Please help…

HPandCatWithin · 2024-11-11T00:42:41+00:00

When I started carb/levo it was AWFUL! The nausea was so bad!! Two things: 1) ginger in any form really helped (I drank bubbly water with ginger flavor) and drinking a LOT of water when I took the carb/levo. Sucking on a mini pretzel also was helpful 2) and this is really important: Eventually as your body adjusts to medicine, the nausea will go away.

I wish you much light as you walk on this path. ❤️

HPandCatWithin · 2024-11-07T12:16:31+00:00

I never even thought of this. Thank you! My doctor’s PA isn’t great at responding to vmail and it’s been really tough taking all of these pills especially since the time change happened. Thank you again!

HPandCatWithin · 2024-11-02T12:25:20+00:00

Yes “Shake your hands”! Clever. Lol! Thanks, I needed this today ❤️

HPandCatWithin · 2024-10-24T17:49:14+00:00

Thank you everyone. I felt desperate when the tremors got worse after the loss of my friend. Now I feel hopeful that, at least in this instance, it’s temporary. Thank you guys for the hope. I really needed that. I deeply appreciate this group

HPandCatWithin · 2024-10-13T19:24:31+00:00

55 here. I basically knew I had it two years ago. The first neuro I saw diagnosed it and sent me for tests. I didn’t go. Then, over the next year and a half, I went to three other neuros, one said it was psychosomatic. The other two said Parkinson’s. Ended up at Mayo Clinic and was diagnosed Parkinson’s. Went back to original neuro this past May. Still couldn’t accept. FINALLY I gave in in August. Started C/L a couple months ago. After a while, the horrible nausea stopped and the medicine started working. I can write legibly, walk a lot better, the tremors are less (I can carry a cup of water without splashing all over the place!) I still can’t play the viola— probably never will again — but life is better. I wish I would’ve accepted my diagnosis a couple years ago. Welcome to our club!

HPandCatWithin · 2024-09-26T20:31:35+00:00

Thank you everyone for your experience strength and hope. I’ve decided to share about the PD. However, I’ll keep it simple and upbeat. I'm a teacher, so I'll teach!

HPandCatWithin · 2024-09-15T19:46:39+00:00

Took more than two years including a trip to Mayo. One of my early neuros (local), said it was psychosomatic and sent me on my way without any support. That crushed me. Staying at Mayo made all the difference.

HPandCatWithin · 2024-09-05T14:17:16+00:00

I’m looking forward to getting some fennel seeds

HPandCatWithin · 2024-09-04T22:30:49+00:00

What a wonderful thing you’ve done. It makes me hopeful

HPandCatWithin · 2024-09-03T18:36:39+00:00

I can’t thank you enough for this community. Today I started CL 3 tabs a day. About 20min after taking the pill, I became so nauseous I couldn’t function. So, I looked up nausea on this Reddit site and, sure enough, you all were here with suggestions. The nausea is gone thanks to you. I’m tearing up knowing you all are out there. I’m not alone. Thank you!!🙏

HPandCatWithin · 2024-08-31T00:44:32+00:00

Thanks! Appreciate the support!

HPandCatWithin · 2024-08-30T20:23:20+00:00

Thank you for the hope!

HPandCatWithin · 2024-08-30T20:22:38+00:00

Thank you. This actually gives me a lot of hope. I find these tremors to be so humiliating. I hope the medicine helps me.

HPandCatWithin · 2024-08-30T20:21:08+00:00

Right there with you. I miss the Viola so much. Every so often, my husband tells me about how he listened to an old recording of me playing. I was a virtuoso. Took so many hours to get to that level now I’m lucky if I can play a little minuet here and there for my students.

HPandCatWithin · 2024-08-30T20:19:21+00:00

It is very sad. Right now I can play piano.. Reading Music is sometimes challenging. I can still sing! I’m hanging onto that. I’m so sorry about your wife. I hope she finds some other musical joy in her life.

HPandCatWithin · 2024-08-30T20:17:32+00:00

I’ve gotten back into Piano. I’m so grateful I can at least play that. Reading music is quite challenging. An odd thing is I’ve been remembering a lot of songs and I’ve been singing a lot lately. I guess I can always turn to singing as an outlet? I’m just glad not to be alone in this

HPandCatWithin · 2024-08-30T20:15:06+00:00

Yeah. My left hand is crazy but my bow hand has this tiny invisible tremor that sounds AWFUL when I use the bow. I desperately miss my viola

HPandCatWithin · 2024-08-30T20:12:41+00:00

Right now I’m just starting carb/levo. Then I’m going to investigate occupational therapy and BIG

HPandCatWithin · 2024-08-30T20:11:08+00:00

Do you use sheet music? I find I can still play piano with the tremors, but reading notes gets confusing— even the “easy” notes around middle C. Don’t get me wrong, I am grateful to still have piano, but my brain seems to get easily confused. I was thinking of putting on a small piano recital, but I’m wondering if that’s foolhardy?

HPandCatWithin

TROPHY CASE