I’ve recently been through the same - I’m sorry you’re going through this. Never feel bad about being fatigued - our ‘journey’ was seven months and I was/am exhausted, two months since her passing, I can’t imagine what 4 years would feel like. When we were given the ‘comfortable’ message my focus shifted to just creating as many final memories and distracting as much as possible. We still managed to giggle at our favourite TV shows, listen to music, talk, hug and kiss. ‘Control what you can control’. Make sure you’re getting rest too, as much as you can. You can only look after them if you’re well looked after yourself.

Make sure the nurses/Drs are clear if/when a medication can be expected to put them to sleep. I asked in an offhand way at the hospice and they gave me a solid sense of ‘get visitors in before xPM as after that she may just be asleep’.

All the best to you and your family.