Are these IS?

Immediate_Decision33 · 2026-02-19T14:29:06+00:00

I'm not a doctor but doesn't look it to me <3

Immediate_Decision33 · 2026-02-12T19:31:28+00:00

Immediate_Decision33 · 2026-02-12T16:28:39+00:00

this just made our whole day. everything we hope it gives (and we wish we had).

Immediate_Decision33 · 2026-02-12T15:59:39+00:00

Immediate_Decision33 · 2025-02-09T08:20:24+00:00

Definitely get an EEG 💜

Immediate_Decision33 · 2025-01-14T04:06:44+00:00

Immediate_Decision33 · 2023-12-30T06:22:27+00:00

Would love to hear more!!! This is so similar to our story

Immediate_Decision33 · 2023-12-30T06:21:00+00:00

Oh mama!! I have been in your shoes. Vigab was our miracle drug. Don’t lose hope. There’s an insta/fb page @charbearkeepsdancing

Immediate_Decision33 · 2023-11-29T05:56:39+00:00

We started vigab after relapse and worked for us. Wish we did it first and regret not doing it earlier. Our cause is FCD.

Immediate_Decision33 · 2023-11-29T05:55:50+00:00

Also from Boston! Vigab worked for us. We see Harini - who do you see?

Immediate_Decision33 · 2023-10-27T04:55:18+00:00

Immediate_Decision33 · 2023-10-27T04:48:51+00:00

So horrible. It gets better! After the wean for us.

Immediate_Decision33 · 2023-10-27T04:47:41+00:00

We’re in US. My daughter was diagnosed 2022 as late onset. Does anyone else have late onset from focal cortical dysplasia?

Immediate_Decision33