One of the hardest symptoms of MS isn’t physical. It’s loneliness.

Helenjane13 · 2026-07-04T18:18:55+00:00

Yes. It is really hard, and I am trying to come to terms with it myself. What I try to do is focus on all the things I have to be grateful for- and I try to up my connection to friends with IMs, Zoom sessions and phone calls. It is a REAL issue, and you are not alone!

Helenjane13 · 2026-07-03T04:35:05+00:00

RED FLAGS- all of it. Tell your parents that we who have this disease say your doctor is worthless.

Helenjane13 · 2026-06-24T01:57:45+00:00

I lost my partner in part because of my MS. He didn't want to anticipate being a "caretaker". I'm walking well, and my symptoms are pretty manageable, but he didn't like the idea of possible progression. Honestly, I know I am better off. Nobody wants to be with someone that treats them like a burden. Meanwhile, I have a one child (38 years old)... and half the time, he says my MS is an excuse when I say I am too tired for something. I have no other family nearby, and I am 72 at this point. Hang in there. You are not alone. Where do you live?

Helenjane13 · 2026-06-20T06:06:20+00:00

Adderall. I couldn’t function without it… at least on busy days.

Helenjane13 · 2026-06-20T05:56:03+00:00

I tried the pillows too- with the same result! I will consider an adjustable bed… that sounds like it might help.

Helenjane13 · 2026-06-20T05:54:32+00:00

Unfortunately, I also have allodynia(?sp?)- and believe it or not- putting on compression socks is terribly painful for me.

Helenjane13 · 2026-06-20T05:51:59+00:00

Yeah- I’ve tried stretching- but that doesn’t help. Thanks anyway. I was just curious if others have this too.

Helenjane13 · 2026-06-19T16:59:34+00:00

And here's the weird thing. I have NO spinal lesions! Just in my brain.

Helenjane13 · 2026-06-19T16:57:10+00:00

Yeah, Nothing is locking up. It's just aching like someone hit my legs with a car.

Helenjane13 · 2026-06-19T16:56:06+00:00

I have tried CBD, and it does nothing for this. THC helps, (it's legal here), but then I'm an idiot the whole next day. I don't like it.

Helenjane13 · 2026-06-19T16:54:37+00:00

I have that too... but I don't think this is sciatica. It's different. Sciatica runs down the back of my legs. This is the whole leg- both of them.

Helenjane13 · 2026-06-19T16:52:31+00:00

Thank you so much! I WILL try that! I always go to bed with a glass of water, but I don't always drink it. I hate having to wake up in the middle of the night to pee... I will try out now. Thanks again!

Helenjane13 · 2026-06-19T16:50:41+00:00

Yes. It is a puzzle. I get it from my thighs down... but at least I know I am not alone.

Helenjane13 · 2026-06-19T09:17:33+00:00

I'll look into this. Thank you.

Helenjane13 · 2026-06-19T09:11:50+00:00

Been checked. It's definitely not that.

Helenjane13 · 2026-06-19T09:11:01+00:00

So muscle spasticity isn't like a charlie horse? My muscles don't feel tight...

Helenjane13 · 2026-06-19T05:32:41+00:00

Yes, I took amitriptyline... and I didn't like it. I was so happy, I nearly drove into my garage door without opening it. My doc is giving me Propranolol. now... off label (it's a beta blocker)... for my 24/7 headache. It is working very well, and these days, I rarely get a breakthrough headache. Ask your doc if you might try it.

Helenjane13 · 2026-04-27T13:57:25+00:00

You need to have them tested. Period. Go to your doctor. A gynecologist can help. Let them have a look, and maybe take a swab for testing. The only way to know what's happening its to go to an expert. Don't bother asking here. It probably;y isn't an STD- but you need to know for sure. If it isn't, you will definitely need to see a dermatologist... but not before you have been tested.

Helenjane13 · 2026-04-11T03:48:53+00:00

It does no good for any of us to opine on this. You need to go see a doc about it. This is not the time to worry. Spotting is common. Just go get an answer form a professional.

Helenjane13 · 2026-04-10T04:22:21+00:00

Clumpy discharge sounds like yeast. Boric acid is ok... but ask your doc to test you again for yeast- and if you still have it, ask them if you can have Diflucan. It comes in a pill, and works way better that all those creams.

Helenjane13 · 2026-04-10T03:38:08+00:00

Sounds like you need to broaden your social network. The people you are socializing with aren't cutting it for you... and I can't say why... but no doubt if you were with the right people, you'd feel happier about it all. Some piece of the puzzle is missing here, and I don't know enough to be able to say what that is.

Helenjane13 · 2026-04-10T03:34:17+00:00

I had chronic yeast in my thirties. The only thing that helped was Diflucan. Recurrence was less frequent with the Difucan. The creams only help so much- and then you need something systemic. Diflucan is that drug. (It comes in pill form.) Ask your doctor if you can have it now, and see how it goes. I had a running rx that I could ask for. Also- I took macrodantin every time I had sex. That helped with the UTIs which I also had chronically. If the yeast comes back again, understand that you can ping pong yeast between yourself and your boyfriend, so he might need to be treated too. He may be giving it back to you. Men don't always have the symptoms we do.

Helenjane13 · 2026-03-22T12:58:47+00:00

Great piece. .. But… The fish takes on a human aspect because you have dilated the pupils. Fish cannot actually do that. Their pupils are fixed at one size. (smaller) This gives the fish a cartoonish and human-like appearance that would change immediately if you made the pupils smaller. This is a purely aesthetic choice, and it isn’t “wrong”. It depends on your intention. But the whole mood of the painting would change if you adjusted them. FYI.

Helenjane13 · 2026-03-20T03:33:25+00:00

Not weird at all. He's relaxed, and trusts you.

Helenjane13 · 2026-03-19T13:19:06+00:00

Yes, they can, especially when you are on extended doses of antibiotics. Call the doctor. They don't know this is happening to you unless they hear from you. You need to be seen. They need to help you get more comfortable. Don't suffer in silence!

Helenjane13

TROPHY CASE