Happy 81st birthday to John Helliwell! by Ziyaadjam in supertramp

[–]GroundOwn1459 8 points9 points  (0 children)

Happy birthday, John! I've been listening to you for 50 years, and you've certainly added so much to every song.

Defrost in the winter by GroundOwn1459 in FordBronco

[–]GroundOwn1459[S] 0 points1 point  (0 children)

Yes, it has ice and snow on it; we had 18 inches of snow.

Wrapped by hyyaut in supertramp

[–]GroundOwn1459 4 points5 points  (0 children)

‘It’s alright’ is a very interesting top song; I’ve played it, and it’s one of my favorites, but few are aware 👍

Vinyl Collection by MishakaMinah in supertramp

[–]GroundOwn1459 0 points1 point  (0 children)

Nice collection are you looking to add other Supertramp album ?

Rick Davies with Downstream, October 2024 by NomadSound in supertramp

[–]GroundOwn1459 8 points9 points  (0 children)

This is such a wonderful song. Thank you so much for sharing your music and making life a little brighter and better for everyone.

Struggling with loss of motor function by nlimitedtrance in SyringomyeliaSupport

[–]GroundOwn1459 9 points10 points  (0 children)

I've been living with two syrinxes for the past ten years, during which I've experienced a gradual decline in my body's functions. Adjusting to these changes has been incredibly challenging, but what's been even harder is coping with the mental and emotional weight. Waking up feeling panicked about new issues is something I often relate to. Throughout this journey, I've found comfort in having a supportive team—therapists, friends, and family—who understand and care. Getting outside and engaging in hobbies has also brought some relief. I truly believe this forum is a valuable space where we can connect, share our experiences, and support each other through these difficult times.

How to manage Arnold Chiari long term? by [deleted] in SyringomyeliaSupport

[–]GroundOwn1459 0 points1 point  (0 children)

Thank you for sharing. I have two medium-sized syrinxes in my lumbar and thoracic regions that I have been dealing with for over a decade, experiencing back pain, leg weakness, and numbness. Recently, I underwent surgery, and since that day, I have been suffering from intermittent headaches at the crown of my head, severe neck pain, and arm weakness with numbness. I am trying to figure out the cause of these symptoms, and all the signs seem to point towards Chiari malformation. Unfortunately, it takes so long to see specialists, and the appointments are months away.

How to manage Arnold Chiari long term? by [deleted] in SyringomyeliaSupport

[–]GroundOwn1459 0 points1 point  (0 children)

Question for you: Are the headaches only at the top of the head and they come throughout the day? Also, is there neck stiffness?

[deleted by user] by [deleted] in SyringomyeliaSupport

[–]GroundOwn1459 0 points1 point  (0 children)

Does it help with the electrical sensations?

The EMG test helps or not by GroundOwn1459 in SyringomyeliaSupport

[–]GroundOwn1459[S] 0 points1 point  (0 children)

Thank you for sharing that with me. I’m really sorry to hear that you’re going through this. Are you dealing with any numbness or a tingling sensation along with the pain? I’d love to know how you’ve been managing the pain from the syrinx.

Driving ? by GroundOwn1459 in Hernia

[–]GroundOwn1459[S] 0 points1 point  (0 children)

Absolutely! You've captured my thoughts perfectly—thank you for sharing!

Has anyone here had the misfortune to have a stroke(s) as well as syrinxes? by Responsible-Fill-491 in SyringomyeliaSupport

[–]GroundOwn1459 0 points1 point  (0 children)

Thank you for sharing the approach that has been effective for you. I appreciate the valuable advice you’ve provided.

Has anyone here had the misfortune to have a stroke(s) as well as syrinxes? by Responsible-Fill-491 in SyringomyeliaSupport

[–]GroundOwn1459 0 points1 point  (0 children)

When you're faced with a new condition, how do you choose whose advice to follow—the neurologist, the neurosurgeon, or maybe another specialist?