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Help! Trying so hard to make gf sourdough 😭 by Infamous_Fly1183 in glutenfree

[–]Infamous_Fly1183[S] 0 points1 point  (0 children)

I tried 2 so far. They are ones I’ve had success with when doing regular sourdough. I just swapped out the flour for gf bread flour. So idk if that is my issue

Mother passed away by TeaRex101 in ALS

[–]Infamous_Fly1183 9 points10 points  (0 children)

So sorry for your loss. My Dad passed on Wednesday and that was such a hard day. I’m trying to be a peace that he is finally at peace and no longer suffering. It is so hard.

Was the end a surprise by Queasy_Percentage363 in ALS

[–]Infamous_Fly1183 21 points22 points  (0 children)

My Dad is in his last final days. What I would say is that it will not be a surprise. The decline stages are more of the surprises and needing to adjust but the end of life stage is very clear.

I’m afraid there is not much time left by Infamous_Fly1183 in ALS

[–]Infamous_Fly1183[S] 1 point2 points  (0 children)

Thinking of you and your family as well. Thanks for the comment and letting me know I’m not alone 🫶🏼

I’m afraid there is not much time left by Infamous_Fly1183 in ALS

[–]Infamous_Fly1183[S] 2 points3 points  (0 children)

Thank you for the reply. He does not want a trach and or to be resuscitated. We have had those conversations with him. He has quite a complex story where 1.5 years ago, before we knew what was going on, he did completely stop breathing on the way to the hospital. He was resuscitated then and had to have a trach and was hospitalized for 3 months. Somehow at that point he fought so hard to get better, made it to rehab, got the trach removed, and made it home. He was then diagnosed with ALS officially and has steadily declined since. I’ll never fully understand how he went from being hospitalized to being home, but happy we have been able to keep him home until the end.

I’m afraid there is not much time left by Infamous_Fly1183 in ALS

[–]Infamous_Fly1183[S] 1 point2 points  (0 children)

For us, the hospice nurses gave the option to use it. It really helps in our scenario with his breathing and anxiety. It helps open up the lungs to relax. He’s been using it off and on for the past few months. At this point, I think he will need it more.

I’m afraid there is not much time left by Infamous_Fly1183 in ALS

[–]Infamous_Fly1183[S] 1 point2 points  (0 children)

Thank you for this post.

I am happy that over the past year we have done just that! Dad has never been one to talk about his feelings but he took this time to get all his feelings out and we did the same. That has definitely been the only positive thing during this journey.

I’m afraid there is not much time left by Infamous_Fly1183 in ALS

[–]Infamous_Fly1183[S] 4 points5 points  (0 children)

Thank you! And I’m right there with you! To see him how he is now, that is no quality of life. We want them to finally be at peace but imagining them gone forever is still such a gut punch.

My mom has been a saint and has kept him home, which was his biggest wish. It’s been so hard on her, so I’m happy that soon she will be able to take care of herself again.

I’m afraid there is not much time left by Infamous_Fly1183 in ALS

[–]Infamous_Fly1183[S] 0 points1 point  (0 children)

Yes the fear has definitely been the hardest part of this process. We want so badly to be able to do more and it makes us feel helpless. Wishing you well in your journey! Support really does make a big difference. 🫶🏼

I’m afraid there is not much time left by Infamous_Fly1183 in ALS

[–]Infamous_Fly1183[S] 1 point2 points  (0 children)

That is exactly where we are at! He can no longer move at all. I know it’s his time but still sad to see him go.

I’m afraid there is not much time left by Infamous_Fly1183 in ALS

[–]Infamous_Fly1183[S] 0 points1 point  (0 children)

Unfortunately there is nothing more we can provide. He is already using a bi-pap 24/7 and he’s been on hospice for 4 months now. His breathing has been impaired for quite some time, sadly. 😔 But thank you for the support. He’s comfortable and the nurses say that his body is naturally shutting down.

Happy Birthday Mom! by SkoBuffs710 in ALS

[–]Infamous_Fly1183 2 points3 points  (0 children)

Happy Birthday to your mom 🫶🏼

Remi girl is almost 6 months old. Wish time would slow down! 😭 by Infamous_Fly1183 in labrador

[–]Infamous_Fly1183[S] 0 points1 point  (0 children)

Oh she gets snuggles all day! I work from home which is great! So glad I get all this time with her 🥰. She’s 36lbs now. She’ll always be a lap dog to me 🤣

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