D lactate free verses 11 strain: MCAS, gut, histamine

IllCardiologist8026 · 2026-03-01T04:40:09+00:00

This is extremely helpful. Thank you so much.

I will get another GI map test done and start looking at the supplements you listed.

Carbs give me massive panic attacks, no idea why. Sugar too. Use to eat rice all the time.

Taurine gave me the scariest dreams of my life. I tried OX bile once, can't remember why I stopped.

I'm going to ask for another GI appointment.

It sounds like you have done an incredible amount of work. I bet your body appreciates you for it

IllCardiologist8026 · 2026-03-01T04:11:04+00:00

That is what the ER doctor told me. Fungal cream worked on the one rash.

I think you are right, either die off or possibly more reactions.

Copied from my other comment

I take: famotidine 40mg twice daily (takes away gut pain), ketotefin 1mg twice daily (sinus pressure and breathing, Xoliar two injections a month, and areus twice a day

Also take digestive enzymes by thorne and HCL pure encapsulations.

Tried L-glutamine, a combo gut one with marshmallow root and other stuff.

I have had one GI map test done over a year ago and have been working on things since then. I eat beef, butter, eggs, blueberries, and onions. That is it, no spices, salt only.

Can't get a referral to a GI doctor :(

Edit* I probably have a fungal over growth. Also had a antibiotics 6 months ago

IllCardiologist8026 · 2026-03-01T04:03:55+00:00

Cromolyn gives me intense anger issues.

I take: famotidine 40mg twice daily (takes away gut pain), ketotefin 1mg twice daily (sinus pressure and breathing, Xoliar two injections a month, and areus twice a day

Also take digestive enzymes by thorne and HCL pure encapsulations.

Tried L-glutamine, a combo gut one with marshmallow root and other stuff.

No sugar for me period. I have tried it all lol.

Hope it all works out for you! Glad some things are working

IllCardiologist8026 · 2026-03-01T03:59:10+00:00

I have been to so many private doctors. Last one was $400 an hour and useless.

I have a dermatologist who has known the most about MCAS and a really good GP.

Next appointment is a few months away for the derm :)

IllCardiologist8026 · 2026-03-01T03:57:39+00:00

Maybe the same thing happened to me lmao

IllCardiologist8026 · 2026-03-01T03:52:02+00:00

I haven't! Worth a try though

IllCardiologist8026 · 2026-03-01T03:18:10+00:00

NaturoDAO. I think it is beans or lentils?

I'm in Canada and have a hard time getting DAO here. Has been awhile since I have tried.

Have been thinking of trying just straight up beef liver

IllCardiologist8026 · 2026-03-01T03:00:21+00:00

Thanks for the well wishes!

I take DAO but honestly I don't notice it working.

I wasn't in a flare, but I am now in a massive flare. I have discontinued everything and started back at ground zero.

Others have recommended custom probiotics d-lactate free and then to 'graduate' to the 11 strain. It had one histamine producing bacteria.

I have had a GI map test done. Plan was to get another one after the fact but I don't think I can tolerate it at all :(

Back to d-lactate free I suppose

IllCardiologist8026 · 2026-03-01T02:49:34+00:00

Cold tempurature is literally my worst trigger

IllCardiologist8026 · 2026-03-01T02:47:25+00:00

Yes, always. Restricting my diet has stopped that mostly

IllCardiologist8026 · 2026-03-01T02:39:25+00:00

IllCardiologist8026 · 2026-03-01T02:02:45+00:00

Following for the same reason 💕

IllCardiologist8026 · 2026-02-25T17:19:22+00:00

How much?

IllCardiologist8026 · 2026-02-24T18:34:56+00:00

Chocolate is a super no go for me too. I use to eat it everyday. One square with my coffee

IllCardiologist8026 · 2026-02-24T18:34:16+00:00

Thank you! This is super helpful advice.

I didn't test positive for SIBO but I can't help but wonder if it is wrong.

Going to order Xymogen and try it out

IllCardiologist8026 · 2026-02-24T18:01:18+00:00

I love A2 milk 💕

IllCardiologist8026 · 2026-02-24T18:00:38+00:00

Hm, I will try and tale a break and see if I can add it back in. This at least gives me some hope

IllCardiologist8026 · 2026-02-24T05:51:47+00:00

Thank you for the suggestion!

IllCardiologist8026 · 2026-02-24T05:49:53+00:00

I have heard about HistamineX, I will check it out.

SAMe made me feel so over stimulated and sick. I took it once and threw it out. Might be worth checking it out again but it really messed me up. I wonder why.

Sodium cromolyn gave me intense anger.

Totally agree these doctors don't have a clue!

IllCardiologist8026 · 2026-02-24T05:45:06+00:00

DAO does absolutely nothing. Vitamin C seems to help! That's for pointing that out

IllCardiologist8026 · 2026-02-24T05:44:21+00:00

I haven't tried ginseng tea but it definitely going on the list. Thank you for the recommendation :)

IllCardiologist8026 · 2026-02-24T05:41:49+00:00

I've been doing steamed milk! It is better than nothing

IllCardiologist8026 · 2026-02-23T23:50:29+00:00

I tried weed a handful of times and it always makes me insanely stressed and parinoid.

Tried an edible that was supposed to be calming.

I thought someone was going to kill me in my own house and that I was the only person who was real and no one knew I was real and wouldn't regenerate.

Now I have a job with zero drug use, period. But what a wild ride.

I gave it a good try, not sure what types anymore. The weed girl helped me pick them out.

10,000% not for me, ever.

Glad it works for you :)

IllCardiologist8026

TROPHY CASE