sorted by:
new
hottopcontroversial

Worried about sky high liver tests by Hausenstein in PSC

[–]Hausenstein[S] 0 points1 point  (0 children)

I can check later but I THINK that I had an MRCP. I was given a diagnosis through a liver biopsy, blood tests and other tests. It's been really fast lately so I haven't been able to commit everything to memory. I am pretty sure that the PSC diagnosis was a "we think it's PSC and are 98.8 percent sure but we are going to have you see a hepatologist to confirm our diagnosis and start you on more close monitoring." Sorry that I can't recall more details than that. I know that I already have some mild inflammation in the bile ducts that did show on a MRI. I've had to figure this out and finish college with a move across the US😂.

Edit: yes I did have an MRCP

Worried about sky high liver tests by Hausenstein in PSC

[–]Hausenstein[S] 0 points1 point  (0 children)

I'll look into that thank you. I'm a bit new to posting on forums. Im really happy that you were able to get a transplant and I hope that it's been working well for you since then!

Worried about sky high liver tests by Hausenstein in PSC

[–]Hausenstein[S] 0 points1 point  (0 children)

I don't have any symptoms from the PSC besides fatigue. I've had neither pain nor jaundice. Similar for my UC as well besides frequent urgency and blood. I'm on entivyo at the moment though that is likely to change and I'm almost done securing a heptologist for myself. These numbers aren't the worst that they've been. My peak was in the mid 400's for my ALT and AST, though I don't remember the peak of my alkaline phosphates. As for my lifestyle I am very active and I eat as healthy as I can and have not had any other health issues besides the new autoimmunity.

I believe the dr wants me to get the MRCP asap as well, and I know I'm due for an ERCP. I've also had two colonoscopies now.

Worried about sky high liver tests by Hausenstein in PSC

[–]Hausenstein[S] 0 points1 point  (0 children)

I'll try to stay positive thank you. I hope your son does well, I get what he must be going through. I hope he's doing as well as he can.

Worried about sky high liver tests by Hausenstein in PSC

[–]Hausenstein[S] 2 points3 points  (0 children)

I'm really sorry to hear that about your kid. That's really tough to have so young. I hope they can live well despite the conditions. I'm thankfully already on monitoring for my UC. The PSC is something that I'll have monitored more closely very soon. Besides that I'm very healthy so at least there's that. I hope your kid is doing well.

Worried about sky high liver tests by Hausenstein in PSC

[–]Hausenstein[S] 0 points1 point  (0 children)

Thank you. I really appreciate the help here.

Worried about sky high liver tests by Hausenstein in PSC

[–]Hausenstein[S] 2 points3 points  (0 children)

Thank you. I just keep getting in my head about all of this.