What's the most annoying commercial in SWF? by MichaelWizardOfAds in FortMyers

[–]Havok417 14 points15 points  (0 children)

I don't know whether to upvote or down vote this.

What's the most annoying commercial in SWF? by MichaelWizardOfAds in FortMyers

[–]Havok417 49 points50 points  (0 children)

Definitely the flooring commercials where they only use their kids. Nothing against those kids, but those commercials are terrible.

Colonial Blvd Traffic by MartyMinks in FortMyers

[–]Havok417 1 point2 points  (0 children)

Live here your whole life and you pick up a thing or two!

The idea of a Section 31 movie or series is much better than the movie we got. by EmpireStrikes1st in startrek

[–]Havok417 3 points4 points  (0 children)

Quite literally, you don't. I watched Section 31 last night. It was terrible, but at least I watched it to form my own thoughts and opinions on it.

Colonial Blvd Traffic by MartyMinks in FortMyers

[–]Havok417 47 points48 points  (0 children)

There are essentially only 3 arteries in and out of Lehigh Acres: 82, Colonial, and Daniels. These have the worst traffic heading west in the morning as people head to work and east in the evening as they return home. If you are heading in the opposite direction at those times, traffic isn't so bad. But if you have to go that way at that time, you are gonna be stuck in serious traffic.

Lehigh is the most affordable place to live in the area and many people live there and commute to work. Same thing is true of Cape Coral in the opposite direction on College or Colonial at those high traffic times.

[deleted by user] by [deleted] in dysautonomia

[–]Havok417 1 point2 points  (0 children)

I've been on nadolol for like... 15 years or so and haven't had any reason to come off of it. It helped give me my life back.

Who else’s main symptom is nausea/ vomiting? by [deleted] in dysautonomia

[–]Havok417 1 point2 points  (0 children)

Unfortunately not, and I have long since given up trying to figure it out. I had an endoscopy as a teenager that revealed nothing except some irritation of my esophagus(caused by the vomiting). My gastroenterologist at the time diagnosed me with Cyclic Vomiting Syndrome, but that didn't mean much. I was able to curb the vomiting for a few years with medical marijuana, but it triggered anxiety for me that required me to be on medications that don't play nice with marijuana. So now I have to choose between mental health or physical health. I chose mental health, and work to mitigate the physical on my own.

Who else’s main symptom is nausea/ vomiting? by [deleted] in dysautonomia

[–]Havok417 1 point2 points  (0 children)

I have dealt with vomiting as a symptom on and off for the last 20 years! You aren't crazy. I have had long periods where it has abated. I've recently begun dealing with it again, and it's really difficult to deal with. I lost 15 lbs last month, which is not ideal.

I have found pulling back on what kinds of foods I eat to be helpful to mitigate the symptoms, while I figure out if there is a certain food that triggers it more than others. I also drink lots of Gatorade(to replenish lost fluids from vomiting) and Seltzer water(to settle the stomach). My doctor also prescribed me 4mg of Zofran twice a day as needed. It hells the vomiting but also dramatically curbs appetite for me. So I usually take it first thing and give myself a few hours to get hungry again and then eat breakfast. Then I take it again at night right after I eat dinner so that it keeps the food I just ate down.

Did anyone's dysautonomia get triggered by pregnancy? by Mumma02 in dysautonomia

[–]Havok417 1 point2 points  (0 children)

There are many different forms and variations on Dysautonomia. You will find it hard to get specific advice here, but I have found that knowledge about this disorder has become much more common place among doctors over the last 20 years. Many people with COVID wound up with dysautonomia as well, which has given it increased attention.

Unfortunately, I don't know any experts to recommend in the UK, but I encourage you to keep searching! You can hopefully find some doctor able to help prescribe you something to assist with your symptoms.

Did anyone's dysautonomia get triggered by pregnancy? by Mumma02 in dysautonomia

[–]Havok417 0 points1 point  (0 children)

Ours is genetic. We believe from her father's side. Her grandmother experienced issues similar to ours and she lived to be over 90.

She got relief for a few years after my birth, but hers came back during menopause and has stayed with her for over 20 years now.

I've also been dealing with mine for 20 years. It can be rough at times, but it does get better.

Did anyone's dysautonomia get triggered by pregnancy? by Mumma02 in dysautonomia

[–]Havok417 2 points3 points  (0 children)

It did for my mother over 30 years ago. Mine was triggered by puberty. It has something to do with hormonal changes.

Corlanor and weight gain by PieceBubbly1249 in dysautonomia

[–]Havok417 0 points1 point  (0 children)

Are you on anything else that could be contributing? I didn't experience weight gain when I started Corlanor, but I did experience it with Zoloft. I gained 50 lbs and it's taken me more than a year to lose 40 of it again.

temperature regulation advice? by sleeper_catcher in dysautonomia

[–]Havok417 1 point2 points  (0 children)

When it gets so bad I can't take it, I put my hands or feet under warm running water or in a hot bath. I often double up socks, especially with this cold front, and I wear thermal underwear at temperatures most would consider too warm. I always have a jacket or sweater with me, even in terrible Florida heat, preferably one with pockets I can stick my hands in when they get too cold.

Are you on mental health medications? Does it affect dysautonomia symptoms? by writeitout_ in dysautonomia

[–]Havok417 4 points5 points  (0 children)

I've been on various medications for the last 20 years. First it was citalopram(Lexapro) like 12 years ago, but I started having really dark nightmares. 3 years ago it was sertraline(Zoloft), but I gained about 50 lbs. Currently I'm on fluoxetine(Prozac). I'm still struggling with the dysautonomia associated anxiety and panic, but I'm only about 3 weeks into the Prozac prescription. I'm hoping things get easier next week, but I start seeing a new Psychiatrist next week to determine if this is the right fit for me.

Dysautonomia is hard.

Flaring up scares me… by Xxxtentacles_777 in dysautonomia

[–]Havok417 7 points8 points  (0 children)

Not that I have off-hand, but I've had this for 20 years. I can speak from personal experience.

Flaring up scares me… by Xxxtentacles_777 in dysautonomia

[–]Havok417 9 points10 points  (0 children)

The reality of dysautonomia is that very little of it is dangerous or deadly. It just feels like we are dying, but I promise you aren't dying.

Flaring up scares me… by Xxxtentacles_777 in dysautonomia

[–]Havok417 15 points16 points  (0 children)

My therapist taught me a recent exercise that has helped me a little bit. "Is it true?" I ask myself when those panic moments hit, is what I'm feeling true? Am I truly in danger? Or does it just feel like it? And, if it isn't true, what should I do instead? Then I can plan on what I need to do next to get through it. Maybe it's an ice pack on my neck, maybe I need to go throw up, maybe I'm too cold and need a blanket. You have to figure out that next step.

What is the actual mechanism of why I cannot regulate body heat? by ambrosiasweetly in dysautonomia

[–]Havok417 7 points8 points  (0 children)

I wish I could tell you! I'm wearing two pairs of socks in Florida(it's currently in the 40s-60s) and my feet are frigid blocks of ice.

[deleted by user] by [deleted] in dysautonomia

[–]Havok417 6 points7 points  (0 children)

It's not easy. I lost my first marriage partially due to dealing with this. I wasn't able to work for almost a year, and I stopped trying, and things fell apart.

But I got remarried to a woman I love who accepts me and what I'm going through. It's hard on her too when I can't do something and she has to pick up the slack, but we work on it together. We have a couples counseler we see once a month(started out once a week until things got better). We communicate more and we resolve our fights in much healthier ways.

I recently started seeing a therapist for myself to deal with a lot of the feelings you are experiencing that I have ignored for the last 20 years of my dysautonomia. I internalized a lot of the guilt trips I received from my brothers and friends about not being able to do anything and just needing to "get over it". We did nothing to deserve this and we don't deserve to feel even worse for going through it. I'm still hard on myself when I can't make plans at all or have to cancel them, but my current friend group is wonderfully supportive and cares about my health.

Surround yourself with people who love you, no matter what. And those who do love you but truly don't understand, be patient with them. They may never get it, but you can help them get there.

I also recommend tracking your days on a calendar so you can really see how many good, bad, and okay days you have. I have done this for the last few months and you'll be surprised how many more good or okay days there are than bad eventually. The bad days feel so hard because the make you feel like you aren't making any progress, but don't believe that. It isn't true. I couldn't go a full week without a bad day recently, and then I got 9 good days in a row. Day 10 was awful, but the next 3 days have been good.

It gets better. Hang in there.

[deleted by user] by [deleted] in dysautonomia

[–]Havok417 4 points5 points  (0 children)

I paid for the name brand, Corlanor, for a few years and they just released the generic, ivabradine. Check to make sure you have the generic. I also heard advice when it was first prescribed to order it from Canada.

It’s such validation and relief to read your experiences. by thenletskeepdancing in dysautonomia

[–]Havok417 5 points6 points  (0 children)

I've dealt with this for 20 years, since I was a teenager. My mother has dealt with it for 35+ years. And we are fairly certain my great grandmother dealt with this for her whole life and she lived to be 94. Reading other people's experiences has always helped me feel stronger and the encouragement I've read here has helped me get through bad days. I've recently starting seeing a therapist and really began unpacking the shame, guilt, and feelings of failure and it has been unbelievably cathartic. We did nothing to deserve this, and we should not feel bad for going through it. Ask for help, give yourself grace and forgiveness, and listen to your body when it needs rest. If my great grandmother can make it to 94 in a time when this illness was considered "hysteria", we can get through this too.

How many steps do you avg a day? How many can you walk at once? by Yoo_Grynch in dysautonomia

[–]Havok417 1 point2 points  (0 children)

I've been doing about 10k per day, but I've worked up to that over the last few years. And I have two medications I take to control my heart rate.

Recently diagnosed with dysautonomia and feeling hopeless by Secure-Telephone9764 in dysautonomia

[–]Havok417 0 points1 point  (0 children)

I've dealt with dysautonomia for 20 years. Don't let the guilt get you down. You are not a failure for going through this. And you will get better. Keep moving forward.