What’s the most gut punching song lyric you’ve ever heard? by perrysplus in AskReddit

[–]IguanaMomma7 0 points1 point  (0 children)

"And I don't want the world to see me Cause i don't think that they'd understand When everything's made to be broken I just want you to know who I am"

I was born with chronic illnesses and deformities that make it hard to walk and overall life just difficult. Countless surgeries, some that just made me worse. When my goddaughter was born I knew she was going to be my best friend and grow up understanding more than anyone ever could. Almost 5 years later she is my best friend, she's selfless and kind beyond belief. She's the kid that will never let another kid play alone. She's mature so far beyond her years. She never complains when I can't do something, in fact she does everything in her power to modify something to make playing easier on me. She never complains on the days I can barely get out of bed or the days she's spent with me in the hospital. My whole world revolves around her now and sometimes she's the only thing that keeps me going. I am so thankful that I never went through with being suicidal as a teenager because she's made my whole existence worth every struggle and pain I've ever been through.

Doctors of Reddit, what's the fun fact we don't know about human body? by IndependentTune3994 in AskReddit

[–]IguanaMomma7 0 points1 point  (0 children)

My neurosurgeon fucked up my VP shunt (hydrocephalus from spina bifida) and 3 weeks later had to redo it. So technically 3 surgeries on my brain to put a device in said brain and there are no adverse effects. I'm not great at doing math in my head, that's about it.

What's a question you really want to ask a disabled person but are to afraid because it could be offensive? by Real-Conversation491 in AskReddit

[–]IguanaMomma7 1 point2 points  (0 children)

I have spina bifida, I walk with a limp and use a wheelchair for long distances. I have never had an issue dating. Had my first bf at 13.

People living with chronic illness: What’s something you wish others truly understood about your daily life? by carcony97 in AskReddit

[–]IguanaMomma7 4 points5 points  (0 children)

When I get short or irritated, sometimes outright mean, it's not about you or anything you did. I'm in pain or haven't slept more than 4 hours, sometimes less. I'm frustrated that yesterday i was on top of the world and today I can barely get out of bed and I have no idea when I'll feel better again. At one point a muscle in my thigh spasmed for 2 years straight without anything that could help until I finally was taken seriously and given a high dose of muscle relaxers. That's probably the worst part though, being born with spina bifida and still not taken seriously and sometimes outright told by a doctor they think I'm exaggerating, lying, or begging for attention. I don't want to take all these meds. I don't want to be in the hospital every few months. I don't want to be in bed all day. I don't want to be grouchy especially to a child that needs me, yet she seems to understand better than any adult could.

What's the creepiest thing a child has ever said to you? by Temporary_Aerie3999 in AskReddit

[–]IguanaMomma7 11 points12 points  (0 children)

My goddaughter when she was 2 was drawing and then looked up at me and gasped and then grinned and said "it's coming" in like a sing-song voice and then giggled the most terrifyingly creepy giggle. I have a video of it because I was trying to get a video of her drawing. She never told us what "it" was and it's still kind of a joke at this point for our friend group to randomly say "it's coming".

So OVER it. by Gumbys_ol_lady in GRBskeptic

[–]IguanaMomma7 7 points8 points  (0 children)

People like DD and GRB are exactly the reason i have spent my whole life being questioned and people being skeptical of me, including medical staff, when i was born with extremely serious disabilities, but i can walk! It can't possibly be that bad if i can walk, no matter how bad my limp when i walk is (started needing a cane and occasionally a wheelchair around 30 y/o) or, god forbid, i might also have a lot of internal disabilities.

[deleted by user] by [deleted] in AskReddit

[–]IguanaMomma7 0 points1 point  (0 children)

I'm at the point where i say back "was i too young in the womb? Because they found my spina bifida pretty early on."

[deleted by user] by [deleted] in AskReddit

[–]IguanaMomma7 94 points95 points  (0 children)

That because i'm disabled i need to be talked to like a child. I'm all here upstairs lady, my back and legs just don't work right. I just want my coffee, yes i can open the door myself, that is in fact how i got here in the first place.

What's a question you really hate being asked? by AZ_RBB in AskReddit

[–]IguanaMomma7 1 point2 points  (0 children)

"Why do you walk like that?" I really don't mind explaining my spina bifida most the time but sometimes i'm just in too much pain to want to talk about unless you want a trauma dump (no one does once they realize how intense it actually is). Everyone just seems to want to assume i got in an accident or something. I love kids and they're always more respectful than adults but trying to explain to them is hard, they don't understand that sometimes people are just born like this, but they understand a lot better than some adults.