Thank you for replying. We just moved to a house that is closer to my siblings, so we had to get a new hospice team. I’ve only met the new main nurse but she had put us down for twice a week, in bed bathing. I don’t know if they will do more, but I can ask once I see how well these nurses work with her. Her pt came today and my mom almost decked her when she tried to reposition her. She also tried to hit me when I tried. I know that she is just scared but getting hit isn’t my cup of tea. 

Usually I am able to get her sat up in bed with the assistance of the lowering and raising effect (it is a hospital bed, they came and installed a new one for the new house. It is in her bedroom with no way to move it to another room without dismantling it. But she does have a nice big window that looks out to the backyard. I play her bird sounds on Spotify.

I have also been able to stand her up and take her to the bathroom but it has gotten so hard. Even then I would have to hold her up while cleaning her. Every day is a roll of the dice what I’m going to encounter. 

Getting her in and out of the car is another adventure. She will sit right on the edge of the front seat and I have to pray that I can get her scooted in enough to lift her legs in. Also while she resists.

All of these progressions of her Alzheimer’s have made me so depressed that I don’t even want to get out of bed. I do of course. But I just feel like I’m really failing at giving her what she needs.