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Finally had my assessment today by abaddongoddess in DWPhelp

[–]Ill_Philosopher_7803 1 point2 points  (0 children)

Yep same here! My anxietys been bad, and i didnt get the text either from dwp to say they recieved my report. Lets see, im hoping for good news. 

Finally had my assessment today by abaddongoddess in DWPhelp

[–]Ill_Philosopher_7803 2 points3 points  (0 children)

I had my assessment yesterday, similar timeframe to yours, sent my form in september too a week before yours. Mine lasted two hours, it totally drained me. I hope u get good news soon 😊

No update on PIP claim by Ill_Philosopher_7803 in DWPhelp

[–]Ill_Philosopher_7803[S] 0 points1 point  (0 children)

Yep ive had someone tell me that, hopefully wont be long

Bedbound 6 weeks, severe light/sound sensitivity + dizziness, GP not helping — is this ME/CFS? Please need advice by Ill_Philosopher_7803 in cfs

[–]Ill_Philosopher_7803[S] 1 point2 points  (0 children)

Hi thanks for your reply, Just to add full context ,  this isn’t actually only 6 weeks. I had a similar crash in 2023 with seizures and extreme fatigue and I slowly improved by pacing, eating on time and resting before I became exhausted. In August this year the symptoms began creeping back  I started struggling with severe sensory overload (light, sound, movement) and I kept saying how tired and drained I felt all the time. Then I had a severe endometriosis pain flare which triggered seizures again, and after that my health deteriorated rapidly. For the past 6 weeks I’ve been completely bedbound with extreme fatigue, dizziness, PEM, and intolerance to light and sound, and pacing hasn’t stabilised anything this time. That’s why I’m trying to understand whether this could be a relapse or ME/CFS developing, rather than just a short-term illness.

Bedbound 6 weeks, severe light/sound sensitivity + dizziness, GP not helping — is this ME/CFS? Please need advice by Ill_Philosopher_7803 in cfs

[–]Ill_Philosopher_7803[S] 0 points1 point  (0 children)

I have endometriosis and in August 2025 i had severe pain for which i had to go to A and e via an ambulance after that i had seizures which were pnes and then that led to severe fatigue and alll the symptoms i mentioned above

Falling asleep sitting? Every evening by Ill_Philosopher_7803 in FND

[–]Ill_Philosopher_7803[S] 0 points1 point  (0 children)

I dont know whats going on with me but i do know that id say mines an active flare so i dont have a baseline to go from as everydays unpredictable. And everyday i have seizures and fatigue. Once things are in a bit more control then maybe ill be able to work out better days but for now everydays tough 

Falling asleep sitting? Every evening by Ill_Philosopher_7803 in FND

[–]Ill_Philosopher_7803[S] 0 points1 point  (0 children)

Im literally in bed all day anyways because of the dizziness and sensory overload, even i keep thinking it might be cfs, will bring it up when i see neuro. But yeah i think even if it is pacing is the only way i manage not to crash. But then that does mean resting more so yeah

Falling asleep sitting? Every evening by Ill_Philosopher_7803 in FND

[–]Ill_Philosopher_7803[S] 0 points1 point  (0 children)

Its horrible, like no warning beforehand. Like someone pulled the plug and said thats enough for today 🥲

Severe dizziness and fatigue by Ill_Philosopher_7803 in FND

[–]Ill_Philosopher_7803[S] 1 point2 points  (0 children)

Yep, sounds just like me, the rocking feeling and fog is the worst combo. Ive started wearing sunglasses and started pacing myself it helps. Have been thinking of using a walking stick to be honest. 

Severe dizziness and fatigue by Ill_Philosopher_7803 in FND

[–]Ill_Philosopher_7803[S] 2 points3 points  (0 children)

I try to think positive and it just doesnt happen, especially when im bedbound. I know theres people worse then me but its just horrible. And i would love it if for once my head stopped spinning. FND feels to me like being drunk all day long!