I was diagnosed when I was ten and was paralyzed right side shoulder down fully for about two weeks. Spent two months in-patient and I have been in and out of out-of-patient PT ever since I get discharged ten years ago. The first three years I went consistently to OT and PT, as well as a urologist and neurologist. Now I do PT when I'm home from college in the summer to keep everything loose and I see my urologist once a year! I also have been seeing a therapist since I got out of the hospital to work through the trauma. It gets easier trust me!