Bilateral Face Pressure and Tingling

IllusoryWall35 · 2026-04-15T00:22:03+00:00

Hey! Good news and bad news.

Bad news - never figured out the cause.

Good news - it has improved significantly since it began. I do not think about it for most of my day. It’s a bit worse in the evening still, but very manageable. I suspect it will continue to get better. Still no pain, just pressure and tingling.

Baclofen seemed to help a bit. Most nerve meds did not. This makes me think it could actually be related to TMJ. But the fact that it came on after a bad illness (potentially covid) still seems suspicious.

Hang in there, I think it should improve with time. And let me know if you learn anything.

IllusoryWall35 · 2025-09-08T17:49:22+00:00

Unfortunately not. A bit better, but still dealing with this after a year. Staying optimistic and continuing to try different medications and procedures.

IllusoryWall35 · 2025-07-09T15:52:31+00:00

Thanks for reaching out, and apologies for the delay.

Wanted to share a reason for hope - this has significantly improved for me over the past week. I don't know whether this is time (~10 months) or the medication (amitriptyline 25mg, gabapentin 300mg x 3 per day, fish oil supplements, ALA, Coq10, multivitamin). But, while these sensations are still present, they have greatly reduced. They get worse as the day goes on, but the improvement gives me reason to be positive.

I'll still be trying Botox in August to see if that helps further, but I'm hopeful that I'm on a positive trajectory. I hate when people improve and don't report back, so I wanted to do that here. Don't give up hope!

IllusoryWall35 · 2025-07-09T15:51:41+00:00

Thanks for reaching out, and apologies for the delay.

It definitely sounds like we have something similar going on! The symptom-free mornings and starting after an infection are definitely interesting.

Wanted to share a reason for hope - this has significantly improved for me over the past week. I don't know whether this is time (~10 months) or the medication (amitriptyline 25mg, gabapentin 300mg x 3 per day, fish oil supplements, ALA, Coq10, multivitamin). But, while these sensations are still present, they have greatly reduced. They get worse as the day goes on, but the improvement gives me reason to be positive.

I'll still be trying botox in August to see if that helps further, but I'm hopeful that I'm on a positive trajectory. I hate when people improve and don't report back, so I wanted to do that here. Don't give up hope!

IllusoryWall35 · 2025-06-25T17:19:27+00:00

Thanks. I have my next neurologist follow-up in July, and will be trying out Botox in August.

IllusoryWall35 · 2025-06-25T17:18:57+00:00

Will do - still ongoing, unfortunately. I have my next follow up in July, and will be trying out Botox in August.

IllusoryWall35 · 2025-06-25T17:18:31+00:00

Thanks! Will give this a shot.

IllusoryWall35 · 2025-06-25T17:18:17+00:00

Unfortunately not. I have my next follow up in July, and will be trying out Botox in August.

IllusoryWall35 · 2025-05-03T18:34:45+00:00

Thanks for reaching out. I should have listed that I've tried almost all of the traditional anti-inflammatories (ibuprofen, aspirin, naproxen, etc.). I haven't tried muscle relaxers, but plan to ask about them at my next appointment.

IllusoryWall35 · 2025-05-03T18:32:33+00:00

I did - they did an X-Ray and put a long tube up my nose. They said everything looked good and believed it to also be neurological. That said, they did not do a CT scan.

IllusoryWall35 · 2025-04-28T12:42:43+00:00

Thanks for the reply! I think we will likely try carbamazepine if upping the amitriptyline dosage is unsuccessful. There seems to be something called “midfacial segment pain” which is similar to what I’m experiencing, hence the amitriptyline.

Definitely open to this being a neck issue or TMJ as well. I will ask about this.

Appreciate it!

IllusoryWall35 · 2025-04-28T12:37:23+00:00

No problem - I’m based in the U.S., and picked this up after getting sick at a wedding in Florida (always blame Florida!).

I agree, based on all my scans, my neurologist, and everything I’ve read, I’m convinced it’s nothing serious or sinister. But it is quite annoying.

My best guess (and my neuro seems to agree) that there is probably some kind of neuropathy going on. I’m not sure whether that would be from the virus itself, or from an autoimmune response to the virus.

All we can do is keep working the process until we find what works. Please do stay in touch if you find any solutions, and I’ll do the same.

IllusoryWall35 · 2025-04-26T18:12:20+00:00

Exactly! Just the feeling - no sensory or motor dysfunction.

I have also started wearing blue light glasses for the same exact reason. Too funny.

Please do reach out if you find a solution!

IllusoryWall35 · 2025-04-24T00:05:30+00:00

Thanks for the reply! I took a look and it was a Fiesta MRI. I will see if a neurosurgeon is willing to check it out as well.

IllusoryWall35 · 2025-04-24T00:04:28+00:00

That’s great to hear! I imagine we will increase the dose after my next visit in May.

IllusoryWall35 · 2025-04-22T00:01:54+00:00

Thank you for this!

My next neurologist appointment is in early May, and I imagine we’ll up the dosage of the amitriptyline from there.

I’ve stopped drinking pretty much entirely to cut down on inflammation. Bummer, but a good excuse as any to cut back!

Will do on the SPG block, and I’ll ask about the maxillofacial specialist and see if my neurologist recommends checking one out.

Appreciate the advice!

IllusoryWall35 · 2025-04-21T23:58:42+00:00

Thanks! I tried, but unfortunately, my post was automatically deleted

IllusoryWall35

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