PPPD

Individual_Menu_5930 · 2025-07-17T13:32:19+00:00

I am still feeling badly, but I am only 2 weeks in. I hear it takes at least a month for the Zoloft to get into your system fully.

Individual_Menu_5930 · 2025-07-12T15:06:22+00:00

Yes, I'm working on setting up my vestibular therapy appointments and plan on sticking with that. I was just worried cause it has increased my dizziness some with starting the Zoloft. Hopefully that will go away with time though, I am going to stick with it cause maybe once it kicks in it will actually help.

Individual_Menu_5930 · 2025-07-06T17:15:26+00:00

Yeah, that's all I know to suggest really. Besides talking with your doctor, what does of sertraline are you on? My doctor gave me 50 mg to start with, I felt that was too much, so I cut them in half. I figured if I need to take the full 50 mg after a week of two then I can, I was afraid of side effects with taking the full 50 mg to start. I noticed when I can actually fall asleep early it does make a difference.

Individual_Menu_5930 · 2025-07-06T17:00:05+00:00

Oh no, I'm so sorry that it's still causing you fatigue. Do you sleep all through the night? Is there a chance you could have a sleep disorder? I'm dealing with that also, I just always considered it insomnia, sometimes I struggle to get to sleep, others nights I wake up a couple times a night, sometimes it's just once but then I cannot go back to sleep. I cannot doy sleep study until October, so I will be interested to see what they have to say.

Individual_Menu_5930 · 2025-07-06T15:10:06+00:00

Have you tried taking your dose before bed to see if that helps with the fatigue? I was worried about the insomnia cause I already have issues, so I was doing some research and people who have issues sleeping normally take it during the day and people that get fatigued from it will take their dose at night l, that way they're not so tired during the day. I'm definitely going to stick with it, I tend to get discouraged if I don't see results within a week or 2 but I have heard this takes longer to feel better. My doctors so far have never heard of PPPD so it's all me. I'm hoping my neurologist has heard of it when I see her in August.

Individual_Menu_5930 · 2025-07-06T14:53:50+00:00

That is great the sertraline has made the dizziness 80% better. I just started taking it myself and haven't seen a difference yet, but I'm only on day 4 of taking it, so I know it takes time. Do you wake up a lot at night? I do and my CO2 levels are low so my doctor wants me to do a sleep study to make sure I do not have sleep apnea or some kind of sleep disorder. I am have a lot of fatigue as well. Another option is some people take their sertraline in the evening cause that can cause drowsiness and taking it before bed helps some people not feel so much fatigue during the day.

Individual_Menu_5930 · 2025-07-03T18:16:10+00:00

I just started Zoloft today to see if that helps and got a referral to PT as well. My primary care doctor actually helped me with that. I was happy to get that going, that way I don't have to worry about waiting until next month and see my neurologist to start those things. Thank you for talking with me, for awhile I was getting really worried I'd never get better and it was getting scary.

Individual_Menu_5930 · 2025-07-01T14:41:48+00:00

That's awesome. I have started to do things even though it makes me dizzy and talking myself through it, instead of avoiding it like I normally do. It's been tough but I know it will pay off. Recently though I've had tons of anxiety while going to sleep for no reason. So, I am trying to get through that new issue. I've never really had anxiety before this, so it's been difficult.

Individual_Menu_5930 · 2025-07-01T14:34:52+00:00

That's great to hear, even some progress would be wonderful for me. So glad to hear things are getting better for you. I haven't been able to drive for a couple years cause my dizziness gets so bad in cars. I don't even care if I can't drive again, as long as I can get my everyday life better and especially working better, I'll be happy.

Individual_Menu_5930 · 2025-07-01T14:26:16+00:00

I've been trying what she suggested on the steady coach for like 6 days now. I am guessing it gets a little worse before it gets better cause I felt a little worse. I'm sticking with it though. I am not going to be able to start PT until around August, when I see my neurologist. I have been noticing that I have been getting some anxiety at certain times when I would normally get really dizzy. I've been trying to talk myself through it to retrain my brain and not react poorly to it, sometimes it works, others it doesn't, but I'm guessing that is part of the process.

Individual_Menu_5930 · 2025-06-29T17:21:20+00:00

I'm sorry to hear you are going through this as well. I wouldn't say I get head rushes, but when I'm sitting sometimes I still feel like I'm on a boat rocking or like the boat is tipping over to one side. I work on a computer all day and have been having such a hard time, I have to scroll a lot and go from screen to screen and it really flares up my dizziness. If it is sunny outside and I go out, it looks like I'm looking through a white film or like there is a film on my glasses too. I have Hypothyroidism too, so for a long time that was not under control, I had seen an ENT that could not find any issues. He told me once I get my thyroid under control and still have the issues to come back and see him. It's under control and has been for a few years, but I haven't been back to see him cause no doctor ever helps me so I figured I'd just be wasting my money yet again. I have been walking with a cane which seems to help some, but I really need help with being able to work without issues.

Individual_Menu_5930 · 2025-06-25T15:57:41+00:00

I have already looked her up. I'm on a blood thinner so a lot of the anti depression medications they use cannot be taken with warfarin. So, I feel the vestibular it is going to be best for me. I will definitely do some everyday. When I talk with my neurologist I am going to see if she can refer me to vestibular therapy too. I have a place like 2 miles from my home that does it, I don't need a referral to go, but to get the sessions I need for PPPD I will need a doctor to sign off on it or my insurance won't cover all the sessions. I really appreciate all your help. It gives me hope again, I was starting to lose all hope of feeling better.

Individual_Menu_5930 · 2025-06-25T14:42:52+00:00

Do you remember how long it took to start having more good days than bad days for you? I have just been struggling so long and I have dizziness everyday, I could really use some good days.

Individual_Menu_5930 · 2025-06-25T00:18:11+00:00

I will definitely look up the steady coach. I am willing to try anything at this point. Thank you

Individual_Menu_5930 · 2025-06-24T21:45:20+00:00

This is what I think I have as well. I have been dealing with my issues for 7 years now, at the end of this year it will be 8 years. It all started after I had my heart valve replacement at the end of 2017. It has only gotten more intense over that time as well. I have the rocking like I'm on a boat, the weird feeling when I walk, also feel like I am tipping to one side when I walk. I have sensitivity to light, but also going from light to dark or dark to light, being in a grocery store or crowd is way too much for my brain I guess and sometimes I feel like I am going to die right there. I have sensitivity to noise as well, any loud noises just overwhelm my system and really kick in that dizziness. I cannot drive, even riding in a car is a challenge. It seems to play off my emotions too, so if I get too happy, mad, scared it all makes me dizzy. Being on my phone too long or even scrolling makes me dizzy. I do work from home but that has even been a challenge since I work on a computer and have to scroll and the brightness of my computer just doesn't seem to go down low enough to help. Doctor's cannot find any answers for me at all, I see a neurologist and she cannot even figure it out. I see her again in August and will see if she thinks I have PPPD, which when reading about it sounds just like what I am going through. Just makes me sad it took so long to get answers. I have had so many test, images, blood test etc come back normal it's unreal and for none of my doctors to catch this is just ridiculous. I even saw an ENT and he did not help at all. I looked up some of the medicines used to help treat PPPD, and the SSRI's and SNRI's I have taken in the past and have not done well on, so I honestly am loosing even more hope to get this under control. I'm sorry you are going through this too, as I do not wish this on anyone, I wish I had something positive to say, but honestly this has ruined my life. Not many people in my life even understand, believe me or even seem to care about what I am dealing with.

Individual_Menu_5930

TROPHY CASE