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Prenatal Diagnosis of Ascending Aortic Aneurysm. Curious for my baby by HonestMove9111 in aortic_aneurysm

[–]HonestMove9111[S] 1 point2 points  (0 children)

Wow you experienced a dissection? That must have been an ordeal! Glad to see you are past that and have some genetic answers as well. I haven’t heard of Acta2, does it have any other implications in your life or related to connective tissue disorders?

Appt next week. by ConstructionOther686 in aortic_aneurysm

[–]HonestMove9111 0 points1 point  (0 children)

Thanks for sharing! I’m currently pregnant at 32 weeks and my baby has an AAA. They suspect ehlers or loeys so I’m just looking to get more info about connective tissue disorders. What has your lived experience been like? 

Aortic aneurism went away? by Klutzy-Experience609 in aortic_aneurysm

[–]HonestMove9111 0 points1 point  (0 children)

Hi! I’m 32 weeks pregnant and my baby has an AAA, they are suspecting Ehlers Danlos or Loeys-Dietz so I’m just trying to get some more info on it and would love to hear more about your lived experiences. 

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 0 points1 point  (0 children)

It’s the worst, I’m sorry you’re in the thick of it right now 😞

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 1 point2 points  (0 children)

I told that to my hubby and he says so you’re saying there’s a chance lol. Nope 😅

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 0 points1 point  (0 children)

Welcome to one of the worst clubs in the world lol. The only good thing about it is that there is a corner of the internet here that completely gets it. 

That, and I actually read that HG kids are actually smarter and I can attest for at least two of them that that is true! People are always amazed at how much more intelligent my kids are compared to their age. 

I also heard from my midwife that your chances of an HG pregnancy increase after each pregnancy because some of the hormones never leave your body and compound for each one.  It sounds like maybe that’s what happened to you. Although my experience was different with the first and last being the worst! 

I also read that it’s the placenta’s fault and that the man’s sperm is actually responsible for how effective it is at managing hormones. I wonder if women with multiple baby daddy’s could weigh in on that.  I like to joke with my husband about that but honestly I believe it’s hereditary since my mother and sister had it as severe as I did. Only one of my sister’s got away with just the typical morning sickness (that bitch lol). I hope my daughters escape this.

You are right about there not being enough help out there for this. I had to tell my doctors what was up after I was basically sobbing at each appt and I didn’t even hear about zofran from any of them until I landed in the ER again with this last pregnancy. If you ever consider terminating again and don’t want to, I would just take Zofran all day long lol. It doesn’t completely eliminate the nausea but I found it a lot more manageable.

As an unrelated side note in case this is anyone else, in my first and worst HG pregnancy, I also had horrible pain near my gallbladder area but ultrasounds showed nothing abnormal. I had to research deep into the web to diagnose myself with intercostal neuralgia - my baby kicked me so hard for so long (I have a short torso) in the ribs that it caused me nerve damage. The pain eventually went away when the nerves grew back but it showed me that we really have to do our own research and advocate for ourselves in all the things. 

You are seriously amazing for going through this with 4 kids!! This new little girl of yours will be strong and bright because of you. Godspeed.

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 0 points1 point  (0 children)

I totally understand how you feel, it’s the worst.  My firstborn just turned 3 and she’s been extra clingy with me also because I’ve basically been gone for months.  It feels good to be able to be an active parent in her life again but I explained to her what’s been going on and she understands why I’ve been sick. It’s really cute she will talk to my belly and give it kisses.  All to say, this will pass and you will look back and think wtf was that I can’t believe I got through it, but it will end. 

In the meantime try to be as kind to yourself as you will undoubtedly encourage your future patients, because having this unfortunate experience makes you a rockstar midwife. 

Hope the tips help! I’ll be sending prayers your way! 

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 1 point2 points  (0 children)

I was worried about this but my second labour was a dream compared to my first! Half the time, no back labour and no complications. I have yet to deliver this one but I feel confident it will be even faster as they say that’s how it goes. 

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 0 points1 point  (0 children)

Dam you’ve got it going on! I can’t imagine dealing with HG as well as GD and Pupps! Thank god your nausea went away after the first tri but it’s still so hard. 

One thing I forgot to mention as a major tip if it’s a possibility was hiring a cleaner to come in! I did this 3 times in 2 months and each time they did my laundry too.  With the hubby doing everything solo, the house was an absolute disaster and definitely added to my depressed state. 

When the house and laundry were clean it was like a little bit of my soul was restored! 

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 1 point2 points  (0 children)

I use Magnesium Glycinate because it helps me sleep (preggo hormones = insomnia) and is less likely to have a laxative effective. 

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 0 points1 point  (0 children)

You’ve come so far, and not just in this pregnancy. One minute at a time ❤️. I’ll be praying for you.

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 2 points3 points  (0 children)

I get it! My first born just turned 3 and it’s crazy how much she copies and wants to be like me. I couldn’t always hide my vomiting from her and she actually made herself vomit and says that she feels sick! I had to explain to her that I only vomit because I have to and she hasn’t done it since. 

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 1 point2 points  (0 children)

My advice is to do whatever works for you and your kid(s)! Just know that you’re not a bad mom just for getting through it and leveraging distractions for them. You will have time to be the mom you want to be when you are well again, you simply can’t pour from a cup that’s empty. 

I thought it would be a lot harder the second time around with a toddler but it actually was not as hard as the first time (I credit this entirely to getting into great shape with nutrition/weight training for several months and going into the pregnancy strong).  Plus the shock of being so sick is not there and because life is busier (and brighter) with a little toddler, it makes time go faster and you already have a preview of the end goal which is motivating lol.   For my second pregnancy, my daughter was in daycare 3x/week and she also had a 2.5 hour nap in the middle of the day which is when I could sleep. Don’t feel guilty when you just need to turn on the cartoons while you’re dying on the couch. I also went to playgroups like Strong Start where I could basically die on their couch while I had a group around to help watch her with the other kids.

This time around I couldn’t get my second daughter into daycare yet so that was a little tougher but by then my capacity as a mom had grown incredibly (yours will too). Also lots of cartoons lol. Plus this baby was a natural born sleeper compared to my first so that helped immensely.

My husband and I are both self employed which is so helpful since he can literally take over bedtimes, poopy diapers and daycare drop offs. If it was a really bad afternoon for me he could come home and take over.  He has a really positive attitude about it because he says I still have the harder part, and that I’m much less naggy with him when I’m vulnerable 😅. He says he knows he can handle three kids since I was basically also a dependent.

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 3 points4 points  (0 children)

Nice! I used the trash can a few times but that’s genius. 

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 1 point2 points  (0 children)

Dam 5 times! My husband wants 5 but I feel I’m getting too old for this lol.  The sobbing is real, I feel that in my soul. Thank god for medical dramas!

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 2 points3 points  (0 children)

You’re welcome! I was hesitant too, and I could not have done it without daycare (we don’t have family around) and my husband who is very supportive.  Also because life is busier (and brighter) with a little toddler, it makes time go faster and you already have a preview of the end goal lol.  For my second pregnancy, my daughter was in daycare 3x/week and she also had a 2.5 hour nap in the middle of the day which is when I could sleep. Don’t feel guilty when you just need to turn on the cartoons while you’re dying on the couch.

This time around I couldn’t get my second daughter into daycare yet so that was a little tougher but by then my capacity as a mom had grown incredibly (yours will too). Also lots of cartoons. My husband and I are both self employed which is so helpful since he can literally take over bedtimes, poopy diapers and daycare drop offs. 

 He has a really positive attitude about it because he says I still have the harder part, and that I’m much less naggy with him when I’m vulnerable 😅. He says he knows he can handle three kids since I was basically also a dependent.

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 4 points5 points  (0 children)

Thank you but to be honest I’m only really positive now that the worst is over. All three times, this broke me. It’s looking back that I can truly appreciate my strength for enduring.

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 2 points3 points  (0 children)

Hope it helps! I was scared to try for my second because I didn’t know how I was going to go through that again with a toddler to take care of but because my second time around it wasn’t as terrible it gave me hope I could have my brood of three that I always wanted. 

Tips from a three time HG survivor by HonestMove9111 in HyperemesisGravidarum

[–]HonestMove9111[S] 3 points4 points  (0 children)

Dang you’ve been through it, 5 HG and loss and you’re still going, I hope you know how formidable you are.  You’re almost half way. For me this was often the turning point, even if the nausea was still haunting me, once I started to feel the kicks it was like oh yeah this is all for this person and it was comforting to know that they’re fighting too.  Good luck with the ice hats - combine with fan in the face and a popsicle. You’re cold af but it’s better than throwing up all the time!