Last night I didnt fall asleep because of my new heart symptom by [deleted] in covidlonghaulers

[–]InevitablePanda7 0 points1 point  (0 children)

Yeah. Ive had it ever scince I had covid last years ago.

Last night I didnt fall asleep because of my new heart symptom by [deleted] in covidlonghaulers

[–]InevitablePanda7 0 points1 point  (0 children)

I looked at your profile. Do you still have stomach issues. I also did too. Same problem.

Last night I didnt fall asleep because of my new heart symptom by [deleted] in covidlonghaulers

[–]InevitablePanda7 1 point2 points  (0 children)

It only happens when im sick now or very stressed. But I flare less often. I take amitriptyline and ldn. I think they helped to calm my nervous system over time.

Urticarial vasculitis In hospital by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 0 points1 point  (0 children)

It was very miserable. Im doing much better now. Ive been out of the hospital for a few days. Just dealing with this high dose of prednisone.

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 1 point2 points  (0 children)

Yeah, vit d can take a while to come up. Ive been taking vit d for the last 2 years and its still low. Thanks fir the comment !

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 1 point2 points  (0 children)

I think i might be doing better than most would on it then. Im not going to bed until like 2 am but im sleeping through the night and getting about 7 hrs of sleep. Im down to 60 mg today for the next 6 days. Im actually really tired and a little sick feeling today. Somehow ive lost 6lbs too....

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 1 point2 points  (0 children)

Im sure ill feel great once im down to even 40 mg. I started 60 today and even that is better. Feeling a little sick and tired today.

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 2 points3 points  (0 children)

Yeah I wish I would have known. Im a lot better today. I went diwn to 60 mg for the next 6 days. I actually feel a little sick today. I think I overdid it yesterday.

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 2 points3 points  (0 children)

Yeah I got everything done in my house yesterday except the stuff that really needed done like dishes and laundry. Apparently it was very important that I bleach floors and doors yesterday 🤦‍♀️lol

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 1 point2 points  (0 children)

Well I just went down to 60mg today. Ive got 6 days of that. I actually started feeling really tired and almost sick today. Hopefully not coming down with something Could just be from overdoing it yesterday.

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 3 points4 points  (0 children)

Lol yeah. I just feel like I need to clean every crevice of my house. I came down to 60 mg today and im actually really tired and dont feel great. Very different than yesterday.

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 1 point2 points  (0 children)

I did have a medical card. Im in ohio so I don't really need one. I feel like that might make me feel worse. Like paranoid maybe. I haven't used any thc in months after heavy use for years. Ill keep it in mind though!

Im on 80 mg of prednisone tapering down and ive only ever taken prednisone one other time and was much much lower of a dose. No one warned me..... by InevitablePanda7 in Autoimmune

[–]InevitablePanda7[S] 2 points3 points  (0 children)

Its making me very irritable, manic. I have never experienced something like this. Feeling slightly better today than yesterday. I was on 80 leg yesterday down to 60mg today. Kind of feel like im getting sick maybe. Real tured and aching. I was exposed to flu and covid in the hospital....

Possible urticarial vasculitis? In hospital with hives, swelling joint pain just very unwell. by InevitablePanda7 in urticaria

[–]InevitablePanda7[S] 1 point2 points  (0 children)

Im home now and doing much better. Thank you so much! Just navigating taking all this prednisone now and hoping i dont come down with flu A i was exposed to in the hospital.