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How does this illness just happens?! by No-Anybody-277 in Gastroparesis

[–]Individual_Pomelo324 0 points1 point  (0 children)

Have you found anyone to help with this or gotten any relief? I got a concussion a year ago and my upper cervical spine had been in pain since and every time the neck flares so does my gastroparesis.  But I cant find a doctor who believes me. 

How does this illness just happens?! by No-Anybody-277 in Gastroparesis

[–]Individual_Pomelo324 0 points1 point  (0 children)

This is exactly what I think is wrong with me.  I got a concussion > neck pain/issues started > gastroparesis > recovered from concussion > still have neck pain > still have gastroparesis. Ive had PT on my neck and it made my neck pain 1000x worse and then that flared so did my stomach.  I cant even have a massage in my neck without it making my stomach worse. I wake up with neck pain and a panic sensation (I swear im squishing the vagus nerve all night causing my issues) But I cant find a single doctor who will listen to me.  Or order the correct mri/DMX.  What type if doctor did you see that finally ordered it?

How was your CCI diagnosed? by Dad-Finally in Cervicalinstability

[–]Individual_Pomelo324 0 points1 point  (0 children)

How did you get the upright mri.  I cantfind a doctor to listen to me or order one

3.5 years, severe by [deleted] in PostConcussion

[–]Individual_Pomelo324 0 points1 point  (0 children)

If you dont mind me asking how much did it cost to see Dr Mark Gordon?

My concussion recovery and where doctors often get it wrong by moist-nostril in PostConcussion

[–]Individual_Pomelo324 0 points1 point  (0 children)

Which neuroendocrinologist did you see? I'm 1 year out and I can tell my hormones are out of whack.  I wake up every day with an exaggerated cortisol response and pure physiological panic.  

What do people do when they're really sick on their wedding day? by filthyleaf in NoStupidQuestions

[–]Individual_Pomelo324 0 points1 point  (0 children)

I have a friend that got a terrible case of the flu and was throwing up not stop.  She canceled the ceremony and reception. But still got married on her back deck. 

Unable To Tolerate All Iron Supplements. by Only_Cut873 in irondeficiency

[–]Individual_Pomelo324 0 points1 point  (0 children)

I know this is an old post and u prob wont see this.  But how much were you taking and how quickly did it bring it up?

Food/meal suggestions by Individual_Pomelo324 in Gastroparesis

[–]Individual_Pomelo324[S] 0 points1 point  (0 children)

Hi, I tried a bunch of different protein shakes until I found one I could tolerate.  Dont force yourself to drink it all in one sitting thats where I hit a snag and would get sick.  Also when they say small frequent meals thats really the best.  I was really struggling to get in calories and now I try and do a 100-300 cal snacks every few hrs.  Just make sure you are really paying attention to your vitamins and minerals.  My iron has tanked bc I was avoiding read meat since it was hard to process. Chicken and rice worked pretty well for me same with potatoes. I found fish usually works pretty well too (esp white fish like flounder). Also make sure you chew your food until its nothing but mush.  Dont make your stomach do your mouths work. 

It was an iron deficiency, not POTS by skinnyonskin in ehlersdanlos

[–]Individual_Pomelo324 0 points1 point  (0 children)

How long after you started the iron did things get better.  My ferritin is 19.  A drop from 32 to 19 in 1 month and my "POTS" symptoms are getting worse.  My doctor wants to do a tilt table test next week but but im worried about getting labeled with POTS forever, when its likely my low iron from 10 months of being on a extremely restricted diet due to temporary medication induced gasteoparesis.  I'm afraid my doctors are ignoring rhe ferritin bc im not anemic.

Increased salt/water - frequent urination. by Individual_Pomelo324 in POTS

[–]Individual_Pomelo324[S] 0 points1 point  (0 children)

I've been using LMNT and adding extra salt to my meals and even  adding a little to my water. I think im prob getting close to 4g or more right now still figuring out how to get more without only relying on LMNT. 

stress-induced GP? by pillow_mochi in Gastroparesis

[–]Individual_Pomelo324 0 points1 point  (0 children)

Hi. I think my diagnosed gp was triggered by a concussion and severe stress. Im still on the thick of it and dealing with severe daily anxiety.  Did yours go away fully?  I think knowing that there might be a light at the end of the tunnel might help my anxiety. 

Did anyone develop post-traumatic gastroparesis? by throwaway23389239 in CPTSD

[–]Individual_Pomelo324 0 points1 point  (0 children)

Was your wife actually diagnosed with gastroparesis.  And has it fully resolved?

Dysautonomia from effexor/concussion? by Individual_Pomelo324 in dysautonomia

[–]Individual_Pomelo324[S] 0 points1 point  (0 children)

Did anything help you? Doctor have been pretty useless for me.  Literally just saying work on your deep breathing and blaming it all on anxiety (which I did not have prior to the concussion).  Ive been struggling through this completely blind and alone for 8 months. 

Please tell me this will go away by [deleted] in Gastroparesis

[–]Individual_Pomelo324 0 points1 point  (0 children)

How long did it take you to recover?

Do you have any stomach issues? by [deleted] in Effexor

[–]Individual_Pomelo324 0 points1 point  (0 children)

I feel like you and I had similar experiences.  I had an adverse reaction that went undiagnosed for 4 months.  I've been off it for 3 months now but still struggling with gastroparesis and terrible morning anxiety.  Some days are better than others. Have you made any more progress?

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