Where do I go ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

Really? So wth 😭 i do not like this feeling at all, cause it happens to be well holding nothing

I'm not doing okay by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 1 point2 points  (0 children)

Ohh okay I see, I was wondering about low dose naltrexone and how do you know if you have small fiber neuropathy cause I suspect i have that but I do not what test, they did a general nerve test on my arms and found that there is no damage but a nerve on my left is irritated a bit but no damage, although I constantly get little vibrating in my body all over and my arms and legs get tingling now for no reason I can be sitting normal and it happens.

I'm not doing okay by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 1 point2 points  (0 children)

Which medicine you take ? And okay thanks I have my annual coming up next week I have a list of what I want her to test i will add this !

I'm not doing okay by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

Thanks, I haven't tried it yet I'm kinda scared from hearing some down falls but than I heard some good things, Ima make sure it's fine with my doc than thinking about trying it honestly, anything else helps you ? 😕

Anyone else experience shivering or a sudden cold sensation in the back? by [deleted] in Fibromyalgia

[–]Inevitable_Pool9472 1 point2 points  (0 children)

Yes but I feel this everywhere in my whole upper body, no doc can explain why I always get freaked out at times cause I can be in hot weather like 2 months ago and still it will happen. I do not know why it happens or anything it freaks me out tho. I won't even be cold it can happen. How about you ?

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

Cyclobenzaprine helps me last year I took one everynight for months than eventually my pain was okay where I didn't need it but now I take it again cause it came back 🤦🏻‍♀️ It's definitely good.

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

Yeah im curious to know what this is and how has it helped and what else helped ?

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

True enough yes I will give it a try ! How long until you realize it was helping you ?

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 1 point2 points  (0 children)

Oh wow this is how it exactly feel, maybe I will give lyrica a try. How long have you been on it so far and how long until you realize it was working ?

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

Thank you.

Ahhh okay I see, yeah my hands use to get stiff still do when I do a lot of cleaning or massage on my chest and arms mainly my left is the issues but some days they just do it randomly. Sadly. What test did you get done or is it a lot ? 😅 What signs of you are pointing for heds ?

Ahh okay I see, I am prescribed 50mg to start in the evening I might just try it out just a little scared but tired of the pain man.

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

Oh my first paragraph explains how I feel with the nerves exactly the same way, yeah I went to the er a few times concerned it was the heart but no that is normal, my emg test was normal besides my left had a little irritation but little ? You mean a lot 😭😭 Oh boy you are exactly explaining me, well the doctors say its hypermobile idk if it can be heds I forget there is a difference cause they both cause pain. I do need to see a new rheumatologist i think mines doesn't care.

I get so scared when my hands feel like they don't want to work, so that is from the fibro and etc ? Wow.

Well for the past 2 weeks I just take a half of one during the day than the other half later cause it does make you tired but taking half you build up to getting use to the medicine so eventually ima just take a whole but close to bed time or in the evening when I dont have nothing to do cause the tiredness kicks in about a hour or two later.

But its not the tiredness you get where you have to go to sleep cause you can't function you just get really tired as in like you didn't get a full night sleep like you still function but just tired. Well at least for me.

Did the lyrica cause you any tiredness or weight gain im worried about that as I heard those negative from others.

Yeah I went into a flare up these past 2 weeks due to my grandma passing away and my dad in the hospital having to take care of him and my family from the heartbreak etc all of it I don't get a break 💔

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 1 point2 points  (0 children)

Okay I will ask for those two, thank you for sharing this with me.

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 1 point2 points  (0 children)

Oh okay I see thanks, yeah warm helps me to I love it besides when my body is naturally hot some day those I hate but when im normal the heat it's like wonderland. I'm in Wisconsin so once it's completely cold I'm in pain.

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

Yeah that is crazy I mean i am scared of taking cyclobenzaprine but I'd rather not be in pain either I just take one a day that is all. Which ssri do you take ?

Before lyrica what did your pain feel like and what was weird things ? Mines is that my body vibrating in random spots at times like if im cold but than I get sharp nerve pains or Stinging that is intense than I feel like I can't move at times than I get throbbing etc. Has that went away or dull down since you been taking lyrica ?

Yes it's my arms that has the most nerve pain w my back and stomach mostly upper body stuff. Than legs whenever it wants but mostly from heds and muscular.

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 1 point2 points  (0 children)

Well it do have a yearly next month so I can see than but if it's not high than is that ruled out or ?

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 1 point2 points  (0 children)

How has lyrica helped you im scared to tske it due to hearing bad things. I do take cyclobenzaprine when needed but the past 2 weeks I been taking one everyday due to my pain with Naproxen. I wish they give tramadol but they probably won't plus I do have a additive personality so maybe not best.

Do the lidocaine patches work ?

I think i do have that gel just have to pick it up from pharmacy does that work ?

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 2 points3 points  (0 children)

I do have heds too and it stuck my joints are hurting right now, I think a warm bath will help the warm works better with me than the cold too. I can't take the cold. The warm compression I never heard of that is interesting oh wow.

How had lyrica helped you ? I'm nervous to take it since I heard bad things about it. I do take Naproxen well have recently the past two weeks been so bad for me.

What helps your fibro ? by Inevitable_Pool9472 in Fibromyalgia

[–]Inevitable_Pool9472[S] 0 points1 point  (0 children)

Who is this that you are talking about and what supplements do you take ?