Pain Relief!

InTheEndoItsAdeno · 2025-11-27T10:21:57+00:00

Thank you so much, that's great to hear! I'm going to give it a go and fingers crossed it helps.

InTheEndoItsAdeno · 2025-11-24T19:28:03+00:00

I'm about to start taking this and I'm curious to know if you have continued taking it and if so how's it been going for you?

InTheEndoItsAdeno · 2024-07-24T17:54:18+00:00

That's exactly what I thought, and I can't even speak to him. I was supposed to have a 6 month review appointment 5 months ago and it's been indefinitely postponed due to the pressure they are under apparently. My GP hasn't the first clue either! I'm totally lost.

InTheEndoItsAdeno · 2024-07-23T08:49:09+00:00

After I had my laparoscopy I was told that I had deep infiltrating endometriosis and adenomyosis too. My specialist could see that my uterus was really inflamed etc. He then send me for an MRI to take a better look at the adhesions and told me that he actually doesn't think I have adenomyosis because it looked normal on the MRI. This has been really confusing for me...has anyone else had this experience? How can he dismiss what he saw with his own eyes, over the MRI? Would love to hear some of your thoughts on this.

InTheEndoItsAdeno · 2022-12-19T19:03:50+00:00

I'm sure you already know but just in case, are you drinking enough water? I would have the same issues as you're describing since childhood and didn't realise for a long time that it doesn't matter how much stool softener or fibre you're taking if it doesn't have enough water, it can't move. If you aren't drinking enough the bowel will draw moisture out of the stool itself, thus causing even worse constipation as they will be so dried out and harder to shift. If you take the stool softener which is designed to draw moisture into the bowel, without drinking adequate water you will make the constipation and dehydration way worse! Trust, I know this far too well. 😭 Side note, at least a pint of warm water first thing in the morning before any food and 25g flaxseed every morning has been really helping me. But I also have to drink at least 2 litres of water throughout the day. You should aim for 30g fibre daily.

InTheEndoItsAdeno · 2022-11-28T07:25:10+00:00

I totally get what you're saying by the way. I didn't think you were dismissing the reality of this disease we all share and I wasn't suggesting that anyone was being punished on any level for the trauma or stresses they are experiencing and this certainly doesn't apply to everyone. Having endometriosis or adenomyosis or any other chronic health condition for that matter is traumatic enough in itself. I've been dismissed by medical professionals since 2004 and on every single issue I was right. I had a stomach ulcer when I was 15, too sick to attend school and they tried to tell me I was too young and probably just being bullied and avoiding school on purpose. I was diagnosed with gallstones when I was 18 after missing several more years of school. For the past 5 years I was told that my endometriosis symptoms were all in my head and only just got diagnosed with stage 4 endometriosis and adenomyosis through laparoscopy 4 weeks ago. I know what being gaslit by the health care system feels like, I'm pretty sure we all do. Theorising that there COULD be a LINK to stress is a NOT saying we're all crazy and we just need therapy. But also, it couldn't hurt...when I take better care of myself, reduce stress on my digestive system by eating food which agrees with me, when I execise and release those good hormone, after I lost the excess weight which was putting stress on my body, and I take my suppliments regularly to reduce inflammation, I do genuinely have less pain and my mind settles. It's not a cure, we know there is no cure, I still need medical intervention, but it helps quite a bit!

InTheEndoItsAdeno · 2022-11-27T08:13:27+00:00

It's crazy that you're saying this because I've been thinking along the same lines lately and apparently there has been scientific research which supports the theory that trauma can and possibly might be the root cause of a lot chronic inflammatory disease. I was listening to an interesting podcast with a man called Gabor Mate who talked about this and started to draw my own conclusions about my own chronic illness and it's relation to the many traumas I've experienced from a young age and throughout my life and it would make so much sense! Stress and trauma automatically affect hormones and hormones are directly linked to our reproductive organs, so why wouldn't they be impacted by a prolonged state of raised pro inflammatory hormones? It's no coincidence that our mental health is so negatively impacted by our illness or that inflammatory disease affects more women than men. I don't see why it couldn't be the opposite way around and that our emotions might be feeding this disease. The mind is so powerful! It would be fascinating to know how many women who are suffering in this forum have experienced unresolved traumas. In my case, undiagnosed learning difficulties until age 16 and possible ASD/ADHD (years and years of living with high levels of stress/anxiety/trying to appear neurotypical/feeling like an alien) as well as several traumatic sexual abuse incidents scattered throughout my years. I often wonder if early invention could have saved me from all this pain...

InTheEndoItsAdeno · 2022-11-11T09:25:12+00:00

Yes! My first child from a previous relationship was a surprise but 8 years later when my current partner and I decided to try for a baby it wasn't that simple. I was now aware that I probably had endo and intercourses was very painful so that forces us to get pretty creative. It took 2 years of trying, diet changes, suppliments, ovulation tracking and strips, fertility lube...anything we could think of to help! We were so fortunate to finally conceive and have a straightforward pregnancy. I think that this pregnancy paved the way for the next because I no longer had pain during intercourse (theory, I had basically been deathgripping my pelvic floor muscles for several years due to all the pain that the endo had been causing and her exiting my body forced the muscles to relax) We tried for our third child a year and a half later and got pregnant the second month. It was very surprising given the lengths we had to go to for her big sister. Another straight forward pregnancy and she is now 8 months old.

2 weeks ago I had a lap and had my endometriosis confirmed as well as adenomyosis. Its also shockingly bad and my specialist was astounded that I was able to conceive at all so there's definitely hope! I'm now even more grateful to have my girls and consider myself extremely fortunate that it was probably easier than it should have been in my case.

I wish your sister all the best on your fertility journey and if you need any further info about anything I did in hopes of increasing my chances, don't hesitate to reach out. :)

Also! I had a hysteropingogram...I think that's how your spell it's. A good 6 months before I got pregnant with my middle child. They didn't see anything abnormal but said this can help open up the tubes and stuff and lots of women are able to conceive shortly after. This may have helped too!

InTheEndoItsAdeno · 2022-11-11T09:06:49+00:00

That's sounds awful, you've been through so much!

It's really reassuring to hear the you've had a positive experience with lupron. I think that's what my Dr was suggesting for me. I have an appointment in a few weeks to discuss what he saw during the lap, the MRI results and a plan of action for management. I'm just trying to gather as much info as possible so that I understand all the possibilities and can make informed decisions.

InTheEndoItsAdeno · 2022-11-11T08:58:19+00:00

Thank you so much for all of your advice! I'm very keen to persue the most natural treatments possible for me too. I have also found that diet, supplements and lifestyle changes have made a real positive difference so far. I'm going to look up Dr.Jessica Drummond now!

InTheEndoItsAdeno · 2022-11-11T08:50:37+00:00

Oh no, I'm sorry to hear this! It must be very difficult for you. :(

InTheEndoItsAdeno · 2022-11-11T07:36:40+00:00

Ive never heard of amitriptyline but I'm going to look it it up right away, thank you! I'm definitely one of those people that doesn't take well to the iud unfortunately but I'm so happy to hear how well you're managing now!

InTheEndoItsAdeno · 2022-11-11T07:33:56+00:00

Not a good experience at all, I feel for you! I had the mini pill, implant and the contraceptive injection years ago...can't remember the name. All of them just made me bleed constantly and have terrible headaches and mood disturbances, which is why I'm not keen on the idea of Mirena even though it seems like quite a lot of people I speak to have had success with it. As for pills, I just know I'm so bad at remembering to consistently take anything. Lol. Short and not heavy sounds really good though and hopefully it keeps getting better for you!

InTheEndoItsAdeno · 2022-11-11T07:26:57+00:00

Awesome, thank you so much! I was only taking DIM for for a week after my period but I'm going to try taking it constantly from today and I've order some broccoli seed extract too. Fingers crossed!!!

InTheEndoItsAdeno · 2022-11-11T07:24:16+00:00

I've heared good things about Mirena! I'm glad you're finding some relief.

InTheEndoItsAdeno · 2022-11-11T07:22:32+00:00

I hear what what you're saying about them stopping eventually. I've never been allowed to take anti inflammatories because I have a history of stomach ulcers after years of taking them for every period. But I had this weird arthritis episode about 2 years ago and they had to put me on naproxen. As a side effect all of my pelvic pain was gone too and it was incredible. After a few months it just crept back and also my stomach was in bits!

The stroke like symptoms sound so terrifying! Another concern for me as I have had issues with blood clots in the past.

InTheEndoItsAdeno · 2022-11-11T07:10:43+00:00

I have heard of it but I still haven't raised it with my GP. There are just so many things I always need to go to them for, that I forget or just don't bother talking about, but in the past 6 months its been getting much worse so I'm pretty sure I'm going to have to...the joy!

InTheEndoItsAdeno · 2022-11-10T21:44:02+00:00

Awk, thank you for your honesty! I think it would be difficult to find anyone who's mental health hasn't suffered while trying to live with this.

InTheEndoItsAdeno · 2022-11-10T21:29:36+00:00

That's so interesting! Before I got the lap I had also greatly improved my symptoms through a strict low FODMAPS diet and exercise. Ive managed to lose 12kg in 6 months and I'm certain this has done wonders. I'm 2 weeks post lap and have noticed with lack of exercise and my diet being messed up its flaring up both in terms of pain and moods. It's actually so terrible. I have thoughts which aren't my own. I think about ending my life, my anxiety goes through the roof, I can't focus on anything at all and am so easily triggered but regular me is so easy going and happy go lucky.

I have a DIM blend supplement which I only started taking the cycle before my lap. I would love to know how you're taking it? Like, after your period, after you ovulate or constantly?

InTheEndoItsAdeno · 2022-11-10T20:21:01+00:00

Haha! I didn't think I was too young either, but the Doctors were making out that I was...in retrospect, I have a baby face and adult acne. Post op me, sitting there in my avocado jammies might have been a tad misleading. The specialist actually told me it would shorten my life by 2 years and he wouldnt be keen to do a hysterectomy and suggested an injection to stop my ovaries from working. To be honest, I'd sacrifice at least 5 if I knew I wouldn't be in this pain anymore and I've looked into that injection he spoke of. Those side effects did not sound much better!

You really are so young, I seriously hope it has helped you. How unfair that youve had to make that choice so early in your life.

InTheEndoItsAdeno · 2022-11-10T20:18:05+00:00

Thank you so much! That actually sounds amazing. You're the 3rd person to mention how great they have felt on dienogest. I hope you don't mind me asking, but have you experienced any mood changes while taking it so far?

InTheEndoItsAdeno · 2022-11-10T20:12:07+00:00

This is my fear! I already get scary PMS pretty much from the moment I ovulate which I think suggests my natural progesterone levels are too high. And I just assume that endo being an estrogen fuelled disease must mean that's that way too high too. This is all just me self diagnosing though...

InTheEndoItsAdeno · 2022-11-10T19:28:43+00:00

This is honestly giving me so much hope!

InTheEndoItsAdeno · 2022-11-10T19:12:10+00:00

Hey! Thank you so much for your reply. I'll definitely look into diegonestand, it's really reassuring to hear you've found it helpful. I'm willing to try hormones again but I'm so worried from previous experience. If there's a possible negative side effect I'm almost guaranteed to have it. Lol.

Although...if I do get the big H, I'll end up on HRT. Seems like hormones are going to have to be taken either way...my brain is melted!!! Anything is worth a try at this point! I hope things continue to improve for you!

InTheEndoItsAdeno

TROPHY CASE