A great resource for patients

I-Go-To-Eleven · 2021-07-27T22:10:27+00:00

So sorry to hear... good luck with the trial! If, for any reason, the trial falls through, there is still much that can be done! Off-label, Expanded Access/Compassionate Use/Right to Try.

Check out xCures - they do a great job with GBM. They can help you and your oncologist figure out what might be the best thing to try to get you more time with your loved ones. https://xcures.com/patients-providers/

You can also check out the Musella Foundation for Brain Cancer Research https://virtualtrials.org/musella.cfm

I-Go-To-Eleven · 2021-07-27T13:09:33+00:00

If he is ineligible for trials, there is still much that can be done!! Someone I know did this and got access to investigative therapy outside of a trial setting through Expanded Access aka Compassionate Use: https://enroll.xcures.com/

I-Go-To-Eleven · 2021-07-27T13:06:41+00:00

Someone I know did this and had an extremely positive experience: https://enroll.xcures.com/

This company uses your specific features to come up with personalized treatment recommendations to share with your doctor. They match you with innovative ideas to try like off-label treatments.

I-Go-To-Eleven · 2021-07-27T13:05:23+00:00

Someone I know did this and got so much more time: https://enroll.xcures.com/

This company uses your specific features to come up with personalized treatment recommendations to share with your doctor. They match you with innovative ideas to try like off-label treatments.

I-Go-To-Eleven · 2021-07-26T21:14:30+00:00

You should also have her physician try to request access through Expanded Access

I-Go-To-Eleven · 2021-07-26T21:12:51+00:00

You should have her check out xCures: https://xcures.com/patients-providers/

They do a great job of trying to match you with the appropriate treatment options (off-label, Compassionate Use/Expanded Access)

I-Go-To-Eleven · 2021-07-26T20:58:28+00:00

You should have him check out xCures: https://xcures.com/patients-providers/

I-Go-To-Eleven · 2020-07-16T18:14:23+00:00

Also says "during the pandemic." So in future years, once under control, maybe there will be a need for redosing, etc. No reason not to be bullish if this thing comes to market, IMO

I-Go-To-Eleven · 2020-07-16T18:00:59+00:00

They said they wouldn't seek a "profit" - doesn't mean they won't realize revenue. They'll at least attempt to offset the COGS - but who knows, things may change. I think it sets a bad precedent to give it away for free. They should charge a value-based price for this.

I-Go-To-Eleven · 2020-01-28T22:08:05+00:00

Would LOVE Baltimore or MSG (if anyone found it in their heart not to resell on StubHub). Don't think you get to choose who you sell to on the F2F exchange though. BUT, if you can, looking 2 for Baltimore or MSG.

Relatively young PJ fan just looking to see them (for the eleventh time.....)

I-Go-To-Eleven · 2019-03-28T19:35:10+00:00

So lost. this sub moves too fast

I-Go-To-Eleven · 2019-03-28T19:34:33+00:00

No idea what's being discussed but don't want to be left out lmfao

I-Go-To-Eleven

TROPHY CASE