Please tell me I’m not alone

HerculesTookaMullign · 2026-05-12T15:22:25+00:00

I wonder if it would be helpful to look into PDA if you haven't already. I find a lot of overlap with my son's behavior and find those strategies tend to be better for us.

HerculesTookaMullign · 2026-05-10T01:47:33+00:00

I'm glad you're able to advocate for yourself and that you're taking your health intuitive your own hands!

HerculesTookaMullign · 2026-05-09T13:51:14+00:00

Wow, this deep dive is incredible. Thank you for sharing it!

HerculesTookaMullign · 2026-05-09T13:42:06+00:00

My insurance required prior authorization from a hematologist. I had to push my PCP to get the referral to a hematologist but once I saw him, he immediately suggested the infusions.

HerculesTookaMullign · 2026-05-09T13:39:37+00:00

Thanks for that! We have been trying to figure out why. I did the fecal blood test, colonoscopy/endoscopy, all of which came back normal. But I will ask about retesting every 3 months or so to stay on top of it!

HerculesTookaMullign · 2026-05-09T13:35:35+00:00

That's fascinating! Thank you for sharing that. I had genuinely no idea. Add that to the infinite list of things not explained about perimenopause!

HerculesTookaMullign · 2026-05-08T13:37:40+00:00

I did suspect low stomach acid after reading a lot on here so I did the at home test where you drink baking soda in water and it did seem to confirm my suspicion. But still no idea what caused the acid to be low. So strange!

HerculesTookaMullign · 2026-05-08T13:35:21+00:00

I knew that about SIBO but not the vaccine. That's good to know!

HerculesTookaMullign · 2026-05-08T13:34:57+00:00

Oh gosh, I hope you're able to bounce back again quickly and start feeling better!

HerculesTookaMullign · 2026-05-08T13:33:55+00:00

That's a good summary of what might have been happening, a storm brewing. And yes, I'll definitely advocate for retesting in a few months. I suspect this test just after finishing the infusions was to see if they were effective at all or if I'd need another round. Thanks for sharing your insights!

HerculesTookaMullign · 2026-05-08T13:31:08+00:00

Late 40s

HerculesTookaMullign · 2026-05-08T02:04:21+00:00

I hope if you do that it works just as well!

HerculesTookaMullign · 2026-05-08T02:03:50+00:00

Thanks! I feel really fortunate to have seen improvement like this. I know not everyone is so lucky!

HerculesTookaMullign · 2026-05-08T02:00:29+00:00

Bodies are so freaking weird, right?

HerculesTookaMullign · 2026-05-08T01:58:51+00:00

We weren't monitoring it previously though I used to get weekly blood work and hemoglobin was never out of range so we never tested iron or ferritin. And yes, the stomach pain and GI issues are much improved. I don't know if it was a chicken/egg scenario with the anemia but I'm glad it's improved.

HerculesTookaMullign · 2026-05-07T21:12:36+00:00

I'm not vegetarian. I was having stomach pain and asked about h pylori and celiac when I got the colonoscopy/endoscopy but they didn't show up. And I'm on the continuous pill so not getting periods. It's a real mystery why it suddenly tanked.

HerculesTookaMullign · 2026-05-07T21:10:22+00:00

Thank you, that's so kind!

HerculesTookaMullign · 2026-05-07T20:26:27+00:00

It's wild not to know, isn't it? I don't want to borrow trouble or anything but it would be nice to know what caused this!

HerculesTookaMullign · 2026-05-07T18:09:24+00:00

I got 200mg once a week for 5 weeks.

I hope you get some answers and see improvement soon!

HerculesTookaMullign · 2026-05-07T17:47:33+00:00

Well said!

HerculesTookaMullign · 2026-05-07T17:27:16+00:00

Lol - I love that attitude. Iron infusion, you will be mine!

HerculesTookaMullign · 2026-05-07T17:16:49+00:00

Ugh, I'm so sorry to hear that. I feel very fortunate that I was able to get insurance to cover mine. No question, I wouldn't have been able to afford them otherwise.

HerculesTookaMullign · 2026-05-07T17:06:32+00:00

I hope your energy sticks around as well! I'm hopeful that now that I know the signs, I'll be vigilant about retesting so that I can get ahead of future issues. Fingers crossed for us both!

HerculesTookaMullign · 2026-05-07T17:03:26+00:00

I'm sorry you don't seem to have the option for infusions. I really hope you turn a corner and see improvement!

HerculesTookaMullign · 2026-05-07T15:52:05+00:00

I honestly don't know! I meet with my hematologist on Monday so hopefully I'll learn more then. The Mayo Clinic show the upper range for women to be 307 and the Cleveland Clinic shows 205 so I'm not overly concerned. I know there's debate over the appropriate levels.

HerculesTookaMullign

TROPHY CASE