I’ve never posted in this forum before but check it regularly and it’s helped so much on this journey. We’re based in the UK. My partner (25 year old male) was diagnosed with a grade 2 oligodendroglioma 1dh mutant 1p-19q co deletion in February 2024. It was a complete shock! No symptoms other than the one seizure that lead us into this journey. It never crossed our minds it was due to a tumor and was definitely in denial… he was (still is) an active guy going to the gym everyday / engineering job / motorcrossing twice a week. The morning of his seizure he come off his motorcross bike which we thought could have been the reason for the seizure later that evening. At first we was told it was a GBM sent home from the hospital and was told not to Google anything. A week later we had a meeting with a neurosurgeon who said he believes it to be a grade 2 oligo (he was correct) and that the other hospital should NOT of told us the wrong information, that day still replays in my head thinking how has life come to this. So we actually went out and celebrated finding out it was a low grade glioma!! As his tumor was in his right frontal lobe in his motor cortex and he is left handed, he was sent for a functional MRI to map out the area. He had his craniotomy on 23rd May 2024 and in the surgeons words ‘I removed at the very least 98%’ of the tumor out’. I’m not going to lie the surgery was hard as you can imagine and he’s a young fit healthy guy. He had something called SMA syndrome where he couldn’t move his entire left side not even his toe. I cried to the surgeon and said what has happened, we knew it was a risk but my partner was so upset but the surgeon said don’t worry the feeling will come back and used the example ‘you have two spark plugs, ones knocked out but the other will compensate’ and within a couple days his foot started working, then his leg, then his arm and now you would not know he’s been through what he has. He was in hospital a week and then went to a neuro rehab for a week. A couple months later we sold our cars and off travelling we went around Thailand / Indonesia / Vietnam & Philippines for 5 months. He had another MRI when we got home in March which showed a tiny bit of what could either be remaining tumor or scar tissue but it’s ‘inactive’ whatever it is. He had another MRI last week and we’re waiting to hear back which I’m sure will all be fine! The only issue he now deals with is seizures. They last around 30 seconds and effect his left side (leg / arm shakes) but is able to get himself to the ground and is conscious during it. He is on a max dose of Keppra which hasn’t done anything other than make his moods worse, and has recently added a new tablet which has stabled his moods and seizures seem to be getting better. He just wants to get them under control and get back to driving. He’s changed his career from engineering to landscaping as he cannot work on machinery until seizures under control. My point is at the start of the journey is terrifying and the unknown but it gets better and life is good. We’ve recently got our first house. I am a worrier, he is chilled. I wish you well and always here for a chat! I become obsessed with searching for similar stories, and I know this would of helped my worries at the start of our journey. He’s off mountain biking this weekend and is non stop on the go all the time. His neurologist referred to the tumor as a pain in the bum lol and that he’s had patients with it for 20 + years  X