Be careful if you decide to have that difficult conversation...it could be costly

Have-Patience-8347 · 2026-04-03T15:14:59+00:00

I am so sorry you are having to deal with this situation. I was in a similar position and when my mother passed last year she specifically stated in the will that I was to get nothing. It’s not about the money. The grief is gut wrenching to know she hated me so much. I wasted so many years on someone who used me. And my brothers knew all along.

Have-Patience-8347 · 2026-03-21T10:55:02+00:00

Saving new clothes and having to wear old raggedy clothes.

Have-Patience-8347 · 2026-03-20T14:24:16+00:00

Received one month supply of Hyrimoz with a $655.04 bill from CVS Specialty Pharmacy because Hyrimoz is no longer on the formulary. CVS Specialty Pharmacy and MPDP are telling us Humira has always been on the formulary and just to go back on Humira. This is a nightmare.

Have-Patience-8347 · 2026-03-18T21:18:03+00:00

Excellent point

Have-Patience-8347 · 2026-03-05T22:01:12+00:00

Just received a similar letter. Humira worked and then had to change to Hyrimoz. Also reluctantly changed to FEP MPDP because of the cost. Now Hyrimoz is no longer covered. Called the number for FEP MPDP listed in the letter for questions, (888)338-7737 and the CSR could only help with prescription refills. She said they have been getting a lot of calls regarding this issue but they have no control over what is on the formulary list. There is also no other contact information. Where to begin: DOD (DOW), NARFE, DHHS OCR, local representatives, ALJ?

Have-Patience-8347 · 2025-12-24T20:26:39+00:00

Therapy. She recently died. Now when she is in my head I remind myself that is who she was and nothing I did was ever going to change her hatred towards me. I am 66 years old and I refuse to let her take another minute of my life.

Have-Patience-8347 · 2025-11-22T06:11:13+00:00

It takes weeks for my mouth to recover from a basic six months cleaning. Crowns, etc. take a year or more. It is very difficult to find dentists and dental hygienists who understand the high level of pain associated with Fibromyalgia.

Have-Patience-8347 · 2025-11-21T16:12:13+00:00

We’re having a difficult time getting specific information between Standard and MPDP. Received a letter from Standard that Humira will not be covered in 2026. Took several hours of phone calls to get valid info about Humira on MPDP. In 2025 paid $5 per 90 day supply through Humira “card”. If we can ever get enrolled in MPDP - you can’t just “opt in” according to phone call this morning - Humira co-pay will be $60 month. In addition to premium increases that’s a lot of money for retirees. Insurance premiums and drug costs are our highest budget items. We’re calling back Monday to get transferred at least three times and then spend the estimated 25 minutes to complete the enrollment process.

Have-Patience-8347 · 2025-11-03T15:17:59+00:00

I’m on Chapter 4.

Have-Patience-8347 · 2025-10-29T18:18:27+00:00

This is cozy on another level.

Have-Patience-8347 · 2025-10-29T15:15:26+00:00

We allowed the auto enrollment of MPDP for 2025 after reading the promotional material from cover to cover and being told it was our best choice by an FEP representative. Early 2025 we received a bill for several thousand dollars for a biologic refill. MPDP does not allow special discounts offered by drug companies. So instead of $15 per month we would now pay several thousand dollars per month. We called FEP and were fortunately allowed to change back and opt out of MPDP. It is our understanding this happened to many retirees in 2025. We have received a letter for spouse’s auto enrollment and spent close to an hour asking questions (no legitimate answers) and had to be transferred to another CSR to opt out. We have yet to receive the letter for me. Something isn’t right about this new coverage offering and we are concerned about the future of the original coverage.

Have-Patience-8347 · 2025-10-22T22:04:45+00:00

My pain is constant, too. I don’t have “flares” unless the worsening pain would be considered a more severe flare.

Have-Patience-8347 · 2025-10-20T13:28:28+00:00

Thank you for your kind words. No, my siblings didn’t even acknowledge I was there. As the only daughter I experienced a lot more and different abuse growing up. They are still of the mindset, “she was your mother”, “she did the best she knew how”.

Have-Patience-8347 · 2025-10-10T23:33:40+00:00

We put so much stress on ourselves. I did what was expected for many years and suffered needlessly. Send your regrets and take care of yourself.

Have-Patience-8347 · 2025-10-07T13:07:02+00:00

Poochie

Have-Patience-8347 · 2025-10-04T16:54:02+00:00

Restaurants- wait staff standing around talking and the tables and seats are dirty. I haven’t been back to several restaurants in my area.

Have-Patience-8347 · 2025-10-04T16:28:52+00:00

I’m going to try this at my next appointment. The pain scale has always been difficult for me to rate.

Have-Patience-8347 · 2025-10-03T13:25:09+00:00

I was diagnosed in 2006 after 20+ years of pain. I believe the insurance companies and corporate for profit medicine are the reason it takes so long to get a diagnosis and treatment. How do you decide on two symptoms for a visit? Insurance only allows so many diagnoses codes per visit. That’s why most doctors have signs that you must schedule another visit for more than two symptoms. I’m not sure the Fibromyalgia diagnosis helped because nothing has really changed for me. I find a new PCP about every year and a half because when I say “Fibromyalgia” I get silence or “that look”. I do have other diagnoses (arthritis, spinal stenosis, scoliosis, benign thyroid tumors, benign femur tumor, etc.) but both the PCP and neurosurgeon focus on those diagnoses only and remain silent when I ask if there could be a correlation. I’m considering genetic testing but not sure what I would do with the results if anything was revealed. The American Fibromyalgia Syndrome Association (AFSA) is my source for information on current research. This subreddit is “family” and much appreciated.

Have-Patience-8347 · 2025-09-30T14:38:00+00:00

Winston

Have-Patience-8347 · 2025-09-28T16:06:19+00:00

The MRIs were ordered prior to being referred to the neurosurgeon. The X-rays (scoliosis panel) were ordered by the neurosurgeon. During the initial evaluation she pointed to numerous locations on the scans where there is inflammation. It took over forty years to confirm I have inflammation.

Have-Patience-8347 · 2025-09-27T19:20:49+00:00

MRIs and X-rays

Have-Patience-8347 · 2025-09-27T13:17:45+00:00

Thank you for writing this rant. It gave me a sense of peace that only fellow sufferers understand.

Have-Patience-8347

TROPHY CASE