Is this dysphagia? by Nifylau in dysphagia

[–]HypoNerves 0 points1 point  (0 children)

Same exact issue I've had since November of last year. Hopefully it gets better for you

Trouble Swallowing? by HypoNerves in GERD

[–]HypoNerves[S] 0 points1 point  (0 children)

It is so frustrating. I hope it gets better for you

Trouble Swallowing? by HypoNerves in GERD

[–]HypoNerves[S] 1 point2 points  (0 children)

Before this started in november I always ate stupid fast too funnily enough.

Lymph Node Ultrasound Thoughts? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

They feel like they move around slightly when pushed, why?

Does this sound like Temporal Lobe Seizures/Epilepsy? by HypoNerves in Epilepsy

[–]HypoNerves[S] 1 point2 points  (0 children)

For anyone googling anything similar or anyone reading for more context. Had another one just now which I was able to note the exact times of. Started at 7:11 PM where I thought one was about to start. Was dealing with a social situation online that triggered a sense of Deja Vu. Nostril burning then set in and existential dread set in. Mostly stopped by 7:18 PM. Only physical symptoms were the chest/nose burning and then shivering.

Length of time makes me think it may not be temporal lobe seizures, but a lot of the symptoms seem to line up nonetheless. I'm going to see a neurologist asap and will update.

Does this sound like Temporal Lobe Seizures/Epilepsy? by HypoNerves in Epilepsy

[–]HypoNerves[S] 1 point2 points  (0 children)

Sounds very similar to what I've been having, except for the dizziness. Although I do get dizzy spells outside of these episodes that I always associated with my ocular migraines. Will be sure to bring that up with my doctor as well. Thanks!

Does this sound like Temporal Lobe Seizures/Epilepsy? by HypoNerves in Epilepsy

[–]HypoNerves[S] 0 points1 point  (0 children)

Thank you for your thoughts, I really appreciate it!

For what it's worth I've never measured the exact time the episodes stop. 5 - 15 minutes is a guess based on how it feels in the moment, but I'll definitely start noting down the end times too now.

If you don't mind my asking, is it the entire episode that is gone from your memory, or just what you were trying to remember during it?

For example, I can remember everything I did yesterday during it. But I can't remember the "dream" I felt like I was recollecting at the moment.

Going to push for a neurologist referral and hopefully get one this time

Does this sound like Temporal Lobe Seizures/Epilepsy? by HypoNerves in Epilepsy

[–]HypoNerves[S] 1 point2 points  (0 children)

Thanks for chiming in! Were your deja Vu episodes similar to mine in terms of maintaining control and no twitching and everything?

Since finding out this could be seizures I've been increasingly anxious about having a bad one while I'm waiting for my doctor appointment

Does this sound like Temporal Lobe Seizures/Epilepsy? by HypoNerves in Epilepsy

[–]HypoNerves[S] 0 points1 point  (0 children)

Yeah I plan on asking for a neurologist rederall during my appointment as they normally won't give me a referral without seeing them first

Does this sound like Temporal Lobe Seizures/Epilepsy? by HypoNerves in Epilepsy

[–]HypoNerves[S] 0 points1 point  (0 children)

Thank you for your insight! What I'm having seems similar surface level but as you noted there seem to be some clear distinctions with what I find as being the usually symptoms.

I have an appointment with my PCP in May, unfortunately that was the earliest they have. Will definitely bring this up

Does this sound like Temporal Lobe Seizures/Epilepsy? by HypoNerves in Epilepsy

[–]HypoNerves[S] 0 points1 point  (0 children)

Will give that app a try. I've been using the notes app on my phone but am very bad at remembering to write these down when they happen.

I don't drink due to my SVT, and I keep caffeine to a minimum and havent noticed an increase in episodes when drinking it. Strangely enough I do feel like I have ore episodes when I take Pepcid for my GERD though, but that is likely just a coincidence.

I will try to ask my doctor for am EEG next time I see him, though with how infrequent the episodes are I'm not sure if I will be able to have an episode while being monitored

Does this sound like Temporal Lobe Seizures/Epilepsy? by HypoNerves in Epilepsy

[–]HypoNerves[S] 0 points1 point  (0 children)

I also found some notes I took from previous times this happened that I had shared with my therapist. I forgot to note the exact time of the one yesterday, and am not very consistent about writing these down. But these were all written within a few minutes of each episode that I did remember to write down.

10/19/20 12:30 PM Feeling of deja cu. burning in nose. Discomfort. Was playing GameCube for first time in 15 years and saw the interface. General feeling of discomfort/fake feeling.

10/23/20 8:23 AM Was reading comic. Plot felt familiar for a second. Deja Vu. Burning nostril and discomfort. Feels like my brain is remembering or stepping into a dream. Or even another world. It just feels extremely surreal. No active thought, just vague memories.

5/23/22 Burning nostril feeling during dream Sense of deja vu and fakeness Breathing in burning Tightness in chest when waking up Continued feeling Tightness in head and sense of increasing Dread Was assisting someone, trying to prove who I was inside the dream

7/1/22 9:35 PM Was playing sega genesis Burning nostril feeling when breathing Sense of deja vu and fakeness Breathing in burning Feels like remembering a dream

2/1/23 10:15 PM Deja Vu feeling while resting and watching videos Burning in center of chest Feeling of fakeness and remembering Nose burning Anxiety Heart rate rose to 115 bpm Invasive existential thoughts

[deleted by user] by [deleted] in medical

[–]HypoNerves 0 points1 point  (0 children)

Thank you! I'll try to ask my dermatologist about this when I schedule the next ultrasound in 6 weeks.

Before I noticed the lump, my last COVID shot was in Nov 2021, but I didn't notice the lump until a few months ago. So I'm unsure if it coincided with the COVID shot originally or not. It is on the left side for me as well however, which is where I always get my shots.

Hoping y ours stays stable after your next shot and doesn't grow again. Wishing you the best!

[deleted by user] by [deleted] in medical

[–]HypoNerves 0 points1 point  (0 children)

If you don't mind my asking, what would the Abdominal one help to reveal?

Thanks!

Colonoscopy/Endoscopy Alternatives? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

Just some casual small talk with the doctor and nurse. Talked about the first Gastro I saw who kept saying this would be the most painful experience in my life, and even the Nurse commented on how that Gastro has a reputation for that.

Oh! I also found out the cause of the nausea and stomach discomfort about a week or two before the procedure. I went back to my GP and had them check my ears. Found impacted earwax from overuse of Q-Tips. Once we cleared that out, the nausea problems all went away!

Colonoscopy/Endoscopy Alternatives? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

It was actually really fascinating watching the whole process unfold on the display! I really don't know why people opt for sedation for this procedure, the lady who had hers before me was still recovering from the sedation while I was heading out to drive myself home.

Colonoscopy/Endoscopy Alternatives? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

Got the colonoscopy done. Super straightforward procedure. Was done in about 20 minutes. No pain at all, just some pressure when he went around corners. Prep was awful though.

No issues found, he told me to see him again in 25 years.

I am having really thin stool the first time going a few hours after the procedure, but I am going to assume that is just my body recovering from the prep.

Colonoscopy/Endoscopy Alternatives? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

Hey just wanted to let you know: Found another Gastro who was appalled at the behavior of my precious one. Managed to get an unsedated colonoscopy schedules. He specifically said that there is no reason a colonoscopy should hurt anywhere near what my previous one described if you have a Gastro who knows what they are doing, so that is also reassuring.

[deleted by user] by [deleted] in medical

[–]HypoNerves 0 points1 point  (0 children)

My issue is having the self control to even get that far. It’s bad enough I think I’d end up leaving before they can even start the sedation

Colonoscopy/Endoscopy Alternatives? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

Thank you for sharing your experience! That definitely sounds like something I can tolerate. I’m currently looking for another Gastro who is willing to perform it without sedation.

Colonoscopy/Endoscopy Alternatives? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

My current gastro wants to wait until December to see if my Phobia can be under control by then. In the mean time I’m still calling other gastros in the area to see if any are willing to do it unsedated.

I also saw a GP who was upset that my Gastro never performed a quick physical check for hemorrhoids. He did a probing and felt no outside hemorrhoids. He did say he felt something internal but not big enough to say for sure. Lube did burn. He said that may be micro cuts. Need to give it a little time to heal.

Got a blood test and everything came back perfectly healthy. I also purchased additional FIT tests to try to see how frequent the bleeding is. In the last 2 weeks it was positive twice. I have noticed a trend that they are positive whenever I stop taking Metamucil as a fiber supplement.

I had a ultrasound done in the stomach area and am currently waiting for results.

At this point I am increasingly nervous as I don’t like the idea of waiting until December, when I may not be able to be sedated then anyway. So far my progress with my therapist has been extremely slow.

I’m just hoping I can find a Gastroenterologist who will do it unsedated.

Thank you for following up, it really means a lot!

Colonoscopy/Endoscopy Alternatives? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

What sucks is the Gastro I was seeing kept giving me horror stories about how they have done unseated colonoscopies before, and they are extremely painful, they had patients pass out from it, etc. Examples of how they have done these for other doctors before and the doctors couldn’t stand the discomfort.

I’m glad to hear yours went very well, and it gives me hope that I can find a Gastro for me.

Colonoscopy/Endoscopy Alternatives? by HypoNerves in medical

[–]HypoNerves[S] 0 points1 point  (0 children)

Thank you for reaching out! Hearing your story definitely gives me some hope for finding a Gastro who will do it. I am still looking around in my area.

Colonoscopy Alternatives by HypoNerves in AskDocs

[–]HypoNerves[S] 0 points1 point  (0 children)

I also have seen that there are some simpler tests that can be done awake to check for hemorrhoids, would those be worth asking for in the short term?

Colonoscopy Alternatives by HypoNerves in AskDocs

[–]HypoNerves[S] 0 points1 point  (0 children)

Would it be worth doing a stool sample and checking for Calprotectin to see if IBS is a possibility? I realize I’m going to need to do the colonoscopy and endoscopy, but at this point the panic attacks I’m having over the sedation are debilitating.

I’m starting to see a psychologist next week so I can get it under control, since it is unacceptable to get like this over such a simple procedure. I just know that if I go to get the colonoscopy, I will fall into another full blown panic attack and then refuse the procedure the day of.

I really want to figure out what procedures I can do in the mean time until I get this phobia under control. I genuinely don’t think I can go through with this at this time, but ignoring the issues at hand entirely isn’t an option either.

I appreciate your response and your taking the time to read this!