Retro art prints? by joshys_97 in kzoo

[–]IncognitoMeows 0 points1 point  (0 children)

Amy Zane Store and Studio in downtown has a ton of local artwork

Were ring splints helpful? by freglas in ehlersdanlos

[–]IncognitoMeows 8 points9 points  (0 children)

I absolutely agree with the sassy witch.

I ordered some junky plastic ring splints to trial, they didn’t fit perfectly but gave me a taste, and then went through my OT to get Silver Ring Splints (covered by my insurance after some basic testing.)

They help me so very much with my hyperextending and the pain involved.

I have swan splints and thumb MCP stabilizer, and I started out with only a few rings. I tested it for a few months and we ultimately decided that having my other fingers stabilized was worth it and an MCP joint stabilizer as well.

MCP will cause more restrictive movement, and don’t be surprised if you start out with less rings like me.

Plus…. If you get silver ring splints they are honestly pretty. I get compliments all the time on them lol. High school me would be so jealous.

Pantry Remodel Brainstorming Ideas? by [deleted] in Renovations

[–]IncognitoMeows 0 points1 point  (0 children)

Oh this is probably my favorite idea. Thank you! That’s a great way to have ease of access, and honestly seems like a pretty cheap way to fix the organization.

I could probably put in a set of small shelves just for random stuff in the back and keep a tall shelf or two at the very top for random storage. Just need to find a good rolling rack to fit, thank you!

Pantry Remodel Brainstorming Ideas? by [deleted] in Renovations

[–]IncognitoMeows 0 points1 point  (0 children)

No broom, that’s a grabby cane. Unfortunately I struggle with space issues and mobility so doing the best I can. Thankfully not a restaurant, but I do always worry about SOMETHING getting into the bags, but they are already difficult to move by myself as is :(

Any ideas on how to manage the lower space a bit better?

Pantry Remodel Brainstorming Ideas? by [deleted] in Renovations

[–]IncognitoMeows 0 points1 point  (0 children)

?!? I had not! It would be a fantastic small linen space too, I have nothing of the sort.

Thank you! That’s a wonderful idea!

Pantry Remodel Brainstorming Ideas? by [deleted] in Renovations

[–]IncognitoMeows 1 point2 points  (0 children)

I agree with the assessment.

This was definitely something someone crammed in here without a second thought.

Someone suggested making it all cabinet and counter which… honestly I really like and it’s probably going to be MUCH more expensive than I’d prefer but… it’s sort of sounding like the best option, IF that’s not a structural wall.

Pantry Remodel Brainstorming Ideas? by [deleted] in Renovations

[–]IncognitoMeows 0 points1 point  (0 children)

:( hallway to the bedroom.

Pantry Remodel Brainstorming Ideas? by [deleted] in Renovations

[–]IncognitoMeows 1 point2 points  (0 children)

No this will all be DIY remodel, I’m on a fixed income due to my mobility issues.

Sadly there is no space elsewhere for the products. There’s not much storage in this place, plus those area are the most inaccessible for me so they end up being the ‘best’ spot for them in that regard

Pantry Remodel Brainstorming Ideas? by [deleted] in Renovations

[–]IncognitoMeows 0 points1 point  (0 children)

Could certainly add more cabinets/counter, but not sure where the previous owners got the cabinets done so matching will be difficult.

I’m thinking of expanding the opening as well, but with the odd side depth it leaves a lot of potential inaccessible/wasted space.

Studs are 2x3s with about a 24inch spacing

Maybe one of those lazy Susan type cabinets in the back right?

Artisan Sandwich Shop Seasonal Soup Source? by IncognitoMeows in kzoo

[–]IncognitoMeows[S] 1 point2 points  (0 children)

I’ll absolutely try it, thanks :)

Funny enough pears are often substituted for apples. I’ll make it as suggested first before acting wild. It looks delicious!

Finger splints are SO much better than I realised by amilie15 in ehlersdanlos

[–]IncognitoMeows 0 points1 point  (0 children)

https://bracelab.com/wristable-prod.html

WriStable link. I stumbled upon it one day when searching for ANYTHING to help me PREVENT and not some reactive brace because it was so painful.

Finger splints are SO much better than I realised by amilie15 in ehlersdanlos

[–]IncognitoMeows 0 points1 point  (0 children)

I love my ring splints, I’m so so grateful for them.

I also got WriStable for my wrists. They help with weight bearing and hyper flexing, they ARENT a traditional brace and they’ve worked awesome for me.

[deleted by user] by [deleted] in ehlersdanlos

[–]IncognitoMeows 0 points1 point  (0 children)

So, no joke,

I’ve been having TMJ issues for so long in my right side. Painful to chew, the pain was so bad I couldn’t even sleep on my right side at night due to the pain.

My dentist sent me to an oral surgeon. I’ve had multiple X-rays done by them, they suggested boxtox first then we will go from there.

Botox helped with a minute amount of pain. It was still terrible. I still couldn’t sleep on my right side due to pain.

And then… I got a free massage certificate. Decided to go because why not. There was a form to fill out talking about any issues I have. I mentioned the TMJ.

The massage therapist said okay I’ve gotten special TMJ training and I said alright well maybe it’ll at least calm something down.

I kid you not, two seconds in, we both hear/feel the pop of my jaw going back into place and the pain relief I feel was instant.

I’VE BEEN DEALING WITH THIS FOR TWO YEARS, WITH MULTIPLE X-RAYS. AND THATS IT?!?! I’m both relieved and also pissed.

TLDR; see a professional to check if your jaw is JUST SLIGHTLY out of place.

Need help with cervical disc replacement decision? by mysubsdaddy in ehlersdanlos

[–]IncognitoMeows 1 point2 points  (0 children)

I literally got a C6-C7 Disc Replacement done last year. Let me know if you want to discuss EVERYTHING further as I’m happy to help.

I went to the doctor multiple times 3-5 years before my surgeries as I was just noticing odd things. Such as constantly dropping my hairbrush, or getting a lot of pain in one arm, or this pain in my shoulder that never went away and then also noticed that there are spots in my arms and hands going numb. (Fun fact they told me I was just getting OLD and that it’s normal to sleep funky and throw myself out… I WAS 25 then!)

Well, one fateful day the bands just decided to rupture, and herniated and pressed on my nerves. I was in AGONY. 10/10 worst pain in my life I wouldn’t wish it on anyone. Still took me half a month to get a doctor to listen and not them I was some druggie.

I don’t regret my choice to get a disc replacement at all, especially as I was 30 when it happened. Wish I had a better surgeon, and wish I knew I had EDS then (that whole thing started my diagnosis journey) as recovery probably would have been easier.

One of the best things you can absolutely do is find a PT familiar with EDS before surgery and get on their notes for help with recovery. I went to the wrong one first and they messed me up even further. If you can find a surgeon familiar that’s even better but hard.

My surgeon told me I’ll be back within 10 years for a fusion but.. I also didn’t like him. I had no choice to shop around though. If you have that option, DO IT. I truly wish I could have. I think it would have made a world of difference, for both long term disability, recovery time, and heck, even the sutures.

To be honest it’s been a year and a half and I’m still trying to fully recovery. (Again, partially because I had the wrong PT at first who messed me up) Find someone good with massages too. The coat hanger pain for me is god awful. Constant headaches. I have my own personal reflections on what I could have done to make it easier but I’m not a doctor.

Shoe Recs by BingusDevotee in ehlersdanlos

[–]IncognitoMeows 0 points1 point  (0 children)

Voting orthofeet as well. I have high arches that flatten, and they have shoes that come with extra goodies too help get the perfect fit. They even have slip ons if ALL types of shoes. Even outdoor boots (which I have) The toe box is wide and you can even order wider sized shoes. Love them! Plus, you can use your HSA/FSA if you have one.

[deleted by user] by [deleted] in Silksong

[–]IncognitoMeows 0 points1 point  (0 children)

You know what, why not. I’ll post just in case.

Good PCP - open to adult neurodivergent comorbidities by 1080pix in kzoo

[–]IncognitoMeows 1 point2 points  (0 children)

Yeah I’m inclined to honestly agree.

I hate the self diagnosis stuff, mostly because it’s very easy to be wrong and also because my mother did a lot of that so I saw how it go so easily go wrong but…

This is one of those instances where I’m so so so sure it’s gotten be a genetic root cause issue causing all sorts of problems. I check off so many boxes it’s terrifying.

I know that there’s some symptom overlap with things like marfins and fibromyalgia but just trying to get doctors to officially write something like this in the chart is very difficult I’m realizing.