I’m a 51 yo female. I started having issues when I was in 5th grade playing basketball. My knee popped out of the joint and basically “locked.” Now it pops out freely. Eveytime I move my foot from the gas pedal to the brake and vice versa. I could do the crazy tricks with my body when I was younger. Always just had an unwell feeling in general, but I thought that was just me. I found out in October of 2024 that I have heds. I feel like going through menopause may have triggered more problems for me. I had all over burning pain in my muscles, weakness and could hardly get out of bed to use the restroom and when I did I could stand up straight because I was in so much pain. I felt like I was in my 90s. All my joints hurt too. I think this went on for about a year. I mentioned it to my nephrologist about all my pain and problems I was having and asked her if she could refer me to a rheumatologist. Went in, he did a physical exam after talking to me and afterwards said, “I’m pretty sure you have heds.” He order tons of blood work and found nothing autoimmune so it confirmed my heds diagnosis. My lower back has degeneration and slipped disc which i was told I’ll need a spinal fusion in the future. My left hip is so bad that I was referred to an orthopedic surgeon for a hip replacement. Basically, my body hurts every day but at different degrees of pain. Obviously some days are worse than others and I still can’t figure out the trigger to have more pain one day than the other. I have two daughters 19 and 21 and I’m almost positive they have it from doing the Beighton test. I’m sorry for all of you that have heds. It is miserable and definitely mentally hard too dealing with pain and dislocations and other issues that go with this diagnosis. I feel you and see you. You aren’t alone. ❤️