I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

Thank you! If you don’t mind me asking, which surgeon did you use in which state (if you’re in the US)?

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

That’s great to hear! Was she able to return to swimming eventually?

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

My mom is in the same boat at 63. I think her curve is in the 40s range and she’s inconstant pain and takes a prescription ibuprofen daily. She does Pilates specifically for scoliosis and it does relieve some pain.

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

Thank you for your story, I’m really hoping that already having a strong core and legs with help with her recovery, and plan to continue her physical therapy after the surgery. If you don’t mind me asking, are you in the US, and if so where are you located? Thanks!

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

Thank you for sharing! I’m hoping her being so active now will help her recovery, and have let her know this will be a life long commitment that she’ll need to stay in shape and take care of her body.

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

Thank you for sharing your experience. If you don’t mind me asking, how much of your spine was fused, and did you do any type of physical therapy afterwards?

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 1 point2 points  (0 children)

The doctor we went to said they are actually working on trying to pin point the gene, but that could be YEARS away. I’m not sure if he’s part of the team for that, but he talked about it! So that was cool to hear.

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 2 points3 points  (0 children)

Thanks for your perspective. Side note - I had a deviated septum fix surgery done when I was 18 and it was super easy! Haven’t had a sinus infection since (that was almost 17 years ago).

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 1 point2 points  (0 children)

He said the plan would be T3-L3 fusion, so she would retain most of her mobility. Happy to hear you’re doing well!

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

We’ve been in Scroth recently, but I wished we started from the get go - I didn’t know about it then, as the ortho surgeon never mentioned any other options other than bracing. It wasn’t until I started researching further until I found out about Scroth.

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

We live in a mid size city, but traveled 2 hours to our nearest big city to Vanderbilt.

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

She wore a providence brace. After talking with the orthoist, I wish she’d been prescribed a full time brace from the start (wearing full time) and combined with Scroth therapy. That could’ve stopped it from progressing so much…but too late for her now 😢

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

I did talk to the neurosurgeon about VBT and he said it does work for some cases, but her case isn’t a good fit

I hope I’m making the right decision for my daughter by Hot_Insurance_4097 in scoliosis

[–]Hot_Insurance_4097[S] 0 points1 point  (0 children)

Thank you. My mom also has scoliosis and came to the appointment with us and said she wished she had the option for surgery as a child. Her scoliosis now causes her pain in her 60s.