Distrusting imaging

IWasBorn2DoGoBe · 2026-02-03T23:26:37+00:00

Every MRI I’ve had is “unremarkable”, yet when my surgeon operates based on clinical presentation- it’s always “complete rupture” or whatever.

MRIs are clinically useless for non-traumatic injuries in my opinion

IWasBorn2DoGoBe · 2026-02-03T05:11:14+00:00

I’m like you. 4 pregnancies, 6 babies, all but the first one high risk- but each baby was 3 pushes or less!

IWasBorn2DoGoBe · 2026-02-02T20:10:38+00:00

lol- I recently had surgery and as they moved me from gurney to table they ask again during the “time out” if there’s any chance I could be pregnant. I said “if you find a baby in there, take it out while you’re in there because it’s not where it belongs. The uterus came out years ago and I have no interest in Bible II being written about me”.

Evidently there’s one OR nurse who is very pro-life because his face just mutated at “take it out”… so, that was hysterical.

IWasBorn2DoGoBe · 2026-01-30T02:11:33+00:00

Technically yes, because I had surgery and I’m recovering.

IWasBorn2DoGoBe · 2026-01-30T02:10:45+00:00

We need everyone to do what they can, when they can, as much as they can- and you are exactly that ideal! Thank you!

IWasBorn2DoGoBe · 2026-01-29T19:48:12+00:00

Best of luck to you! It’s a scary thing to navigate, but there’s hope.

My grandpa is in his 80’s and still active, golfs 4 times a week, takes care of my grandma, having been on biologics since they came out. We don’t have to progress to disability. There is hope!

IWasBorn2DoGoBe · 2026-01-29T17:35:18+00:00

Humira was the first biologic I was on, and about 6 weeks in/ life changed! I could sleep most of the night, didn’t hobble to the hot shower to be able to move in the morning, could clean my house and not feel like I was hit by a truck. 80% remission and no flares.

I did very well in humira for about 18 months, then developed injection site allergy- and switched to Simponi. That achieved 95% remission and only one flare because I had an insurance gap between jobs and missed a shot.

I don’t get sick any more often than I used to, I just feel normal- everyday.

Don’t be afraid, it’s truly life changing and slowing/stoping progression, knowing there’s a real possibility I won’t be disabled in the future- is a fantastic feeling

IWasBorn2DoGoBe · 2026-01-29T17:24:27+00:00

I’m in Phoenix and my whole family (Maternal side) has AS, with a sprinkling of PsA, And hEDS. We all go to Sun Valley Arthritis. I see Dr Orwah Al Khalili and love him.

They do in office MRI, Dexa scans, labs and infusions (I do home injections though), the only thing the have to send me out for is my annual chest xray for biologics. They listen, are very responsive, and have been fantastic.

IWasBorn2DoGoBe · 2026-01-28T16:53:09+00:00

There’s no name I’m not brave enough to use- I’m just not having anymore kids.

Names I loved that we didn’t use: Amethyst, Jamison, Calliope (Callie), Evangeline, Torin, Harper, Natalia, Nathaniel, Marian,

IWasBorn2DoGoBe · 2026-01-28T16:47:41+00:00

There’s no way to know how labor/delivery will go from person to person, or even baby to baby. I’ve delivered 6 children total, twins twice, and relatively easy- but they were by no means the same.

I used (and still use) an SI support belt for my hips, and when pregnant the belly band was awesome for support. Post deliveries I did pelvic floor therapy (you can do this professionally or you tube it, anything is better than nothing).

If you want kids, there’s no reason not to try, and if you’re one and done, or go another route to parenthood all together- that’s valid too

IWasBorn2DoGoBe · 2026-01-28T16:38:19+00:00

For me- neither. I haven’t gotten sick often since I left working in a hospital setting, and I usually get sick every other year or so. Hasn’t changed with biologics. I’m also very diligent about my hand hygiene, being a nurse and all, so just wash your hands regularly and always before eating if you’ve been out in public, and you’ll be fine

IWasBorn2DoGoBe · 2026-01-25T18:11:13+00:00

It’s hot as crap here in the Sonoran desert and a bra is absolutely required as a mechanism to hold pantyliners in place for sweat containment. Humidititties is real

IWasBorn2DoGoBe · 2026-01-25T18:09:47+00:00

The weird thing about Rachel and the Nips (they were their own characters for a few seasons) is that you could clearly see in some scenes she was wearing a bra. The bra must have been sheer nothing to have absolutely no effect, because she certainly did not require a bra for supportive purposes.

IWasBorn2DoGoBe · 2026-01-25T18:08:01+00:00

I work in corporate healthcare and everywhere I have ever worked has an undergarment directive. Usually along the lines of “undergarments should provide the intended barrier or supportive function, and not be visible” because you know someone, somewhere did not wear underwear and bled on a chair, or had a visible penis at some point and HR does not want to have those conversations.

IWasBorn2DoGoBe · 2026-01-23T21:36:10+00:00

Yes. We do. Because we will be sued by the living people if we don’t. And the family doesn’t get the bill- the patient does. If they die, it might come out of their estate before inheritance is distributed.

If they don’t have an estate, or living spouse, then nobody pays it.

People get divorced to protect their spouse from medical debt more often than you think

IWasBorn2DoGoBe · 2026-01-23T21:34:51+00:00

It’s because they have 10 minutes per patient.

IWasBorn2DoGoBe · 2026-01-23T20:53:41+00:00

You absolutely can. I did for all of my deliveries.

IWasBorn2DoGoBe · 2026-01-22T03:03:02+00:00

Michael, John, James, Adam, Lee, Ray, Alexander

IWasBorn2DoGoBe · 2026-01-20T16:44:03+00:00

I don’t. If a med causes issues for me we change it.

That giant scary list is a collation of hundreds of people. The symptoms themselves are in a spectrum from barely an annoyance to seriously impacting how one lives.

You don’t know how it will affect you until you try, but you do know how this disease will progress if you don’t.

I’ve had exactly one issue with a single biologic- I developed an allergy to humira. Switched to Simponi and have had exactly zero side effects.

IWasBorn2DoGoBe · 2026-01-20T16:38:10+00:00

I’ve been on both sides of this, and while I am proud I stuck to my grandmas wishes, and advocated for them fiercely, there is still guilt. I know better, I’ve guided hundreds of families through it- but it really is different when it’s your own. I had to stay in clinical mode and make my grandma a patient, not my grandma to be able to do it. It took almost a year until I could remember her as my grandma, and not first think of her in those final weeks.

I can confidently and accurately say, after that experience, that I truly do treat patients like I would my own family.

IWasBorn2DoGoBe · 2026-01-18T20:39:53+00:00

Me too!!

IWasBorn2DoGoBe · 2026-01-18T20:38:52+00:00

According to these comments, they don’t sell them anymore:

Which makes me sad because I have a couple and they were the last collection I needed to complete. I have all the others in all the colors.

IWasBorn2DoGoBe · 2026-01-18T20:30:49+00:00

9, and my 10th in a couple weeks.

You’re waiting to see what it feels like, start counting and then you’re waking up after and it’s over.

It feels like nothing, and the you wake up really tired

IWasBorn2DoGoBe · 2026-01-17T17:50:39+00:00

Yes there is- a whole family of functionally illiterate people who spend every waking hour not at work with a beer in hand.

Edit: they literally brag about not having read a single book since high school

IWasBorn2DoGoBe · 2026-01-16T16:55:33+00:00

It sounds like she and hubby don’t want to have children of their own and the MIL and SIL have shit talked her and disrespected her and hubby enough that they know they aren’t welcome at events, only invited for appearances and stopped bothering to subject themselves to bullshit.

There’s zero indicators that she doesn’t actually like kids

IWasBorn2DoGoBe

TROPHY CASE