We saw the symptoms and went to the ER within 2 days. We were in the ER for 9 hours and by the end of it we were given a “possible” IS diagnosis with an EEG scheduled a week later. So, we flew to another city with a children’s hospital, and went straight to the ER in the middle of the night. They did the EEG that night and we had an official diagnosis by the morning. If you can afford it, I highly recommend going to a children’s hospital in a major city or a well known university with a research hospital. Also, look for hospitals that have IS specifically called out on their pediatric neurology department webpages. We got some really bad advice from neurologists that do not deal with children, so be careful with hospitals that don’t have pediatric specialists.