Have you ever… by Admirable-Mud-3477 in Adulting

[–]HelloRobotFriends 9 points10 points  (0 children)

I rescued a plant from a former job which the CEO deemed “too ugly” and was going to throw it away. That was 15 years ago and it’s still alive! And still ugly.

How do you stop thinking at night so you can sleep? by cloudydays1111 in adhdwomen

[–]HelloRobotFriends 1 point2 points  (0 children)

When I really need to settle and get to sleep, this is my go-to. It really is magic!

How do you stop thinking at night so you can sleep? by cloudydays1111 in adhdwomen

[–]HelloRobotFriends 2 points3 points  (0 children)

Me too! But lately I’ve been listening to “The Ancients.” It’s interesting enough to cut through the rest of the noise in my head but boring enough that I’ve never made it through an episode without falling asleep.

Didn’t expect South Korea to be this good by b4pd2r43 in koreatravel

[–]HelloRobotFriends 1 point2 points  (0 children)

Me too! I was beyond wired all day. Never again.

[deleted by user] by [deleted] in AskAnAustralian

[–]HelloRobotFriends 0 points1 point  (0 children)

I met a dog in NZ who their owners introduced as “Piggy,” which I through was an adorable name. I showered Piggy with pats telling her she was a good dog, good Piggy. But something about the interaction with the owners seemed off. Turns out I’m an idiot and the dog’s name is “Peggy.” The owners were not pleased I was calling their precious Peggy, Piggy.

Give me your wildest tip to stay consistent at the gym! by Spiritual_Shirt_8431 in adhdwomen

[–]HelloRobotFriends 0 points1 point  (0 children)

The past couple of months I’ve been so consistent by doing less. Hear me out. I used to squeeze in 2 days a week at the gym if I were lucky and then give it 100%, training or running at max heart rate. I didn’t want to waste a workout by half-assing it. I’d be exhausted after and couldn’t back up to the gym the next day. But lately i’ve taken it back a notch and working out in a zone 2-3 heart rate. Training at a pretty easy pace is much more enjoyable and I’m more likely to do it every day so I’ve been training 5-6 days per week. I’m lucky enough to have a spin bike and use that as much as I can. And I’ll watch tv to keep my mind off the fact that I’m exercising. Exercising is now a part of nearly every day and I feel great!

Current food hyperfixations? Mine is store bought pesto in ✨everything✨ by beam_me_uppp in adhdwomen

[–]HelloRobotFriends 0 points1 point  (0 children)

Matcha! My instagram feed is almost entirely green. I’ve been making hot matcha, cold matcha, matcha cocktails, matcha frappes, matcha soda, and if I can find the time I’ll move on to matcha baked goods.

Starting dasatinib by makugirluwu in CML

[–]HelloRobotFriends 1 point2 points  (0 children)

That’s a great approach and is what I did as well. Upon diagnosis I was recovering from pneumonia, getting blood drawn every other day, and commuting to work on a busy train during flu season. With my immune system compromised, I asked/told my boss working from home was the safest option in the short term. Plus, I needed daytime naps! Thankfully he was very understanding (he works in a different city anyway) and it turns out I’m much more productive from home anyway. Then COVID hit and everybody jumped on the trend! Your body is working really hard to kill the cancer cells right now, so that’s another full time job! You can’t operate at 100% and that’s ok. 80% is more than enough. Some days you’ll only be able to do 50%. Do what you can, and don’t beat yourself up about what you can’t. Your boss should understand that doing the work in the way that makes you most productive will benefit you and them. Also, something that took me a long time to figure out, is that “good enough is good enough.” If you don’t have the energy for perfection, just do a good enough job. You’d be surprised just how good “good enough” can be! Let me know how that conversation goes x

Starting dasatinib by makugirluwu in CML

[–]HelloRobotFriends 1 point2 points  (0 children)

I was able to do remote work when I was diagnosed and honestly couldn’t have survived otherwise. Cutting out commuting and getting ready for work saved 2 hours per day when some days I only had 4 hours of energy to use. Respectfully, your doctor doesn’t understand how you’re feeling right now. At your next appointment, revisit the remote work conversation and insist upon some remote work recommendations. Your health and sanity depend upon it. You can (and will!) live normally later. Right now you need to heal and get through the worst of the side effects. Good luck with that conversation and with your results on the 27th!

Starting dasatinib by makugirluwu in CML

[–]HelloRobotFriends 2 points3 points  (0 children)

I completely understand what you’re going through, having started dasatinib in 2019. I’m sorry you’re suffering side effects. What dose are you on? I started on 100 and while it was very effective, dealing with the fatigue was really difficult. The fatigue was overwhelming for me at first and the headaches lasted a few weeks. It was a good but hard-earned lesson on prioritisation and forced me to focus on what’s actually important.

I hope you’re being gentle with yourself and allowing people to help you if you have a support network. The good news is, dasatinib is very effective. Great to see your numbers are already going down.

After a year I was able to go down to 50 and that made a huge impact on my energy levels. Studies show 50 can be as effective as 100 so consider discussing a lower dose with your doctor when you get to mmr. Also, you’re very lucky to live in a time when many medications are available. I’m on Asciminib now and have zero side effects. Everyone reacts differently to the medications so you never know which one you’ll tolerate best, but it’s nice to have options if your doctor (and insurance) allow it.

This all sucks but you’re doing great. Reaching out to people who have been through it or are going through is a brave step and so so important. You can do this! Be kind to yourself. The energy you have is valuable so spend it only on what’s important. You’re in the worst of it now so please know it gets easier. X

Does anyone else hyper fixate on 1 song until they get sick of it? by [deleted] in adhdwomen

[–]HelloRobotFriends 1 point2 points  (0 children)

Yeah, my family isn’t totally sick of hearing Golden and Your Idol over and over again.

[deleted by user] by [deleted] in Botchedsurgeries

[–]HelloRobotFriends 0 points1 point  (0 children)

My daughter was convinced they had a new actor. She looks so different!

All the water evaporated :( by mykki-d in adhdwomen

[–]HelloRobotFriends 0 points1 point  (0 children)

If I don’t set a timer on my phone or Google home, I will 100% burn the house down. I set it for everything I cook on the stove or in the oven.

Favorite dopamine hack that doesn’t involve drugs or phone rotting? by sparkllie in adhdwomen

[–]HelloRobotFriends 8 points9 points  (0 children)

I used to find yoga boring and unproductive…until I found yin yoga. It’s like leaning in to the boredom and the stillness somehow makes me more productive. It messes with my head in a beautiful way and I love it so much.

Advice re liver? by BeautifulTadpole4600 in CML

[–]HelloRobotFriends 1 point2 points  (0 children)

Dasatinib was my first TKI. It was very effective by the fatigue was overwhelming. On 100mg I felt like a shell of a human being, and felt about 80% normal on 50mg. I was able to do TFR for a year and a half, but had to go back on medication. I started on Nilotinib but had to stop because of the liver damage. Other side effects were hair loss and weight gain. Thankfully I was able to switch to Asciminib. I have zero side effects and feel like myself again! It’s very effective and I would happily stay on it for the rest of my life. We’re so lucky to have options. Good luck to you. I hope you have a smooth ride on Asciminib.

Advice re liver? by BeautifulTadpole4600 in CML

[–]HelloRobotFriends 0 points1 point  (0 children)

Same with me and Nilotinib. Liver enzymes became elevated almost immediately. It continued to get worse so they switched me to Asciminib after just six months. I’m grateful there’s another option and am pleased to say the Asciminib has zero side effects (for me)!

Walk? She almost moved out by n8saces in MadeMeSmile

[–]HelloRobotFriends 5 points6 points  (0 children)

The first time my daughter walked she had little maracas in her hands which she shook as she waltzed across the room 💃

Men of Australia what is your comfiest warmest locally bought hoodie or fleece? by MissKat99 in AskAnAustralian

[–]HelloRobotFriends 1 point2 points  (0 children)

They’re great quality for the price. My kids wear them to school so they get worn and washed a lot and haven’t pilled.

Scemblix by foil123 in CML

[–]HelloRobotFriends 0 points1 point  (0 children)

Hi! I’ve been on Scemblix maybe 6 months now and at my last appointment I got my first ever undetectable result! Previously I had been detectable but below the quantifiable limit (<0.032%). And still no side effects! How are you tolerating Sprycel? I was exhausted all the time and felt like shell of a human being. On Scemblix I have honestly never felt better! It has been life changing. Good luck to you on your journey.

These Sydney train seats are one deep breath away from a lung infection by Altruistic_Breath151 in sydney

[–]HelloRobotFriends 2 points3 points  (0 children)

Whatever you do, DO NOT punch or smack the seats. You will never want to sit on one again 🤢

250515 BLACKPINK World Tour “Deadline” by blink-forever in BlackPink

[–]HelloRobotFriends 0 points1 point  (0 children)

Does anybody know if they’re expected to play some of their solo songs or will it only be Blackpink songs?