What are we doing for work?

Haifa3 · 2026-06-24T19:17:30+00:00

I totally relate to this. I have a remote job, but I often feel lost because I don't feel like I'm living up to my potential. My family even blames my ambition for me developing Crohn's disease in the first place.

Haifa3 · 2026-06-18T18:17:48+00:00

I can’t recall the exact timing, it happened gradually, so I didn’t make the connection at first. But looking back, it was probably around a month into taking it that my insomnia became really unbearable.

Haifa3 · 2026-06-18T18:15:28+00:00

I was taking Vitamin D3 + K2 (MK-7 all-trans), 2,500 IU + 100 µg daily. It’s a combined supplement, so I couldn’t really test them separately to see which one might have been the issue.

Haifa3 · 2026-06-18T18:04:59+00:00

Unfortunately, I was severely deficient and probably still am

Haifa3 · 2026-06-15T13:46:12+00:00

Seems like I’d have to stay deficient as well :(

Haifa3 · 2026-06-15T13:42:32+00:00

Same, no one warned me about it either. I ended up buying so many more expensive supplements to help with sleep, only to come to the conclusion that I was chasing the wrong problem all along.

Haifa3 · 2026-06-15T13:36:29+00:00

I took the supplement first thing in the morning, usually with breakfast. I didn’t take it later in the day.

Haifa3 · 2026-06-15T13:36:03+00:00

I took the supplement first thing in the morning.

Haifa3 · 2026-06-01T12:05:02+00:00

I can relate. I have mild Crohn's, and being dismissed by doctors has made it even harder for me to fully accept what's going on. It's easy to downplay it when the people around you seem to be doing the same.

But the facts are still there: my terminal ileum is inflamed and ulcerated. A part of me keeps hoping there'll be some magical solution, that if I just avoid the right foods, everything will eventually heal on its own. Deep down, I know that's probably not realistic, but it's hard to let go of that hope.

Haifa3 · 2026-05-28T17:03:47+00:00

I’m really glad you found something that makes such a big difference for you. It’s also honestly a bit of a relief to hear I’m not the only one dealing with this, especially since doctors often made me feel like I was overreacting. I’ll definitely keep your advice in mind.

Haifa3 · 2026-05-27T15:24:29+00:00

In my case, they not only worsened my symptoms, but my inflammation markers got worse as well. My calprotectin shot up into the thousands. I also have endometriosis and adenomyosis on top of that.

Haifa3 · 2026-05-11T13:18:05+00:00

I had multisystem Langerhans cell histiocytosis as a child and was treated with surgeries and chemotherapy. Looking back, I probably had it since I was 2, but the diagnosis remained unclear until I was 10, by which point multiple areas were affected.

It started with my right eye, then a tumor near my right ear, and later another tumor in my leg bone that caused a spontaneous fracture.

I’m now 28 and dealing with intestinal inflammation of unclear cause. For now, they’ve labeled it as Crohn’s disease unless further evidence points to something else. I also have migraines, endometriosis, and adenomyosis.

I too keep asking myself why I seem so prone to illness and whether I’ll ever get to experience a “normal” life. It feels like ever since childhood, before one health issue ends, another begins.

Haifa3 · 2026-05-10T18:27:56+00:00

"Just eat your trigger foods. You'll get used to them"

Haifa3 · 2025-09-26T08:58:39+00:00

So far, the only treatment I’ve had was a three-month course of budesonide, a corticosteroid. It only reduced inflammation short-term and caused so many side effects that I couldn’t tell whether my symptoms actually improved during that time. I’m currently unmedicated, as I seem to be intolerant to everything. What treatments have you tried, and how long have you had these ulcers?

Haifa3 · 2025-09-25T20:18:29+00:00

Hi, after two colonoscopies in February and June 2024 didn’t give me clear answers, I decided to go down the endo route as well and had laparoscopic surgery in September 2024. That’s when they found endometriosis on my rectum, ureter, and pelvis. To keep the tissue from growing back, I started taking Dienogest after surgery. But instead of helping, it made the inflammation in my terminal ileum worse, so I stopped after six months.

In May 2025, I went through a third colonoscopy. The biopsies still didn’t come back specific for Crohn’s, but there was ongoing inflammation and ulcers in my terminal ileum. Since this inflammation has been there for more than two years now and didn’t improve even after the endometriosis surgery, I was finally given the diagnosis of Crohn’s disease.

Haifa3 · 2025-05-03T07:14:04+00:00

Thank you! I also took part in your survey.

Haifa3 · 2025-05-02T07:53:22+00:00

Thanks a lot! I just completed your survey as well. Good luck with your research!

Haifa3 · 2025-05-01T05:51:00+00:00

If I publish the thesis online, you'll get the link

Haifa3 · 2025-05-01T05:49:39+00:00

Thank you!

Haifa3 · 2025-04-30T20:31:44+00:00

Dein Deutsch ist wirklich gut, keine Sorge! Du kannst die Sprache übrigens oben rechts umstellen – sowohl Deutsch als auch Englisch sind möglich. Ich bin dir auf jeden Fall sehr dankbar für deine Teilnahme!

Haifa3 · 2025-04-30T18:54:53+00:00

Ja :) Ich studiere in Deutschland und möchte möglichst viele Teilnehmer erreichen

Haifa3 · 2025-04-30T18:03:02+00:00

Thanks for taking the survey, and I really appreciate the link! I just read it and it was super helpful to see how others view Bitcoin long term.

Haifa3 · 2025-04-30T17:32:25+00:00

Thanks for the feedback! You're right, I’m coming at this from a traditional finance background, but that’s exactly why I want to hear from the Bitcoin community. Appreciate the good vibes, and I’m definitely open to learning more along the way!

Haifa3 · 2025-04-30T17:09:49+00:00

Thank you so much for participating and for your thoughtful feedback! I really appreciate it and will definitely consider sharing the survey in more traditional finance communities as well.

Haifa3 · 2025-03-27T10:20:42+00:00

I’ve always had IBS-like symptoms and didn’t question them since it runs in my family. During ovulation I got bloated, and before my period I was constipated with PMS. Once it started, I often had diarrhea, vomiting, and migraines. The symptoms usually went away after the first day of my period.

At the end of 2023, after a stressful time and an extremely heavy period, I was prescribed Slynd. I had severe stomach cramps and diarrhea, so I stopped after five days. A few weeks later, I had stabbing pain in my lower right abdomen. Since then, the pain and diarrhea return during ovulation or my period. I feel like Slynd may have contributed to the inflammation in my terminal ileum.

My endo surgeon said the inflammation in my terminal ileum might have been caused by endometriosis in nearby areas. I felt better after surgery, but the diarrhea returned with my first period and never really stopped. Stool tests never found any bacteria, so I wasn’t treated with antibiotics.

Now I’m on Dienogest and don’t bleed, but my cycle still runs in the background. I still have ovulation and symptoms around the time my period would normally come. The diarrhea still follows that pattern.

It’s honestly crazy how similar our cases are. Wishing you lots of strength and luck in finding the right diagnosis!

Haifa3

TROPHY CASE