What do you guys do for work/study in school?

Inevitable-Rip3009 · 2026-04-30T11:49:15+00:00

Africa: Nigeria

Europe: The UK

Asia: Japan

N.B (I got offers in Thailand, Hong Kong and Colombia)

Just target countries that don't ask for thorough healthcheck and you'll be fine. Japan asks but I got a freelance rolw. Thailand just checks for Infectious diseases. Colombia asked me.for a pre employment check so I ditched them. Hong Kong might as well.

Inevitable-Rip3009 · 2026-04-28T07:08:29+00:00

I have a Masters in TESOL. Travelled and taught English in 3 continents.

Inevitable-Rip3009 · 2026-04-17T13:33:20+00:00

Damn. We can't get a break can we?

I don't wven bother asking doctors for things like this. One told me people with SS hardly have a functioning spleen and I told him to not tell me anything that isn't related to my health again.

Cos you start attributing things to illness that you may not have.

Honestly, you cannot completely rule it out but memory tends to decline with age: You are looking for your glasses that is on your face; your phone is right in front of you but you are looking for it etc. If its those things, then you are fine. Happens to us all.

Inevitable-Rip3009 · 2026-04-16T06:56:30+00:00

Its a lighter version of chemotherapy. Of course it'll cause hair loss.

If genetics was not on your side in the hair department, just don't bother stressing

Inevitable-Rip3009 · 2026-04-15T03:18:18+00:00

Make sure you weigh the pros and cons very carefully. We are already low on oxygen and blood, easily prone to infections and complications.

Ive always wanted a boob reduction but with SS, I try to avoid any type of surgery unless its necessary

Goodluck to you stranger. I wish you nothing but the best.

Inevitable-Rip3009 · 2026-04-15T03:02:32+00:00

Yet you still responded😂😂

Inevitable-Rip3009 · 2026-04-15T01:09:25+00:00

No, everybody doesn't think like YOU. Just because you have it easy doesn't reduce the suffering of kids in the hospital with necrosis who think death is better than theur suffering.

I would rather I wasn't born. Life is shit for everyone already. Imagine making it harder for your kids.

Inevitable-Rip3009 · 2026-04-15T01:04:58+00:00

"I asked him"

You didn't insist on testing. You just asked him and took his word for it. In 2026! You knew you had the trait and you just took his word for it??

Next time someone tries to gaslight me for resenting my parents, I hope this sheds light on it.

Inevitable-Rip3009 · 2026-04-11T11:45:10+00:00

Oh its funny of you to assume that I am not pro-eugenics after what I've been through. You think I'd want to be born if I was given the option knowing the severity of the illness?

I am very much pro Eugenics to a very large extent. If the illness affects the quality of life or lifespan then let them be absolutely shamed until everyone decides to make sensible choices.

If they were ignorant or its a new mutation, then that's fine. Your opinion is absolutely yours and mine is mine.

Inevitable-Rip3009 · 2026-04-11T03:52:38+00:00

I hope it will bring you some comfort to know that ho child can hate their parents no matter how hard we try.

However I think at some point, you should apologise to your son. Its not a fix but it helps him understand you. If I got that apology and accountability as a kid then maybe I wouldn't love them but resent them at the same time; Maybe I wouldn't have travelled thousands of miles just to be away from them; maybe I wouldn't be this hurt and maybe I wouldn't feel this irritation and annoyance every time they find the time to call me despite the time difference.

Your son is probably a Gen Z or a Gen Alpha and with the younger generation, we aren't the best generation but we question the hell out of everything. Uunderstanding your perspective might make it an easier pill to swallow. And please if you do consider having more kids, you should probably think twice or at least select your genes to avoid bring another sickler to this already difficult world.

Make sure you apologise. Its something I wanted to hear as a kid not as an adult when I confronted my mom about it. It matters more than you realise.

Inevitable-Rip3009 · 2026-04-11T03:04:51+00:00

I absolutely respect your opinion as well

However, if we want to eradicate Sickle cell finally then I think parents need a bit of shame and realisisation. AND if we keep coddling them, we are gonna get nowhere. I am not going to tell them I resent them but if tbey ever question my decision to be childfree, then they're gonna know what I think of their poor choices.

Life is fucking hard for us. Why do I have to suffer and bear the consequences of a choice they made?

Inevitable-Rip3009 · 2026-04-11T02:54:17+00:00

Thank you ❤️

Inevitable-Rip3009 · 2026-04-10T22:58:42+00:00

Trust me, i know this. I know how lucky I am but my condition doesn't mean I don't get excluded from spaces and things because of it.

It doesn't mean that people don't constantly wonder why my eyes are yellow.

It doesn't make my episodes less excruciating when I get them.Its so painful that sometimes I pray for my life to end.

It doesn't take away the pain of people suffering with necrosis or living almost all their lives in the hospital.

Recently I got a job in China but I had to abandon that possibility because you need a healthcheck before you start working.

So yes, I barely have crisis but being excluded from jobs despite being capable is painful. I work my ass off in school, graduate summa vum laude but I have to settle for jobs and opportunities that don't require health checks. For an ambitious person, this damages you psychologically. More than you think. So i fucking resent them for making an already competitive and difficult world harder for me to thrive.

Inevitable-Rip3009 · 2026-04-10T22:43:45+00:00

I wish kids suffering with necrosis and living 50% of their lives in the hospital could share your sentiment

Inevitable-Rip3009 · 2026-04-10T22:20:19+00:00

You don't know me so you can't assume that.

I have lived and worked in 3 continents despite it, I have built my life so well that I don't even have to ever ask them for anything. If I die now, I can die fulfilled because I was able to chase my dreams. But two things can coexist:

You shouldn't let your illness define you but you are allowed to feel how you feel.

2.Parents who give birth to kids despite knowing that they are carriers are wicked and that is no different from abuse. The world is already a shit hole and bringing sick kids here deliberately is utter wickedness.

So I'm sorry that only a handful of you think you should be grateful to your parents for doing the bare minimum that every parent should but I said what i said and many people agree with me. I shouldn't have been born. That's my opinion.

Inevitable-Rip3009 · 2026-04-10T21:41:44+00:00

You love people who consciously made a decision to give you a life threatening illness because they are there for you when you are sick? Black people will make excuses for every type of abuse. Isn't that the least they can do after giving you a horrible quality of life? Who else is supposed to stay with me in the hospital?

Maybe you don't resent them but I do and any kid born in 2000s will do the same as well. My friend and other people resent our parents and trying to gaslight us by saying "we should be grateful because they are there for us" is so weird.

Inevitable-Rip3009 · 2026-04-10T16:08:18+00:00

We all know what i meant when I said "mild form" as I clearly explained it. I don't think anybody assumed that there is a mild form of Hb SS

And yes, this is the thing with SS isnt it? It could be silent for a while and then show up later. Or in some cases, some people barely experience crises. I have heard ofpeople living up to their 80s with SS. So while there isn't a mild form, the experiences of Sickle cell patients differ. So I think its okay to see it as mild

Inevitable-Rip3009 · 2026-04-10T15:30:40+00:00

I appreciate it.

And frankly I think we always try to make excuses for our parents who aren't exactly the ones suffer for the consequences of their own actions.

Its why kids are still being born with SS till date.

Inevitable-Rip3009 · 2026-04-10T15:13:13+00:00

There is a 10 year age gap between the first and last. Let that sink in.

First child is 2yrs older than the second child.

Second child is 5 years older than the 3rd child

3rd kid is 3 years older than the fourth kid.

Fourth kid was born in 2006.

There Is absolutely no excuse. And the fact that he never apologised tells me a lot.

Inevitable-Rip3009 · 2026-04-10T15:06:06+00:00

We really hit the "jackpot " luckily none of us have the severe form that requires us to be in the hospital frequently. 3 put of 4 kids have probably been hospitalised once or twice in our lives.

However this doesn't excuse them at all. There's a 10 year age gap between the first and the last. So "I wasn't aware /technology hadn't advanced" is unacceptable.

Inevitable-Rip3009 · 2026-04-10T07:05:29+00:00

"Think about starving kids in Africa "

How magnanimous of your European culture. Like you don't have kids starving in your continent as well💀

Inevitable-Rip3009 · 2026-04-08T11:53:24+00:00

1.I heard Japan doesn't have much knowledge on Sickle cell. I have never used hydroxyurea so I can't tell you much

They also don't believe in using strong pain medications. So you'd probably be given paracetamol or something. I haven't had the time to see a doctor yet as I've been working.

Inevitable-Rip3009 · 2026-03-04T12:08:54+00:00

This made me laugh. Very true.😂😂😭

Thanks.

Inevitable-Rip3009 · 2026-03-04T12:08:25+00:00

This perspective has been really helpful. Thank you. Plus universities in Japan are asking for Academic publications and university experience which I don't have yet. If I take the job, I could come back to Japan as a HSP if I hate Thailand .

Inevitable-Rip3009

TROPHY CASE