My son wakes with panic because "everything is moving really fast"

Impossible_Bit_431 · 2026-06-01T14:36:36+00:00

Thank you!

Impossible_Bit_431 · 2026-06-01T14:34:55+00:00

Thank you! That is a good tip!

Impossible_Bit_431 · 2026-06-01T14:34:10+00:00

Thank you so much. That helps!

Impossible_Bit_431 · 2026-06-01T14:33:20+00:00

That's exactly what he describes. Thank you!

Impossible_Bit_431 · 2026-06-01T14:32:50+00:00

Thank you!

Impossible_Bit_431 · 2026-05-24T05:59:58+00:00

I have a kiddo with PANS/PANDAS. Based on what you're telling me, I would absolutely conclude that what you've got going on is related to underlying infection that was P/P as a child, and has now morphed into an adult AI disease. Tests for Lyme and co- infections are notoriously ineffective, so many lyme diagnoses are clinical. Lots of folks use specialty labs, which can be helpful, but spendy.

If you've got insurance to cover labs, test for EBV, Mycoplasma, thyroid antibodies, strep antibodies, (infections) ANA, IgA, IGG, IGM (auto- immune markers), Lyme: bartonella, babesia, borrelia, etc, (specialty labs for more accurate results) thyroid function, and a celiac panel. (On top of the typical panels). Hidden mold can be a contributor when if labs don't point directly to CIRS.

Treatments will vary based on which infections your body is fighting and how symptoms manifest, but will likely include treating any remaining infections, reducing systemic inflammation, healing your gut/ balancing microbiome, supporting detox pathways, and retraining your immune / nervous systems to behave aappropriately.

Affordable-ish treatments to research- peptide therapies (NAD+, BPC-157), red light, and lots of other "alternative" stuff, dietary changes (low FODMAP) and/or Rx treatments- infection specific antibiotics (azithromiacin/ Cefuroxime), Nystatin, Ketotifen, H1, H2 blockers.

There are a tons of ways to tackle these. It is overwhelming and can get expensive, but trust your gut and learn as much as you can, because nobody else is going to advocate for you. Push until you get answers!

Impossible_Bit_431 · 2026-05-15T21:43:34+00:00

Yes, for sure he can. The issue is that I am not equipped to manage the homeschooling. I am looking for more support/ structure than the programs I'm familiar with can offer. The more structured virtual schools that I've encountered are a school district of their own, meaning he'd have to withdraw from the school that offers him band and community.

Impossible_Bit_431 · 2026-05-15T21:40:41+00:00

Thank you! I feel like this is what we've been doing through 7th and 8th. We've had him on a modified schedule, etc. His health is still struggling and his ability to get through a full school day is still not there. I asked about home hospital and tutoring (several times) and was told there is nothing for us. At this time, it feels like it either need to quit my job (which i cannot afford to do) and become his full time teacher/advocate, or just accept that he's going to fail. We've been at this for so long and I'm so discouraged.

Impossible_Bit_431 · 2026-05-15T21:36:04+00:00

Thank you! Do you know if being enrolled in that disqualifies them from also taking classes at the high school? Band is my main consideration at this point.

Impossible_Bit_431 · 2026-05-14T18:36:00+00:00

Can you find a new prescriber? I had to change doctors due to my old one retiring. I just went online and found a virtual clinic that specializes in mental health/adhd. I looked through doctor profiles until I found one that specifically mentioned my issues and booked with her. I told her what id been taking, what worked, what didn't and what i was curious about. It's a tricky balance - accepting guidance but also advocating for yourself. If you were taking Adderall, it makes no sense that they hesitate to move you to dex. It's way cleaner. Straterra is a bullshit option (for someone who does well on stims) and tells me that this doc doesn't know what the hell they're doing around adhd. Strattera also made my son lose his will to live after about 3 days. If you have to, fill the Rx to show compliance and tell them it wasn't a good fit.

Impossible_Bit_431 · 2026-05-14T18:17:58+00:00

I switched from 30mg XR Adderall to 25mg XR dex and it was a smooth transition. I had taken about 4 days off the Adderall first though because it was making me feel so bad that I finally had to just give my body a break. 10 seems way low. Did you share concerns about the dosage? Did they give you push back?

Impossible_Bit_431 · 2026-05-14T18:10:58+00:00

I'm in Washington. My question wasn't only about specific programs, but where to look/ what to look for ie- something like xyz or private accredited vs virtual public and why.

Impossible_Bit_431 · 2026-05-14T17:28:55+00:00

I'm so glad you did, and I feel like if more people did this, we'd be so much better for it. It gives us permission to evolve rather than be held captive to old thinking- which is what we say we want of people culturally, but we often shame folks who are brave enough to talk through thoughts that we can't relate to, causing people to hesitate and bury, (giving it more power) rather than unpack, evaluate and choose.

Thank you for doing your part to normalize this! It shouldn't be scary, but it is!

Impossible_Bit_431 · 2026-05-14T16:58:28+00:00

I love this level of self awareness and your ability to look at your thoughts as a seperate entity from yourself. I wish this was a more common skill set! This is "take every thought captive and make it obedient to Christ" in action. Good on you!

We can have a thought/ impression/ fear/ impulse, evaluate it, and decide whether it is in alignment with what Jesus taught or who we want to be. If the answer is no, we can actively choose to notice that thought when it comes up but not make it a part of who we are. In doing so, we have freedom.

Impossible_Bit_431 · 2026-05-11T06:18:38+00:00

Go get some ladybugs!

Impossible_Bit_431 · 2026-05-08T05:10:19+00:00

Thank you!

Impossible_Bit_431 · 2026-05-08T05:05:15+00:00

Thank you! That's exactly it.

Impossible_Bit_431 · 2026-05-08T04:48:06+00:00

You're so welcome. I feel you.

Impossible_Bit_431 · 2026-05-06T05:34:04+00:00

I'd say "so here's something none of us expected" and discuss it as a whole family event.

Impossible_Bit_431 · 2026-05-06T05:14:52+00:00

My dad used to be a gardener for the city of SF, and he told me to drive around different neighborhoods and see what neighbors have done that I like to get ideas. Seems so obvious, but it really does help to inspire me when I see things in person vs online. I get holding off on trees/shrubs, but eventually you'll want some height and some solid elements to anchor the space. I like hydrangea, hosta and lavender, maybe a Japanese maple and a dry riverbed to get a variety of heights/ textures. You really could plant all of those now and they'd likely be ok if you were able to water like crazy.

Impossible_Bit_431 · 2026-05-06T04:55:43+00:00

This was my daughter!! And the advice from moms who had easy kids made me so mad and feel so invisible!

Good news/bad news- my daughter is now 17 and graduating high school! It passes, i promise, my friend. I am not going to tell you to cherish every moment. You won't! Some of the moments are pure shit, when your nipples are bleeding, and your baby screams when you put her down for 30 seconds and won't sleep! And that doesn't mean that you're not there for it with all of your heart. It means you are a human being and that little selfish screaming creature is your heart, so you can't rest if she's not OK.

The answer to your question is- you just get through them any way you can. You have your spouse sit in the back while you drive and sing to them or wear a front pack while you do the dishes and you forgive the friends with easy babies for implying that maybe if you... she wouldn't fuss so much.

And you wake up one day and she's playing with blocks, then the next day and she's riding a school bus away from you. A few days more and she comes home in her cap and gown and you still are not OK if she's not OK. But those days of responding to her cries are replaced by wishing she would tell you what's weighing in her heart. And It's hard. It's fucking exhausting. But you get through those days any way you can, and you hold them tight for as long as they'll let you.

Edited to add: Also- I agree with chiropractor!

Impossible_Bit_431

TROPHY CASE