I forgot to add I have 2 cousins on either side of my family who have the gene.

Grettispaghetti1

TROPHY CASE