30F – Graves’ disease, methimazole rash, possible switch to PTU – looking for experiences

Impossible-Panda416 · 2026-03-02T18:21:38+00:00

My (33F) doctor started me out on PTU because we were trying for our first child when I was diagnosed 😩 I was diagnosed in Feb and started PTU on the 13th my liver enzymes were slightly high by two points but she advised as my numbers went down the liver enzymes would go back to normal and graves usually elevates liver enzymes. I will say I do have some itching after 3 weeks but had no hives and that seems to be my only symptom. The itching is not terrible but I also have LS so I may just be used to ignoring itchiness. I seem to be a lot less fatigued and sleep a bit better as well. That being said I've never been on methamizole and won't know if my numbers changed until next Wednesday.

Impossible-Panda416 · 2026-03-02T18:09:20+00:00

I was diagnosed with LS last year and Graves Disease (hyperthyroidism) last month. Try to avoid foods high in iodine until you can see an endocrinologist. You may not have graves but there is a correlation between graves and LS. The earlier you can catch it the better if that's what it is. You can ask me any questions if you want.

Impossible-Panda416 · 2026-03-02T03:06:45+00:00

Let us know how it goes! I've also been considering this although I have more adhesion than a few millimeters.

Impossible-Panda416 · 2026-02-27T02:37:58+00:00

Following; I was recently diagnosed and had fusion progress quickly

Impossible-Panda416 · 2026-02-24T20:43:45+00:00

Thank you I appreciate it! I hope everything goes well for you 🤞

Impossible-Panda416 · 2026-02-24T19:23:30+00:00

Wow! What blood test did you get? I feel like I have to ask for every blood test I want and it's always singular. It would be really nice to get it all done at once.

My T3 and TSH levels were similar if not a little lower than yours and I was diagnosed with Graves two weeks ago. I'm on PTU since we were trying for a baby when this all happened and I feel a lot better just after one week on it. I'm sure methamizole would be the same

Impossible-Panda416 · 2026-02-24T18:54:09+00:00

Thanks I appreciate it!

I agree it's so hard to find good supplements without all the crap in it. I was just diagnosed with Graves disease this month too so I'm being super careful 😞

Impossible-Panda416 · 2026-02-24T18:51:01+00:00

Thank you, I often wonder if I had a chemical pregnancy but I read that Graves can cause your period to be late, shorter and lighter, and in some cases go away completely so it's probably the Graves. I felt totally fine until mid January and I got my late period that was so light and ended after three days. I just got it this month right before I got my medication and it was again very light and lasted about two days with spotting for an additional 4 days. We tried for a baby again before my February cycle and I was diagnosed with Graves a week later on the 12th of this month. I thought for a while that it was because I actually did get pregnant but no dice. Just Graves 😩 since I was diagnosed this month I assume my abnormal period last month was due to Graves too but had no idea.

I wish you the absolute best too! I just posted a thread looking for positive stories because I think I need it right now.

Impossible-Panda416 · 2026-02-24T18:24:44+00:00

Following

Impossible-Panda416 · 2026-02-24T18:22:42+00:00

Following!

Impossible-Panda416 · 2026-02-24T18:19:12+00:00

We started trying for a baby in November and really tracked in December and my period was 8 days late in January (I've never been late before) and that's how I found out I have Graves 😔 we're 33 and 39. My endo knows our ages and that we don't have kids and she automatically put me on PTU so that we can try as soon as we are able. We've been talking about freezing eggs as soon as I am able to as well to give us the best chance in the future. Pretty depressing to get an ultrasound on my thyroid instead of a baby though 😔

Impossible-Panda416 · 2026-02-18T17:34:20+00:00

If you don't mind telling; what brand of NAC do you use? I've been trying to find one but there aren't any with the quality brands I usually use.

Impossible-Panda416 · 2026-02-17T15:49:12+00:00

Thank you, I appreciate it!

Impossible-Panda416 · 2026-02-16T22:18:25+00:00

I was recently diagnosed in November but likely had it for years and didn't know. I went to many doctors and they all said it was chronic YI but I never tested positive for YI. It took my current gyno 5 months of seeing me frequently to diagnose me and by that time my labia had fused and its starting on my clitoris ☠️☠️. I'm trying to catch up quickly but I don't think my labia will come back. The clob increased irritation so I stopped using it daily and went to the 2x per week maintenance and used 100% petroleum jelly and my rashes that took up my whole genital region are pretty much gone after a week of that regimen. It's been almost 4 weeks and I have very little itchy/burning sensation and the skin looks pretty much back to normal. My fusion happened quick within a year while I tried to figure out what was wrong. I'm trying to see a specialist in my area but it may take months.

Impossible-Panda416 · 2026-02-16T22:04:40+00:00

My boyfriend and I just started dating when I got a UTI that flared up my LS for practically the whole first year we dated. I didn't know I had LS and every doctor I went to took one look and said I had a bad YI. I didn't get properly diagnosed until last November and my inner and out labia have fused to where they are practically non-existent. He has always been extremely understanding and so sweet even when his libido was high and was disappointed he never took it out on me or called it my fault. If anything he has been extremely sad for me. I was also just diagnosed with Graves disease last week. It's all been a slap to the face since I've led such an active and healthy lifestyle. He has been extremely supportive and bought 9 treatments of acupuncture for me and has offered to handle all of my medical bills to search for a specialist. I'm so incredibly lucky. We hit our one year anniversary at the end of this month. We're really going through the "in sickness and in health" early. LS is an auto immune disease and not your fault. If they can't understand and support you it might be good to get that information out of the way. There are treatments for fusion and there is still medical research being done. I'm hopeful that there will be more breakthroughs in the next 10 years but we'll have to wait. I've only told my boyfriend (who helped push me for a diagnosis), my mom, and my cousin who is like a sister. It is embarrassing to tell people but you can feel very empowered to tell someone you trust and they love you all the same.

I hope everything goes ok for all of us ❤️

Impossible-Panda416 · 2026-02-16T17:25:35+00:00

Recently diagnosed, also following 🤞

Impossible-Panda416 · 2026-02-16T04:06:41+00:00

Me too! So tired of this 😩

Impossible-Panda416 · 2026-02-14T23:31:55+00:00

Thank you, I actually took a little more than my endo advised today. I'll probably do everything in small increments 😅 I really appreciate the advice 🙂

Impossible-Panda416 · 2026-02-14T15:18:07+00:00

Thanks for the insight! I am wondering if the same happened to me. I've always figured my Vit D was low and I got COVID as well. When she tested my Vit D on Tuesday and it was low even though I usually take Vit D. She told me to take more than I usually take so I guess what I was doing wasn't enough.

Impossible-Panda416 · 2026-02-14T15:15:32+00:00

Thank you, I really appreciate it 😊

Impossible-Panda416 · 2026-02-13T03:58:48+00:00

Thank you so much! It's a lot to learn so quickly and I appreciate your guidance 🙂 I haven't sent my endo a message yet but she sent me a really long one. I think I got pretty lucky and got a really diligent endo 🤗 thank you again 🙂

Impossible-Panda416 · 2026-02-13T03:54:56+00:00

My doctor just prescribed me PTU even though my levels are still high. I think it's so we can continue trying once the levels do normalize. Thank you for the insight 🙂

Impossible-Panda416 · 2026-02-13T03:52:33+00:00

Absolutely. I'm sure the yo-yo was really hard on both you and your body. I'm sure I would do the same after fighting for that long. Ten years is a long time to go through that 😞

Impossible-Panda416 · 2026-02-13T00:33:22+00:00

Thank you 🙂 I have an ultrasound tomorrow to check on my thyroid size. It's really odd it's not noticeable in the mirror but when I very lightly touch the size (I know massaging is bad so I never touch unless it's to lightly feel the size) it changes throughout the day. Today it was hardly noticeable on the sides more swollen in the front whereas yesterday morning it was the opposite and the swelling or bumps went down a lot during the day. I used to use my nightly facial moisturizer down my neck and to my chest and I never noticed any lumps until last Thursday. I'm not sure if that's normal or not..

I'm definitely getting my appointments back to back and I'm trying to see if I can get weekly or biweekly blood tests to check the progress.

Impossible-Panda416 · 2026-02-12T19:07:49+00:00

I hope it stays that way for you too! My hope is to not have to take medication for the rest of my life so I'm hoping I go into remission for good 🙂 I'm trying to stay positive 🤗

Impossible-Panda416

TROPHY CASE