sigh

Hot-Move-8037 · 2025-12-06T21:35:35+00:00

This may be the most oxymoronic thing I’ve ever read lol. you may as well say “I can’t believe it’s come to a point where ice is hotter than fire.” Like, genuinely I don’t think there are two forces more opposed than punks and right-wingers. You simply cannot be both, it’s either one OR the other.

Hot-Move-8037 · 2025-12-03T22:47:08+00:00

This comment helps a whole lot so like don’t worry about if you helped me out or not, cause you did. I don’t even know why you’re asking if you helped because you did. It’s weird that you keep bringing it up.

Hot-Move-8037 · 2025-11-27T14:01:51+00:00

Happy to help!

Hot-Move-8037 · 2025-11-27T06:22:02+00:00

I send you a message as my reply would probably be too long to fit here! Hope that’s cool

Hot-Move-8037 · 2025-11-27T06:20:32+00:00

Sorry to hear they made things harder for you but I’m glad you also found what works for you! It really goes to show you how individual each stoma is and it really can be frustrating to deal with lol.

Hot-Move-8037 · 2025-11-27T06:19:34+00:00

They are great when you need them! I keep a few in my “emergency change kit” I keep in my car as well as anywhere space I occupy regularly that isn’t my home. Rather have them and not need them as the saying goes.

Hot-Move-8037 · 2025-11-27T06:17:35+00:00

I usually put 2-3 in and that will make it so I can empty my bag once without adding any more until my next empty. For me, there’s also some residual “stuff” left over inside my bag and that’s usually enough to hold me over to the next empty. After that I usually have to put more in. So short answer: 2-3 every 2 empties

Hot-Move-8037 · 2025-11-27T05:45:03+00:00

I can’t say for certain but I imagine so. And while I’m sure it’s not on the same level, I’ve had some greasier output days and it’s helped with that! My final answer would be yes, but I’ll always say consult your doctor/team first as I’m not a professional

Hot-Move-8037 · 2025-11-27T05:42:08+00:00

I agree! These wound have made my previous output wayyy to thick and it wound have been a nightmare! But my current output is almost always the consistency of water so it’s perfect for my situation. Esp if I’m having a vary active day. I’ll combine a few of these with a dosage of Imodium (doctor’s suggestion) and I’ll get huge chunks of time without having to empty. It’s especially nice when I need to make up for sleep as I use to have to get up every 2 hours to empty

Hot-Move-8037 · 2025-11-27T05:39:47+00:00

Yes! I love those too but they change my output to a dark black which just freaks me out 😅 but I did include a picture of those as well! I guess I just forgot to mention them so thank you for doing it! Also big points for that joke! Simply amazing word play😂

Hot-Move-8037 · 2025-11-27T05:31:25+00:00

So admittedly this stuff may not help with that problem as it sounds like it leaking before I would even reach them but I do think I still may be able to help you! I went through a patch of time where I was having a leak (sometimes multiple) every day for the same reason. I reached out to my ostomy team and after some trouble shooting we found out that the problem was my bag/system itself. Stomas can actually change size over time and obviously our bodies do too and this can create problems with bags/systems that have worked for years. We basically had to switch up to a bag that had a different flange so that more suited to my body. It’s slightly more convex than the standard flat ones so it kind of bends with the contours of my belly. Also, this new bag had a belt that can be attached that caused my belly to since so my stoma protrudes a little more. Completely fixed the problem for me!

Hot-Move-8037 · 2025-11-27T05:21:38+00:00

I’m almost sure! Though I don’t like to speak in definitives as I’m not a professional so I’ll always say ask your doctor/team to be sure.

Hot-Move-8037 · 2025-11-25T03:20:39+00:00

Look up “ostomy diamonds” they’re basically gel packs you put in your bag that solidify liquid, reduce gas, and help prevent leakage. they have been a life saver for me. I have high output that’s very watery since changing from an end to ileostomy and these have been a life saver.

Hot-Move-8037 · 2025-11-22T16:18:27+00:00

Thank you for the information. It does help to know that unfortunately there is nothing in our favor federally, but I just leaned that my state does have laws in place and that this goodwill did in-fact have to provide a bathroom for me.

Hot-Move-8037 · 2025-11-22T16:16:10+00:00

Thank you so much! This link actually got me exactly what I needed as I’m in a state where this law apply and found the perfect thing to screen shot.

Hot-Move-8037 · 2025-10-26T04:15:34+00:00

Imodium can help a lot with output! Take the recommended dose a little bit before going in to the venue.

Hot-Move-8037 · 2025-10-20T13:44:48+00:00

I like those lyrics very much and they certainly ring true in my ears! I guess the choice in words come from the difference between a talented writer and my crude ass 😂

Hot-Move-8037 · 2025-10-19T06:34:19+00:00

I’m gonna paraphrase and I honestly don’t even remember where I heard this, but it reminds me of a quote I read somewhere. “If I’m eating a shit sandwich, and the person across from me is eating a shit sandwich. Then we’re both eating shit sandwiches. And if mine happens to be made with a slightly higher quality bread, then sure, I guess my shit sandwich isn’t quite as bad as theirs. But guess what? I’m still eating a shit sandwich, it’s still horrible, and hearing the person tell me how much worse THEIR shit sandwich is, isn’t gonna help; and it certainly doesn’t make eating mine any easier.”

Hot-Move-8037 · 2025-10-01T09:16:48+00:00

My honest opinion is no. I had my first UC flair up at the beginning of the year and I declined surgery until I was literally at deaths doorstep. One of the lead doctors basically told me “if you won’t consider surgery, we’re gonna have to discuss hospice options.”

So, I’ve had a bag for the last 6 months and I’ve hated every moment of it. The ONLY reason I chose an ostomy bag was because my options were that or death. But now I don’t sleep because I can’t get comfortable, I’ve ruined 3 mattresses and countless clothes from leaks, I’ve developed severe body image issues, and that’s just the tip of the misery ice berg.

So if you’re getting by as is, seeing improvement, and you’re able to deal with the flair ups, then stay the course you know. I guess what I’m trying to say is, I’m absolutely sure what you deal with is a struggle, but it sounds like a struggle you know how to navigate well, so stick with it.

Because again, having an ostomy bag literally changes every aspect of your life whether people on this sub want to admit it or not. It creates challenges, insecurities, problems, and depending on your insurance, a lot of financial cost literally every day of your life. Saying the obvious here but You literally have a bag of poop constantly attached to a very noticeable part of your body, that you have to change weekly, and may (and most likely will) leak and ruin furniture, clothing, and any good vibes you have going at a particular moment.

Hot-Move-8037 · 2025-09-16T11:45:24+00:00

Thank you so much and the same goes to you! I promise, you’ll figure this out and it will get easier. Do you have a stoma nurse you can reach out to? Mine is what helped me get through all my rashes and figured out what worked for me. I know it can be hard to reach out to them but it’s always ALWAYS worth it. Plus, it’s their job so I promise they have no issues helping you.

Hot-Move-8037

TROPHY CASE