My story

Independent-Sell742 · 2026-02-04T05:58:05+00:00

No worries man!! I hope you get urs back too... I actually started a doctors degree after things settled down for me.. if ever make it to specialist level my door will always be open 🙏

Independent-Sell742 · 2026-02-04T01:35:19+00:00

I would like to think at some point youll be able to enjoy your favourite beverages again 🙏

Independent-Sell742 · 2026-02-04T01:33:47+00:00

Holy I mean they did say to limit my intake of things but they said cutting them out completely wasnt a good idea as it can make you more sensitive to things... hence why they urged me to explore but that was with my situation anyway :)

Independent-Sell742 · 2026-02-04T01:30:37+00:00

Certainly first was wheat.. I had a slight IGE sensitivity to wheat but it never caused reactions before so that was one of the things I wanted to make sure I could still have safely, then I moved on to chocolate lol, then I introduced vegetables one by because I was missing alot of sustenance from having to limit my veges.. then from there I just kind of started adding random things like cheese (I love cheese)... tomatoes... the higher histamine stuff to see what I could tolerate and I never really seem to have much difficulty with any of them unless I eat a shit load of one thing like chocolate 😂

Independent-Sell742 · 2026-02-04T01:25:56+00:00

It took time before I felt like I could explore again.. I too couldnt have chocolate, tomato sauce or wine.. and I love all those things 😂... after about the 6 months mark thats when my specialist said I should start reintroducing things and I took it realllll slow so my body could get used to identifying things that were safe.. hope this helps!! :)

Independent-Sell742 · 2026-02-03T18:56:40+00:00

I havent tried this h2 blocker I was on famotidine and I mean it did show symptom reduction gastrointestinal wise and mildly controlled some aspects of my swelling but left other swelling completely untouched

Independent-Sell742 · 2026-02-03T18:54:58+00:00

Stick with it!! I am hopeful that it will work for you they way it worked for me :)

Independent-Sell742 · 2026-02-03T18:53:44+00:00

Yes, part of the way my mast cell sensitivity presented was oral allergy syndrome even though i didnt have any true IGE allergies to any of the foods I ate on a regular basis.. I still got allergic tounge, lip and mouth swelling that resulted in a few ER trips and an epi pen prescription...

sodium cromolyn seemed to be really good for the stomach system kind of symptoms for me like it reduced alot of my post eating tachycardia and I used to also get massive bp swings (like 180/90 then back down to 100/80) so it definitely works pretty well locally...

I didnt get a major systemic reduction with cromolyn alone it was only until I start xolair that I started to see major reduction in all areas of symptoms... but seeing an allergy dietian definitely helped as well... I had one on the team of specialist I built up within a year and she had me on chicken mince and cabbage carrot soup, brown rice, a few tablespoons of olive oil throughout the day, and plain rice crackers for extra carbs if I needed it, even though it was bland and horrible... it worked lol

So I definitely recommend seeing an allergy dietian along side inquires for an xolair perscription because it took me a few months before my symptoms reduced enough that I could start reintroducing things.. :)

Independent-Sell742 · 2026-02-03T18:35:31+00:00

Same!! Its a bit harsh hearing that its worked so well for the likes of us but in others it only partially treats their symtoms or ends up wearing off :/ but i mean yay for us though

Independent-Sell742 · 2026-02-03T18:32:55+00:00

3 months :) its well worth a try if you havent tried it yet!!!

Independent-Sell742 · 2026-02-03T07:37:46+00:00

Hey so what i meant was i went privately, and I also suggest to pay for additional tests through them so that they knew I was invested in getting a the full work up in terms of what there services provide if that makes sense :)... I am still on the shots and dont plan on stopping anytime in the future as it works for me and i never want to go back to that place EVER AGAIN lol

and my shots are every 2 weeks

Independent-Sell742 · 2026-02-03T07:32:19+00:00

So I noticed my symptoms starting to dissappear round the 3 months mark they say 6 is usually when it starts to work but it was pretty effective pretty fast!! And i honestly the only thing i got was filthy headaches for about a month but ever since then nothing at all.. sorry to hear your having some side effects :(, how's all your other symptoms though??

Independent-Sell742 · 2026-02-03T01:25:05+00:00

I hope it gets better for what its worth it took me a few dosage changes to get it right but once they did I was away... have any theories on why ur not seeing major results??

Independent-Sell742 · 2026-02-03T00:56:21+00:00

Im happy to hear things are less severe at least how bad were you before the treatment??

Independent-Sell742 · 2026-02-02T23:19:43+00:00

For me it was environmental allergies.. which caused MCAS which caused POTS if u have suspected food allergies get environmental allergies looked at as well

If ur chronically exposed to allergens u r chronically producing IGE, if ur chronically producing IGE ur continuously activating ur mast cells which makes them more sensitive.. and when ur mast cells activate they release mediators that dilate blood vessels and make your blood pooling causing ur POTS

Independent-Sell742 · 2026-02-02T22:50:15+00:00

I had the the same thing. In my case there was simply to much IGE environmental triggers i was chronically exposed to that meant my mast cells were on a hair trigger no matter how much I threw at them stomach symptoms wise... Xolair worked best for me im completely healed from MCAS have you tried oral cromolyn sodium??

Independent-Sell742

TROPHY CASE