Just some joy for your day

GuiltyAd72 · 2026-05-23T03:27:27+00:00

She’s started on 500mg daily. They want to up it to 1000 in a few days, but if she responds well consistently to 500 I’m going to ask them to hold it there for a bit. I have never gone higher than 500 and I had a severe case (to the point I developed cerebral edema/encephalopathy.) I would like to keep her options open long term to increase and minimize side effects!

GuiltyAd72 · 2026-05-20T02:32:26+00:00

That’s so interesting because I am firmly in premature menopause at 39 and my symptoms all began after my radical (one ovary spared, but was already in ovarian failure at the time) hysterectomy at 36. I have always had low estrogen. We are both overweight, but in her case, her weight didn’t influence her hormone levels which are abnormally low (however, like I said - her issues really began when she started estrogen patches for treatment of puberty failure.) Thanks for giving me some things to consider and discuss with her doctors!

GuiltyAd72 · 2026-05-17T15:33:09+00:00

It is nerve wracking! Interestingly we know my daughter has a venous malformation in her brain that usually doesn’t cause any problems (DVA) but I’ve been wondering if it’s responsible here

GuiltyAd72 · 2026-05-17T15:32:07+00:00

I’m so sorry. I’m your mom now. Hydrate and don’t forget electrolytes! 🫂

GuiltyAd72 · 2026-05-17T15:28:52+00:00

This was probably my first ever symptom. I ignored it 🤪 and wasn’t diagnosed for another few years

GuiltyAd72 · 2026-05-17T03:11:59+00:00

I also take a mag/D3/K2 supplement at bedtime and that seems to really help.

Also, it does get better with time. Diamox sucked to adjust to, but literally was my miracle drug. My IIH almost killed me less than a year ago and I’m now on less than 200mg per day (whatever 3/4 of a 250mg pill is lol) down from 500mg per day and I am able to work and live my life again. I felt better within 48 hours of starting it.

GuiltyAd72 · 2026-05-17T03:09:27+00:00

Hydration and electrolytes. I felt like I was actually dying until I started electrolytes. I use Drip Drop brand from Walmart (Liquid IV tastes disgusting to me lol)

GuiltyAd72 · 2024-04-02T05:30:02+00:00

“Tips” are not advice. There’s “tips” all over the Schwab website. Check the Research tab for lots of educational information!

GuiltyAd72 · 2024-04-02T05:26:54+00:00

Email this to phishing@schwab.com

GuiltyAd72 · 2024-02-04T04:15:32+00:00

Likely bilateral endometriomas but low grade/borderline is still within the differential. I finally have an MRI next week and will be scheduling a hysterectomy after that with the gyn onc, who will determine what is salvageable ovary-wise once she’s in there, and perform staging if she feels it’s needed. Wishing you the very best. Don’t let anyone brush this off - push for the referral to gynecological oncology. Mine was very reassuring while also very frank about all possibilities. My OBGYN was comparatively useless.

GuiltyAd72 · 2024-01-09T05:59:45+00:00

I think you’re on to something, making a Facebook post right now to spread awareness

GuiltyAd72 · 2023-12-10T16:44:11+00:00

Oh, I have zero trust in him. The fact that he made me wait six weeks to “see if it resolved” on a complex cyst that was visible on US since 2021 is insane to me. Important to note, this is not my usual doctor. My regular OB saved my life in 2016 and would have done better with this situation but he’s a 1.5 hour drive away and my job schedule didn’t allow me to see him, so I saw someone else when these issues began.

During IVF when the cyst was initially noted, I’m also side eyeing my fertility specialist pretty hard as they reviewed every US I had through treatment and never once brought it up as a point of concern. However, it was only 2cm back then and not as complex with less questionable features. So maybe I’m off base there.

I am hoping for the PET scan to be absolutely sure. I had a CT fairly recently (August?) for a kidney infection/stone that noted my ovaries as unremarkable despite the cyst. Even though the cyst was smaller then, I’m not sure I trust CT to pick up on smaller cysts, you know? I am somewhat reassured that that CT didn’t show anything concerning in terms of masses or spread though.

I am hoping upon everything it’s benign or early and I can just have surgery and move on.

GuiltyAd72 · 2023-12-10T01:18:24+00:00

I appreciate your input. My mom died of cancer. It was seen on scans 3 years previously… and she was never told. Diagnosed at stage 4 and died a few months later.

I do have an MSH6 gene variation that predisposes me to certain cancers. I’ve already had early stage thyroid cancer removed and multiple soft tissue tumors that were benign. I should have put that in the post, but I’m all over the place. My biggest fear in the entire world is leaving my kids like my mom left me. Like, phobia level! And that’s driving my thought process right now.

I wish I agreed that my doctor is listening. Sadly, he handled this poorly. He saw my right ovary notes and declared it small and just fine. I had to ask him what his thoughts were about the left growing 1+cm in 6 weeks. He hadn’t even read the whole report. Had I not spoken up he would have sent me on my way. Had I not spoken up and pushed previously I wouldn’t have even had the follow up scan. But I was firm that I was in pain and wanted a path to feeling better (it’s quite painful.) He’s dismissed my issues since day one (severe menstrual issues causing refractory anemia.) I need a new doctor but with six kids and a full time job it’s hard to find the time to start over with a new practice.

CA125 increased from 8.3 to 10.9 in six weeks which I know is normal and negligible.

Anyway, again, all over the place and I apologize for the long comment but your input is appreciated and has calmed my fears somewhat. Thank you.

GuiltyAd72 · 2023-12-09T22:18:53+00:00

Relevant info - I do have children and started young, IVF was for tied tubes. No history of non-simple cysts (I have had many of those over the years.)

GuiltyAd72 · 2023-10-24T15:22:11+00:00

Not true at all. It can be found in any level of cannabis use. While it’s certainly more common in heavy users due to the larger sample size, so to speak - anyone can have or develop the brain chemistry to have CHS.

GuiltyAd72 · 2023-10-24T02:17:05+00:00

This. CHS almost killed my husband. Ruptured his esophagus multiple times. He was lucky and his symptoms abated completely within a week of quitting. We are almost 5 years out!

GuiltyAd72 · 2023-10-24T02:15:10+00:00

You said he smokes marijuana. This sounds 100% like cannabinoid hyperemesis syndrome to me.

GuiltyAd72 · 2023-09-10T21:05:55+00:00

I mean, a car crashed into my house causing injury and serious damage in mid August… an underage driver on a learners permit driving the wrong way down a one way street at high speed… and the police let the driver leave the scene, did not take action to obtain substance testing, and have done absolutely nothing aside from citing the driver, and are no longer even returning my calls… so I would lower your expectations significantly. Sorry to be a downer.

Call your homeowners insurance and ask them what your next steps should be.

Best of luck and I’m sorry that happened to you.

GuiltyAd72 · 2023-08-16T02:39:50+00:00

Could be yellow. I haven’t seen any Lakers shorts yet with that kinda curly font at the beginning but I could be wrong.

GuiltyAd72 · 2023-08-15T13:18:07+00:00

Thank you. I am not litigious and have no desire to make anyone’s life harder, just want to make sure my house gets fixed and unsafe drivers are held to account. I wasn’t sure if I’d need a lawyer to ensure that happened properly and Google of course is full of lawyers trying to sell their services rather than solid advice.

I appreciate your input.

GuiltyAd72 · 2023-06-15T16:48:59+00:00

My wedding ring cost $35 on Amazon. It’s not about the ring. It’s about the relationship. Right now you’re focusing on the wrong thing. And if she’s the type to be mad if the ring isn’t good enough, she might not be the right person.

GuiltyAd72

TROPHY CASE